Now suffering from Pulsatile Tinnitus.

[bryzy69]

My Tinnitus changed to Pulsatile Tinnitus after the Covid vaccine, 2 years ago. Feels like a thumping sensation in back of head when at its worse. Had all the tests, ct, mri etc. Blood pressure controlled by meds. GP says that in 30% of cases no cause is found. Is there anybody on this group suffering the same.

[Happyrosie]

all I can suggest is that you look at the website of Tinnitus UK, the charity. There is information about PT there.

[bryzy69 in reply to Happyrosie]

Thank you. Will check.

[Gilligan123 in reply to bryzy69]

I have had pulsating tinnitus since 2017. I woke up one morning and it started. A few days later I had a mini stroke! >They discovered my right cartoid artery is completely blocked and nothing can be done. The noise drives me mad some days as not very nice hearing heartbeat!. When I go to bed I have a very loud clock by my bed and turn my attention to listening to the ticks which helps. Funny beacause before this any noisy clock would be put in the cupboard so I couldnt hear it!

[Upbeatmap]

Hi bryzy69

I have pulsatile tinnitus (among other symptoms) which is caused my a condition called SSCD. I have a few operations to try to resolve it but they did not really work.

One consultant I spoke to said that it can be also be related to intercranial hypertension.

I’ve resolved myself to living with it as there doesn’t seem to be much more that can be done.

Take care

[bryzy69 in reply to Upbeatmap]

Thank you for reply. Yes unfortunately we just have to live with this.

[apple6688]

I’ve had tinnitus for about 5 years & mine has been pulsatile from the start - both ears. My tinnitus sounds like high pitched continuous white noise. I have no blood pressure issues; audiologist says that I have slight hearing loss on the higher pitched ranges & that the tinnitus could be my brains way of trying to compensate for this? No definite or possible identified causes found.

[Mixedsalad]

Yep. I am on Felodipine and Lisinopril for blood pressure and have pulse T .The tests and scans are to see if there is any thing more sinister.It really is a case of trying to live with it and hope that some bright spark finds the reasons.Hopefully funding for T is trickling through if not there will never be a cure.

[777john]

I too have this but not all the time also which is different i also have what is like a pounding headache but with out the pain and the faster i move the more it pounds, it used to be at the back of my head but can now can be anywhere in the head and around the ears but again its not all the time.

[bryzy69 in reply to 777john]

Yes I have similar, the more active i am the worse it gets.

[Sweetbluedog]

Hi, I was recently diagnosed with PT in my left ear. Mine is constant the only relief I get is when I go out to a busy area etc… I have also found with mine if I put pressure on my ear and a certain part of my neck it stops. No underlying condition for me either. I visited the tinnitus clinic in london and they have an option to put a ear device in your ear that creates a noise to try and train your brain to not hear that PT anymore but it is expensive. I am really struggling and I hear CBT is helpful but I just worry that it won’t help me and will just upset me more if don’t feel any better.

[bryzy69 in reply to Sweetbluedog]

Sorry to here your suffering too. My PT stops by leaning head forward, all very confusing and frustrating.

[KCLovely85 in reply to Sweetbluedog]

I can press on my neck in a certain spot and it stops. It comes and goes. I don't have high blood pressure. I'm terrified and scared to see a doctor on the count of what they may tell me.. I know I need to go. So I finally made an ENT appointment.

[PABLR]

I have several different things going on tinnitus wise, with a number of sounds occurring simultaneously - between three and five different sounds. I do have part time pulsatile tinnitus in my left ear which 'may' be caused by a vascular loop, but as it doesn't happen all the time (usually when I'm tired so more often later in the day) and my blood pressure is fine no-one's really sure - or now that anything nasty has been ruled out, very interested. I live in the USA now and while everyone bends over backwards to help with my hearing problems tinnitus seems to be viewed as one of those things to live with unless you're really bad. As I can live with mine (I don't notice it when I'm busy too much and keeping busy is key for me, although it's always THERE) it's rarely even mentioned by my specialist or audiologist.

[Tanney]

Hi bryzy. I have tinnitus in both ears caused by bilateral meniere's disease. My Neurotologist (ENT doctor specializing in inner ear diseases/problems) put me on a low dose sedative called Ativan to be used when my tinnitus becomes particularly annoying. He said that one of the benefits of Ativan is that it has a focused calming affect on the inner ear.... which is usually the cause of tinnitus). I take 0.5mg Ativan (under my tongue for faster acting) whenever my normal tinnitus level turns to a much more annoying pulsatile tinnitus which is about once a week or so. This sedative almost always eliminates the pulsatile tinnitus and returns the tinnitus back to my normal level. 0.5mg is an extremely low dose and is very unlikely to become habit forming....especially when only used when necessary. I do not take Ativan everyday....only when I need to for particularly annoying episodes of tinnitus. You may want to ask your doctor/consultant about a prescription for 0.5mg Ativan.

Let us know what the consultant says....and if the Ativan makes a difference in your life. Good luck!!

[bryzy69 in reply to Tanney]

Thank you for this advice. Will mention to my GP.

[sylviane77]

Yes, I have it and find it scary as I can hear my heart, and because of worry it speeds up and sometimes I had panic attacks, usually early mornings.Cognitive therapy helped me not to worry, and I have learned vagus nerve massage which controls the heart rate and panic.

So, I can handle it better now as I have strategies... I do hope you find help too.

I also found that restricting my computer times helped too... not sure if it is eye related or posture, but spending less time in front of the screen helps, especially before bed.

Hope some of this helps!

Elisabeth.

[bryzy69 in reply to sylviane77]

Yes mine is very loud inside head but calms down when resting. Will check out the nerve massage. Take care.

[Midlifecyclist]

have had white noise tinnitus (for about 40 years now) and various operations throughout my life to relieve middle ear pressure (Eustacian tubes too narrow). In the last 12-14 months have developed worsening pulsatile tinnitus in left ear which is a different sound sensation to the white noise (which is there as well). Am waiting to see a specialist to check why

[KCLovely85]

I'm from the U.S., but I've been looking for information. My pulsatile tinnitus started 3 yrs ago. I've been so scared to go to the doctor. I don't have any other symptoms. I was just wondering if this something I'm going to have to live with.. I know ppl who have had stents put in, but it didn't stop it.