Normally I am positive and try to keep my head... - Tinnitus UK

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Normally I am positive and try to keep my head up..

LittleNell83 profile image
12 Replies

This is a copy of the post I put in the running group but am sharing here as it is the effect my tinnitus is having on me atm.

Apologies for the wall of text. I don't often admit I am struggling and try to bounce of of blips. So, today didn't go to plan.

This week my tinnitus has been in overdrive and my sleep has gone to pot. I think partly as they are doing night time roadworks outside our flats which means droning noises which seem to exacerbate my t (like driving, extraction fans etc).

Last night I slept badly but got up at 8 to take the car to the garage, came home and cooked breakfast, went to collect the car and ran some errands.

Then, I decided to try and get some studying done and failed. My tinnitus has not stopped squealing at me today from the moment I awoke, and after an hour of trying to read one paragraph over and over and failing to understand it (it is a simple paragraph in a health and safety book as part of my diploma), with music, noise and trying to calm my mind not working at quieting my head, I admit I ended up in tears of frustration and just general fedupness.

The tiredness is hitting my runs, which is problematic with the GNR coming quick. I am so exhausted I fall asleep when I get in from work and energy levels have crashed.

Still, tomorrow is a new day. I will try to pick myself up, go for a run first thing then head to archery where the quietness normally calms my head.

I will try to be positive, head up and keep smiling. After all, my mojo can't have gone far, right and this is probably just a blip in the journey with tinnitus.

Yours

Nell

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LittleNell83
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12 Replies
Verma54 profile image
Verma54

Thanks for sharing your feelings ...

Jubster profile image
Jubster

Yes it's a blip. Tinnitus or no tinnitus, getting no sleep does things to the mind. This will pass. Running is just about the best thing you can be doing, imo.

LittleNell83 profile image
LittleNell83 in reply toJubster

Thanks, archery today seemed to help with the tinnitus. There is something to be said for flinging arrows around :)

Vibe19 profile image
Vibe19

Good luck with training for the great north run. Tiredness is my main meltdown trigger. Sounds like archery is a good distraction. Needle felting class had a similar impact yesterday!

I vary the white noise I use for concentrating on work - at mo usb fan is best at home. I checked with audiology if this was ok - and she said that she had found sticking to one noise on hearing aids the tinnitus changed frequency.

LittleNell83 profile image
LittleNell83

Ah, okay. I may try varying the sounds at work.

I have an appointment 21st August with the tinnitus clinic (3 month check in) so will ask for some help with things. Also, going to invest in aromatherapy oils to help with sleep (may work).

Yours

Nell

Shellipops profile image
Shellipops in reply toLittleNell83

Hi Nell,

Being a runner you may already use epsom salt in a bath, I find a good 20 min soak with a small cup full in, helps.

Also camomile tea half hour before bed...sleepytime extra is a valerian root tea which works for me. You can get it on Amazon....Ive a fitbit tracker and my deep sleep is always more when Ive indulged.

Take care,

Shell

LittleNell83 profile image
LittleNell83 in reply toShellipops

Thanks, I will look it up :)

Vibe19 profile image
Vibe19 in reply toLittleNell83

A year to my next audiology review. Saw GP yesterday and ok to add some vit supplements. Not found the solution to sleep yet - trying to wean off zoplicone.

Artee profile image
Artee in reply toVibe19

HI.I noticed you're on Zopiclone,me too but only about 3 weeks now. I know the docs want me off it but without it I wont sleep at all. ENP gave me a relaxation box with sound buttons - waves,birds,heart beat,woods,and white noise. I use rain and set it on 30 minutes and nod off on Zopiclone. it gets me use to the sound and I'm actually dealing better with the tinnitus. Hoping I might be able to wean off Zopiclone, I only have a few tablets left.

Vibe19 profile image
Vibe19 in reply toArtee

Good luck! I was unsuccessful in finding a white noise that helped on app. I switched to mirtazipine to help with sleep - after 6 weeks of trying to come off. I now have zoplicone on top when away - lost sleep and balance shot.

ShakeelaBTA profile image
ShakeelaBTA

Hello and welcome to the British Tinnitus Association forum.

Do feel free to ask any questions, I hope that you find this a helpful and supportive place to help you manage your tinnitus.

We have some resources that you might like to check out in addition to our home here:

tinnitus.org.uk (information and support details)

takeontinnitus.co.uk (free tinnitus management programme)

If you’d like to sign up to receive ‘Focus’, our new free monthly e-newsletter, you can sign up at tinnitus.org.uk/forms/conta...

Helpline 0800 018 0527 (Monday-Friday 9am-5pm) (outside the UK you can call +44 (0)114 250 9922)

Kind regards

Shakeela

grosel profile image
grosel

Hi Nell

I'm pretty new to all this and my t and loss of hearing was caused by having chemo which ended in January this year.

Like you I've hit rock bottom and even wanted to commit suicide, but with help from members on this site and support from my doctor, I'm going to take back control of my brain.

I have found that having relaxing sounds like birds singing in the country side has been a major help.

I have a pillow speaker and listen to it from my MP4 player, my brain seems to concentrate on the sounds of the birds and slight background music and that helps me fall asleep, although I've always woken up during the night.

I've also set myself a strict bedtime routine and even if I'm in the middle of a film, the tv goes off and I go to bed.

I've stopped using my earphones as reports have shown that the use of earphones can make the t much worse.

People have said they gave up all caffeine and noticed a marked difference.

I've stopped all medications and that includes any paracetamol for headaches.

I don't know if you do any of these things, but if not, I would give them a try.

Do you run with earphones in, if you do, try without, it may help.

Don't forget weather has quite a lot to do with t, when the pressure changes it has detrementle affect on our bodies and minds.

I'm sure you will get over this hurdle, you sound like a person who is not going to let anything get in your way.

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