6 months into my T journey - update - Tinnitus UK

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6 months into my T journey - update

Toadinski profile image
8 Replies

Since my T started in a June ‘24, I have managed to learn to cope with it. Although it’s constant, as a rule I can distract myself from it during the day. Night remains a challenge but my white noise machine helps me get a few hours sleep each night (and pure exhaustion).

I realise I’m stuck with this and simply have to get on with life. Friends and family are understanding without really knowing what T sufferers experience.

For those new to T, all I can say is it does get easier. The first few months were hideous but if you take a positive approach and live your life the good times out way the upset T causes.

Wishing you all a Happy Christmas and that 2025 is a positive year for us all.

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Toadinski profile image
Toadinski
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8 Replies
Jimbob7 profile image
Jimbob7

Well done! My T journey started a little before you in April this year following a running accident. Mine is near constant and after a lot of prescription drugs initally to cope with it I settled in to self-care and learning and research in to this awful affliction.

Now, eight months down the road, like you, I live with it - the long-term trend is that it is getting quieter and habituation is part of my life. We can and do live with this - however terrifying it is initially - we can be alright. We will be alright,

A very Merry Christmas to all here and good luck going in to the new year.

All the best,

Jimbob x

Happyrosie profile image
Happyrosie

very helpful post, Toadinski! There are many afflictions that we humans are subjected to - arthritis for instance - which is incurable but is very much affected by our abilities to look after ourselves and live as best a life we can with what we’ve got.

Thank you for posting!

tomlwatson profile image
tomlwatson

Good post. T is awful but what we do with it determines the level of quality of life. I'm 10 years on with T and I still hate it and on rare days it can still get the best of me but overall I'm living life. It's good to read that your journey, early on, is on a good path.

robtheprint profile image
robtheprint

Very well done on taking this attitude towards 'T' I'm sure we all try to think this way but never easy. Let's hope we all have a good Christmas and maybe a quieter New Year.All the best to everyone

Ray200 profile image
Ray200

6 months. You are coming up to habituation then. Should get easier still when that day arrives. If asked what habituation is, I would say it is to do with being unable to remember what is was like before tinnitus. Also, there is Ginkgo. Click on my username to see how to take it. It is not a daily thing.

bella2022uk profile image
bella2022uk

Thak you for this post. Hoping to habituate and seing these posts gives me hope, 4 months into this journey and continues to be challenging. Happy Holidays!

kenenu profile image
kenenu

I’m in year three n coping better n less frightened. My hearing aids do the trick. I used the Oto app for about 18 months n don’t bother now. My favourite noises were aircraft and rain on window! I have done a long car journey recently and went to the Xmas disco. Part of habituation for me is the familiarity of the t so you get used to how it responds and what to test. I had a couple of occasions recently when I forgot about it - I was quite shocked! Which shows I am always listening to it - there lies the problem! Living a normal life helps with my habituation so it’s a balance. I also do lots of teams calls with work n am dealing with this much better as my t used to be very reactive to this. I find a surprising number of people have it once it’s mentioned.

want2habituate profile image
want2habituate

I'm 4 months in. I started on mirtazapine 6 weeks ago which helps with the sleep and reduces the anxiety. I've had days where it's been quieter and where it hasn't bothered me. It's stressing me at the moment but I also have childcare (special needs) and I think it's true what they say about it being a stress barometer.

It's good to hear that some habituate as soon as 6 months.

As I mentioned in another post, I am still planning to take an active B12 test in the new year. The reality is that's an outside chance to help....I do have a mainly plant / pescatarian diet, but I have always taken multivits with B12.....so the chance that I can't absorb it through my diet....and the fact is started after a loud concert mean the chances are low. Still, it's something to tick off...... I asked the GP but he knew nothing about active B12 and seemed very disinterested.

But yes, happy holidays everyone and let's keep supporting each other :) x

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