Hello All. Have just joined this site in the hope to talk to people who understand. My T is the highest pitch I can imagine. You know the type that people suffer after loud music. I have it 24 hours a day 7 days a week 365 days a year. Sometimes it drives me mad and I would just like to a period without it so I can appreciate real peace.
Please, tell me I am not alone as most people I speak to say they have a lower hissing or buzzing noise and some don't have it all day. Surely I am not the only one with this high pitched tone? Am I?
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dodgery
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Hello dodgery Welcome to the forum 🙂 You're not alone. I have a high pitched hiss / whistle round the clock in both ears - just like you. It matches my high frequency hearing loss. It's not unusual. In fact it's very common. Many people lose the high frequencies first though not everyone. You're among friends here.
Hi,No I don’t think you are alone and although my t tone, pitch, intensity does vary- I even get a day off, kind of anyway, when it seems squeezed and way in the background. Sadly, this is accompanied by an uncomfortable dizziness as though I’m just about to have a migraine. Mine is also left ear only but does sometimes get into the upper neck and back of the head.
I’m uncomfortable taking anything like Serc because it always make things worse. I do take nortriptyline which helps with sleep and the migraine feeling.
Putting up with t is for me now the best option and I don’t resort to hearing aid maskers until I watch tv.
I personally am in the “badly-tuned radio with occasional whistles” camp, unlike you. However, my tinnitus can be heard above a car travelling at sixty on the M25. So it’s LOUD. It never goes away … except that much of the time I do not notice it. It doesn’t hurt me, it’s just annoying, as is my arthritis. or my short-sightedness. or many other things.I liken it to seeing grey squirrels in my garden. I don’t like them, they eat the bird food and stop the birds from feeding and they dig into my plant pots and kick them over. They are rats with bushy tails. But most of the time I choose not to notice them, just as I choose not to notice the tinnitus.
But I know I’m lucky - other posters will agree with you and sympathise. The thing is, to get yourself to a state where it simply doesn’t bother you. Easy to say, not quite so easy to achieve.
The best resource in my view is the British Tinnitus Association website.
I am 22 years into my T, which began all those years ago as a hiss. The frequency and spatial location and perceived volume are now all increasingly erratic, varying widely over even a single day. At the moment, however, the high frequency is, on an average, dominant. It can be a single tone, or a very high pitched warble. I characterise it as the kind of sound that bat detectors emit when they have reduced the pitch to one that humans can hear.
It could be any combination of those I suppose. The BP may be a tad high, diet is moderate and I barely drink alcohol at all (never did much). Stress well like most people mine began at a time of high stress and intensity / spikes are related for sure.
Over the years ive realised diet and sleep are massive influences. Stay away from bluetooth headphones also. In fact stay away from any headphones and loud noises if you can. People with tinnitus tend to use noise to block out tinnitus. Its the wrong way to go. Trust me. Silence eventually creates silence
Silence creates silence..?, interesting that you should say this, I have been seriously thinking of taking this approach as nothing else seems to work for me and my constant 24/7 hiss.
Eliminate caffeine and alcohol completely. Fasting is a big help in reducing tinnitus. Try dry fasting, but if that is not possible, bottled water and decaf green tea are allowed. Aim for a 24 hr fast. I did 16-8 fast to start with, and then slowly increased the hours not eating. Research autophagy
Hi, my tinnitus is a very high pitched whistle, some days louder than others. I have other health issues and when I'm struggling with those my tinnitus is worse. I do my best to ignore it which gets easier with time. Best wishes to you.
Hello to you , firstly I can assure you that you are not alone at all. We are all suffering mostly all the time constantly . Some of us have learnt to habituate towards it but I understand that can take a long time . We are also told to relax and do things to take our mind off the T . So my sounds are like my head is in a fan oven or electrical type of machine. . I get a lot of humming the worse thing for me is the increase build up of pressure in my head . Especially if I am in the company of other people. . I do get high pitched tones but mainly I’m dominated by lower tones . It is all consuming and I can fully understand where your coming from , We definitely do need a break from all this but there is little we can do . We must enjoy our life to the best of our ability . I walk my dogs and I enjoy listening to the birds . I keep busy . There comes a time when I have to lay my head down just to release the pressure. . I hope by now you know your not alone. 😊
I have a really loud high pitched hum which is preferable to the occasional two tone siren screeching I sometimes get. I always have subtitles on the tv as I have got some hearing loss too. I really only notice the tinnitus when I'm in bed trying to sleep though it does get worse if my stress levels are high. I wouldn't wish this condition on anyone.
