Pulsatile Tinnitus diagnosis and cure - Tinnitus UK

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Pulsatile Tinnitus diagnosis and cure

RobertCLL profile image
8 Replies

I would be interested in hearing other members experience with Pulsatile Tinnitus. I am interested in the process of diagnosis (hearing tests, Stethoscope test by doctor, scans, etc) they experienced and if anyone has found a cure that worked for them.

I have had Pulsatile tinnitus for some 2 years which may be a side effect of a oral cancer drug that I am taking.

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RobertCLL profile image
RobertCLL
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8 Replies
Jimac profile image
Jimac

I've got pulsatile tinnitus, a product of meniere's disease. Had ct and mri brain scans. All came back OK. Unfortunately, I've had to learn to live with it now.

RobertCLL profile image
RobertCLL in reply toJimac

Jimac. Thank you for the reply. Sham we have to live with this condition.

jonathan_m profile image
jonathan_m

My Tinnitus is pulsatile sometimes. Recently had an MRI. Waiting results. Hopefully have CT scan if results are 'Normal'. Slow process

My pulsatile tinnitus is mostly drowned out by a hearing loss related constant tinnitus - unless I’m extra anxious.

The PT is apparently due to a structural abnormality called a high riding venous bulb on my jugular vein. The ENT dr who found it explained that it’s inoperable. I have multiple autoimmune conditions with multiple symptoms so I am resigned to ignoring both types of tinnitus but the constant high whine is definitely the worst tinnitus for me. I think knowing the cause really helped me though.

RobertCLL profile image
RobertCLL

Twitchytoes. Thank you for the reply. How was your high riding venous bulb on my jugular vein found, MRI or may be MRA? Do you have the condition on both ears?

DownUnderInAus profile image
DownUnderInAus in reply toRobertCLL

I too would be keen to know how it was diagnosed, CT, MRA, MRI etc...thanks.

RobertCLL profile image
RobertCLL

DownUnderInAus

My research is showing that a MRA is needed, which I have now asked for.

DownUnderInAus profile image
DownUnderInAus

Hi, I visited an ENT today (my 3rd ENT) who reviewed a CT Temporal Bone scan of mine and believes that I have Superior Semicircular Canal Dehiscence. I don't know a lot about this but no doubt Doc Google can assist me.

😆

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