Is anybody going to "get it".. No understanding

[Chilledartist]

Hi everyone, I have only 4% hearing in my right ear, tinnitus, hyperacusis and labyrinthitus...brutal most of the time, according to docs out with my practice could have been brought on by mirtazepine, try getting your doc to admit that!!! Had it for 3 years now, abandoned by NHS, I'm sure I'm not the only one feeling like that.... NHS are a great organisation, but for things like this they are falling way short...I've been to TCM, homeopathy, had hearing aids, etc...nothing actually helps long enough to make a positive difference, just hoping someone can make a breakthrough somewhere...

[Vibe19]

I have just tried to crack on with things as usual as only protective thing I can do for my wellbeing. I have other chronic conditions - have been kept awake with pain most of my life. It is not easy - and i didn't handle the onset well. Next to no input from ent. I rely on medication to sleep - without that I do not cope with the noise & motion

[ade-the-pade]

Hello Chilledartust. Sounds like you have been through the mill. I have had t and Hyperacusis for nearly 5 years. I have seen good doctors and awful doctors. Some who care and some who don't. I have been under the royal ent for 4 years. They are the top place for ent but openly state that they have no answer for T. Everything they throw at it is about making it easier to live with.

This online forum is good because people really understand your pain.

I am in the process of trying a new device called neuromod. Have a google and see what you think. You can read my posts for the results. or lack of results.

I hope that you find some peace and quiet.

kind regards

Ade

[Chilledartist in reply to ade-the-pade]

Cheers, buddy

[ade-the-pade in reply to Chilledartist]

Hi Chilledartist.

Just checking in to see if you are in a better place. How are you?

Ade

[Chilledartist in reply to ade-the-pade]

hi my friend, feeling ok last few days, not as Aaaarrrrggghhh as last week, thanks mate, for checking in, means a lot