Hi Dosgery and as others have said you are not alone. I also have very high pitched T in one ear which now is there to some degree all the time. I have high frequency hearing loss in that ear and prescribed a hearing aid which only sometimes helps. During the day it doesn't bother me too much with things and sounds going on around. The worst time is undoubtedly during the night when I get up to go to the bathroom. Then I become intensely aware of it and sleep becomes a real problem. All I would say is that it becomes less of a major issue over time but do be aware of any effect on your mental health and seek medical help if it becomes an issue.
Me too post tumour surgery with deafness so cannot be helped with maskers /hearing aids etc …constantly with me like a bad smell !!! Like I’ve been to see AC/DC and stood by the left sided speaker …. I’ve taught myself to reluctantly accept it and some days are better than others.
HiYou are certainly not alone, mine is like a constant high pitched alarm bell going off the same tune going on all the time . Some days louder than others I also get the hissing sound when I first wake up . It’s been a year for me & at first it made me very depressed & down , but now I realise it’s here to stay & refuse to let it take over my life. I have tried so many things the books the hypnotherapy , CBT they all help to some degree but in the end getting on with your life as best you can is the best remedy there is & keep busy . Like everyone else on here will tell you it does get easier in time as I’m sure our brains must to some degree just get used to it .
Hello and welcome but I hate saying that!Only because the idea of welcoming people to this is terrible.
However, I think you know what I mean.
When I read your post for a second I thought I was reading my own story.
I checked the name to be sure.
I am totally 100% with you and understand you. So much it’s scary.
You described my T perfectly.
I can add no more to that part.
Mine came with a virus/flu sometime around 2015. The flipping thing took my sense of smell and taste too just like Covid has done for some people.
However, they did not return and honestly you would think not smelling or tasting again would be the worst but compared to my T it never crosses my mind.
Back to the T, I keep meaning to share this anyway.
Last September I had a short time where I lost my T completely for about 20 minutes.
I was asked to listen to a live college speech to report back on the things of interest that the person who should have watched it, but couldn’t be bothered!, would have missed.
At the same time ‘I’ wanted to watch a live key note tech presentation of something I wanted to watch.
I ended up watching one on a laptop and one on my phone with an ear piece of each in each ears. In essence two different audio feeds and two different visuals of live events that I was interested in.
That ‘finally’ distracted my brain away from the screaming ’T’ and although I didn’t know it at the time when I stopped I could not find the noise. I’d lost my T for about 20 minutes.
I’ve been wanting to post this on here for months and really must cut and paste this into a ‘Something that helped’ section of the BTA.
The sad part is since last September I’ve tried many times and am unable to reproduce it. I known that audio and visual usually help me a little but that experience was something else. Distraction is the name of the game.
Hope this helps, and you are not alone.
I not read any replies yet so am possibly repeating what others have said.
I would say your body is full of inflammation. I lost my taste and smell for nearly 4 years. It has got better these last two years, taking the right supplements, avoiding certain foods and fasting. Fasting is the best anti inflammatory ever. Unbelievably good for the body. Tinnitus is linked to inflammation. Our western diet and lifestyle are wrecking our bodies. Tinnitus is your bodies alarm bell saying its had enough of the abuse.
Yep like many on here I too have high frequency ringing 24/7, linked to high frequency hearing loss which I only discovered I had due to tinnitus. I would strongly recommended you ask your doctor for a referral to an audiologist. I mow have hearing aids with added functionality fir masking noise for bad days. I also have a sound machine with white noise to help me sleep at night. It does get better to live with, Although I went through a definite period of grief for permanent loss of silence, through all the stages of grief. But have reached acceptance now - life is better hang on in there.
Hi there totally agree with everyone else the High Frequency Tinnitus is uncomfortable it normally hits me at night giving me one hell of a headache but you do get to live with it I use a app white noise helps me remember a quiet room isn't any good for Tinnitus you just concentrate on the Tinnitus the idea is to hibernate the Tinnitus so your brain pushes it into the background takes time but you will get there. Tinnitus is the beast on your back take it on and beat it stay positive and enjoy life, the BTA is a good source of information plus a helpline who give excellent advice wishing you good and quiet health and remember beat the beast
You are definitely not alone. It's 24/7 for me too. How I cope with it depends on my state of mind and accepting a short night's sleep. Exercise at the gym is the key for me being able to cope,
I use a headband headphones at night or any headphones when I need concentration, though I also consciously avoid them, as to not become dependent on them.
