I Really need help please

[Buzbee50]

I have had Tinnitus for fifteen years now , a very loud hissing with a sharp edge to it.... terrible but i learnt to live with it. Three weeks ago now i had a Holep prostate cancer opp , i was given various Antibiotics to deal with an infection .

My Tinnitus is now through the roof ... hissing , humming , whining , whistling all around my head , i cannot sleep , think straight , very scared of what will become of me , I tried to drive but the noises are so great i could not concentrate and had to come home just after five minutes of driving .. i have other medical issues but this noise is so overwhelming it makes me sick ..... im hoping it will calm down but there is no sign of it doing so ...... Im 74 with a young family and am feeling that this is the end for me .... Doctor just told me to go and pay to get my ears vacuumed out .... said it would be many months maybe even a year before i could get to ENT and he could not refer me at the moment anyway ..... I have been pacing around the house at night mainly crying .... I had to have the opp but now really wish i had not.... any help please............

[cheapo]

Very sorry to learn about your tinnitus problems Buzbee. I wish I could properly help you. My T is loud all the time, even when driving in the summer with the windows down at 70mph I still hear the highest pitch sounds, even with my hearing aids in. I've never had a major infection, so no drugs required, I guess I'm quite lucky. I don't drink or smoke, never have. And as a vegan I avoid any medicines as much as possible.

What can I say, I'm not an expert or a techie, but have you tried relaxation sounds, I have some published on freesound.org, and there are lots more on sites such as spotify. I'm actually looking for some really small earbuds right now to see if I can manage to wear them while I sleep.

freesound.org/people/hear-n...

And this is a copy I tried to make of my own sound

freesound.org/people/hear-n...

Wishing you the very best my friend, Peter.

[Buzbee50 in reply to cheapo]

thankyou for your reply... i have a sound machine i bought many years ago which i dug out of a draw ..... the sounds are not the best i must say , i will click on yours , very best wishes to you...

[GreyMerlin in reply to cheapo]

Hi Cheapo

Try Ozlo Sleepbuds - I’ve used them (and their forerunner by Bose) for years. Not cheap, but for me they are worth every penny.

🙂

[Mille23 in reply to cheapo]

I have just bought small earbuds for night time. Haven’t tried them yet. They are called Wavell 3 light sleep. A Danish Company.

Battery time is unfortunately only 5 hours. Price in euro is 80 euro. You can connect them to your I phone.

My tinnitus is severe , I have no break, noise is 24/7, so I need to listen to audio books throughout the night. This has given me an ok sleep. 😊

[cheapo in reply to Mille23]

I have ordered a different brand of cheapo ones, so I'll see how it goes. Yes my iPhone already sends phone calls and video sound etc to my hearing aids. But I can't wear them in bed.

[cheapo]

Thanx GreyMerlin,

£299! Ouchies, I quite literally cannot afford those, but cheers anyway. I'll have to try something cheaper first.

[Ryesand1]

You describe your emotions so well. Empathy is all I can give. T is a dammed curse. I, too, share exasperation, desperation and emotional breakdown at times. Support groups are few and far between. Sometimes it helps to share what u r feeling in the company of other sufferers. I have not found a support group yet. Best wishes to you and hope u have some respite soon.

[TinnitusUKPat Partner in reply to Ryesand1]

There are support groups listed on our website here - tinnitus.org.uk/how-we-can-... and a list of our online support groups here - eventbrite.com/cc/tinnitus-... - in case anyone needs to find one.