Doctor, my knee hurts.

[Untold]

Weird title but will make sense. My baseline T is constant, resonates through my skull and is slowly finishing me off. Can't work and completely withdrawing from everything in my old life.

Here's my question which consultants and Professors seem unable to answer, you guys seem to have more knowledge so here we go.

I have the baseline T, left ear, which doesn't stop, aside from this, whenever I move my jaw or touch my face it spikes and stays spiked. This tells me it is a physical issue. May be some type of somatic T but let's put that to one side.

If I went to the doctor and said, "Doctor, my knee hurts constantly (baseline T)

and when I move it (jaw movement) or just touch it (touch my face) the pain increases (the T gets louder) the doctor would probably explain something about ligament damage, tendons, bone issues, whatever. He would probably have an inkling, some idea. These ENT doctors seem clueless and offer nothing.

My T is increased by movement and agrivating an existing underlying issue such as ottomandibular ligaments, malleus ligament, discomallelar or malleolar ligament or those tiny jaw muscles that can be responsible for Tensor Tympani Syndrome. These TMJ/TMD ligament issues are proven to be causes of T, even to the point where you can have no jaw pain and ear ringing is the only symptom.

If I've got it right the Tensor Tympani muscle plays a part in opening/closing the Eustachian tubes. My T is left sided, whenever I swallow or yawn my left eustachian tube goes crazy with lots of weird crackling noise.

I have no hearing loss, something is not operating as it should, something is sprained, strained, out of line, out of wack, I don't know what, but it's a physical issue.

I've got a telephone appointment with a doctor from UCH London next month. I'm going to ask her what she knows regarding the known connection with jaw ligament issues and T and link between ETD, Tensor Tympani Syndrome and tinnitus.

Not expecting much.

Love and silence to all.

[Tal-r789T]

I think your analogy is correct. In my case I do have some hearing loss, but I can alter my T by stretching my jaw, yawning etc. I have looked for a physio who could have a look but as it would be private I have struggled to find someone with any real experience. I tried one physio but didn't really help and I felt I'd not spent money wisely.

Be interesting to know how you get on if you don't mind?

[Untold in reply to Tal-r789T]

Hi Tal, if I have any news about anything, treatment, improvements, medication etc. I'll be posting it here.Good luck.

[GrimGraze]

How long since you got T? If it's months then honestly forget about curing the T itself. They have no idea how to do it and it either disappears on its own or just sticks to life.

This doesnt mean your life is over. The T created ANOTHER problem, a mental health one, which you CAN cure through medicine.

[Untold in reply to GrimGraze]

Hi Grim, I'm two and a half years in. My T is not a hearing loss issue, so it is therefore a physical issue. I woke up with this one day. My guess is it is a sub type of Somatosensory tinnitus called Cervicogenic tinnitus. A cervical neck/instability problem is the source causing a nerve problem which further causes issues with the Eustachian tube and the Tensor Tympani muscles which results in a pressure imbalance between the inner and outer ear and any other problem that it has caused. I've had every drug known to man, many ending with triptoline and not one form of medication has helped. What is this mental health health medicine you suggest? Would be interested to know.

My next discussion with a clueless health professional in August will probably be my last unless I see even the smallest improvement in my quality of life.

My aim is to try and spend one more Christmas with the people I love if I can last with this torture. Is my T worse than most? It must be, I can't even leave the house. The left side of my head is screaming out a high pitched ringing/hissing around 13-15Khz, can't work anymore either. The person I was a couple of years ago has long gone. I pray for death but God is either not listening, doesn't care or doesn't exist. One day a week I try to remain positive but on the other six reality kicks in, this is intolerable. If I could have one week of silence in exchange for dropping down dead on the seventh day , I'd grab it with both hands.

Have a good day my friend.

[GrimGraze in reply to Untold]

After i got the T i've researched the best antidepressants. My conclusion was mirtazapine was the safest, most effective in my situation. I wanted to die everyday like you're saying but mirtazapine really got me out of it.

You're in a desperate state then i'd say go for it. It made me realize that even with tinnitus bothering the fuck outta me i can still live ok. In the end it's all a matter of chemical balance in the brain.

Wanted to add a few things: it takes like 2 weeks to mirtazapine to kick in, and in these 2 weeks it might make you angry. At least it made me. But eventually this goes away. Also at least for me the T was muted when i started to take it for like 1 month but eventually this effect also went away.

[Untold in reply to GrimGraze]

Hi Grim. Thanks for replying.Had Mitrazapine, was one of the first things I was prescribed.

Not sure how I feel about meds anymore, especially after all the crap I've put into my system in the last two years, with zero results. Only the Loprazolam has helped with sleep.

Here's a list of some (but not all) of the crap I've been prescribed.

Mitrazapine

Phenoxymethylpenicillin

Nortriptyline

Clarithromycin

Aciclovir

Betahistine Dihidrochloride

Chlorphenamine Maleate

Fluoxetine

Flixonase

Prednisolone

Prochlorerparazine

Cinnarizine

Amitriptyline

Loprazolam

Not a fan of big pharma, all have been of no use whatsoever.

Have a good day.

Cheers.

[Doxiemom1]

tmj?

[Untold in reply to Doxiemom1]

Temporomandibular joint. Where your jaw hinges.

[Doxiemom1 in reply to Untold]

yeah I have that

[borjeno]

Hi, 13 years with T and hearing loss here. I only noticed the other day that my T spikes when I bite down on something hard like peanuts. Not very useful info I know but I thought I would add it to the discussion.

Best wishes.