However, I've recently started on anti- depressants a few weeks ago as it became unbearable with extra pressure of work load. Again, Ive set a target to come off/reduce them as to not become dependent.
You will need to find what works for you and lifestyle choices that suit. But there's plenty of advise and support on here.
You are definitely not alone, this site is full of very helpful and supportive people who know how it is and what they say will resonate. I find distraction is best as you can be busy and not notice it as much. Do something you enjoy today and tomorrow and the next day. Don’t let it take Center stage.
Thankyou all for your posts. It is a great relief to hear that I am not alone; however I wish that none of us were here at all and didn’t have to search for such a website. I also suffer from depression amongst other health issues and the T just doesn’t help matters.
One day soon I hope there will be advances in science/medicine to help us all and I wish you all well. I really appreciate the response’s.
Hi dodegry, I know what you what you mine, my Tinnitus is a constant high pitched ringing noise 24/7 but thankfully after nearly 2 years I have "learnt to live with it" it is still there all the time and it is sometimes very loud, but it no longer gets me annoyed or depressed. I wish everyday that it will go away but I just say to myself there are a lot of people suffering with pain worse than I am.All I can say is try and keep busy to keep your mind off the Tinnitus and hopefully like me it will get better living with this dam thing!! All the best Alan
Your defo not on your own , described mine to a T, I'm 43 and since 17 have had this 24/7 everyday forever. Doctors say it's down to childhood trauma or stress? No help no advice nothing ? For years I have struggled , as everyone who has this knows how difficult and how it can actually drive you crazy. I am alone alot trapped with my thoughts so over time I have decided to think of my high pitch computer screen noises along with other strange noises now and then over time as my kind of friend ? A very annoying friend might I add. I have no hearing loss Infact quite the opposite I feel it's quite sensitive and I hear too much if thats possible? So a life of raindrops and white noise for me when is all I have found to blend it in as i dont know what else to do, and this is the first time i have been brave enough to comment!
4 years ago I was told that the science to deal with this micro, micro, micro operation didn’t exist and apparently it would be ten years. Well by my reckoning we are 6 years off now. That makes you 49 and me 60. So plenty of years left for us. Fingers crossed for us both. It’s good to share issues and bravery don’t come into. We are brave every day just dealing with it so try to stay positive.
I’m so sorry!! I repeat what I wrote to Harrier58. I had hole months with terrible suffering!! I broke down many times with desperation!! I can tell you that is possible to improve! While you look for and use a white noise that works for you (can change many times) Try all of these, they were very useful to me: 1. You must keep your blood pressure low as you can and is important to control whether you snore. 2. Take Magnesium L. Threonate (Only this Magnesium!!!) 3 hours before bed. Look for information, this magnesium is really good for brains. 3. Try taking Idebenone 4. Do you know Mimicking fasting diet of Walter Longo? In Argentina there aren't doctors to guide us with this diet, perhaps you can find one. 5. And finally homeopathy might help you too. I’m doing all of these and my T is going down little by little. I wish you much luck!!
I got tinnitus @ the start of the pandemic. Very similar to yours. I have managed to quieten it quite a lot thru’ taking the advice of a couple of guys on youtube. Check out Julian Cowan Hills channel and Liam Boehms channel. Some of it might seem like quackery, but trust me it works. Dont expect overnight miracles following their advice, because as you probably well know, getting rid of tinnitus is a long hard slog. Mine hasn't completely gone, but the improvement is amazing in the last two years. Somedays I don't hear it at all. Waking up is when its at its worst for some reason???
No alcohol, no caffeine and plenty of sunshine is whats recommended to start with.
Dont bother with ENTs as they haven't got a clue when it comes to tinnitus.
I too have this high pitched buzz in one ear and a lower buzz in the other. I do find when I am stressed it gets horrendously loud, you never quite get used to it but learn to live with it.
Hi
You're not alone and have had fantastic responses. I have a medium tone overlapping with a high tone type hiss. The sound- when it is there- is a constant two-tone and gets louder over a few days and ears get painful as the pressure builds up. My tinnitus is usually on a two week cycle and I've recently been experiencing 3 or 4 days quiet which has been great.
I have sensorineural hearing loss with severe hearing loss in high tones so it also gets called ski-slope hearing loss as the graph resembles that. Mine's resembles a steep ski run and I can hear low (usually male) voices better than females and young people. I get a lot of ear infections. Due to see ENT again soon.
I have new NHS danalogic hearing aids and they're pretty good. I've been diagnosed first with menieres and then with vestubular migraine. I get a lot of fatigue and struggle to follow conversations which is quite isolating. However I've been going out a bit more lately and being honest with people which really helps. I lip-read a bit and need to face people directly to be able to chat.
I have come to accept the tinnitus - it is part of me for now - and it has made me much more resilient. As others say: try to find anything that helps, see what is on YouTube and what works for you. This site is amazing, lots of support here.
Walking helps and I like the 70s and 80s music channel. I put a post up recently that everything was quiet while I was out walking. It was lovely hearing the birds chirping!
I have given up work ...health comes first. I received a Personal Independence Payment award (PIP) at the start of the year. With tinnitus having so many other associated symptoms such as stress, fatigue, headaches etc... I think a lot of people don't realise they can qualify for PIP. You can also receive it while in employment, so it can be a good financial help if you want to go part-time for your health.
my T is 24/7 never stops - sudden onset last August - pitch is higher over past 4 weeks after mri scan -before that it was more of a buzzing. Biggest problem is though, that the volume of my tinnitus goes up with noise and the volume can be horrendous - so i try to avoid noise of all types , I watch TV with subtitles , dont listen to music anymore , ear defenders in car and when walking along busy streets and i cannot do sound therapy at all. It has changed my life in the past 10 months and I am much more restricted in what i can do - its has been a nightmare and still is
I see on yr profile that u suffer from severe depression - can i ask if u take medication for this and which one ( because some meds can make the T worse)
Suz - I was prescribed sertroline (cant remember if thats how its spelt) but as I also take tramadol for pain, the combination was giving me quite worrying 'vacancies' which got my wife very worried. When we googled the mixture, after seeing a tv programme about opioids, we found that the two should not be mixed and could be quite dangerous. I knocked the sertroline on the head and the vacancies stopped. I have now worked very hard with my depression, in sharing that I have actually got it, and by talking it has helped. I cannot do with out the tramadol and know by now I am addicted, but they keep my pain at bay.
My wife described them as I was there but not there - all colour left my face and I was unsteady although still standing. For me it was I was awake but did not know who I was, who the wife was or where I was. The spells only lasted about a minute at a time and then I was back to normal. It happened about 5 or 6 times. A very strange occurrence.
With regards to sleep problems, ask your doc if they will prescribe mirtazapine. Its an old school anti depressant that initiates drowsiness. After some researching I found out Mirtaz has been shown in trials to lessen tinnitus. On the rare occasions I do have a spike, I take half a tablet(7.5g) before bed time. I sleep like a baby, and the next few days my tinnitus is a lot quieter
It is sadly an all too common condition. And there can be different reasons for tinnitus. Mine started at 24, after an adolescence of constant music from radios, headphones and loud Marshall guitar stacks from egotistical guitar players!
So I lost the music quite early on and got my ears moulded so I could get attenuating earplugs. They changed my world and let me continue playing music in bands until I was about 35. Nowadays I just don't have the same energy for it but there were many reasons why I needed to get my music hit in that way.
Of course, being a young man and learning to live with tinnitus was not easy. I felt very distressed that I'd never get my life back. In the end, it's something you get used to. And if you take care of your ears, they shouldn't get any worse.
Also - the way I rationalised it was to think of my T as an indicator of my stress or general health levels. I.e. when it is high, I know I'm overdoing things or stressed or not getting enough sleep/chill time. So it can work FOR you not against you. But it may take a few years to come to accept it. You can absolutely live a full and happy life.
And most musicians do learn to live with it.....Bono, Eric Clapton, Chris Martin
I have had this high pitch in my head for atleast six years. It is like standing in the middle of a power station. I am a musician and it is really is annoying when trying t play and the ringing is so loud it is hard to enjoy. The doctor did prescribe my duloxetine which is a neuro inhibitor. I have been on this for a few months and it does help at night to sleep. It relaxes you and do not take if driving or operating anything dangerous . Somedays are worse than others and I also find going for long relaxing walks in the country helps as well. But it certainly is awful not too feel at peace.
You're not alone and nor am I now! I've had mild tinnitus for over 5 years now .It has been bad for last few months but I try to be hopeful that it may be a long spike.
hi. Yes I have high pitched tinnitus 24/7. Nothing will mask it. I suspect I have ETD because my ears pop a click you name it. Ent say it is anxiety and live with it. I’m getting no answers but my pitch is the same as yours . Horrible !.
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