New Here, with Old Tinitus

[All_The_Noises]

Hi All,

Graham here,

I just joined.

I have this Tinitus for about 5 years or more.

Never a day go's by when it is not screaming in my ears.

I have been for several hearing tests, but they all say it is hearing damage, coupled with growing old.

I am 62

I like many others get very little sleep at night, just a few hours, 3 - 4 hours.

I go to sleep with it, and in the morning it is just as loud as the day before.

No rest from it.

I don't take any medication, nor do I try any sound generator things.

Surly there must be some research going on into a, not so much a cure, but maybe a way of controlling it ?

Thanks all.

G.

[Keoni]

Hi, Graham,

There is a massive amount of research being done all over the world on this condition. If you haven't already checked it out, there are plenty of articles and advice you can read via the BTA website.

I think it's good that, like me, you're managing without medication.

I truly hope that a cure will be found in our lifetime and that we can all experience some peace (and quiet!)

Respectfully submitted,

Keoni

[ShakeelaBTA]

Hello and welcome to the British Tinnitus Association forum.

Do feel free to ask any questions, I hope that you find this a helpful and supportive place to help you manage your tinnitus.

We have some resources that you might like to check out in addition to our home here:

tinnitus.org.uk (information and support details)

takeontinnitus.co.uk (free tinnitus management programme)

If you’d like to sign up to receive ‘Focus’, our new free monthly e-newsletter, you can sign up at tinnitus.org.uk/forms/conta...

Helpline 0800 018 0527 (Monday-Friday 9am-5pm) (outside the UK you can call [phone])

Kind regards

Shakeela

[Whine]

My personal view is that the only effective programmes for coping with T are:- 1) Prolonged exercise. Not for everybody, I know, but I find a long stiff walk to help, mainly because it relaxes me. 2) Sharing experiences with fellow sufferers, because nobody else is really interested ( unless they are trying to sell you something ).

[Julia1jasper]

Hi there Graham

Am sorry this thing is causing much distress. I have had all life so far as remember a swarm of bees in my head which sometimes turns to a really loud siren and made it difficult to hear over. I never had hearing test as kid so thought it the norm and never questioned. School reports said I often didn’t pay attention. In late teens I learned of this condition and really for some time really cheesed me off and I think I payed to much attention to it and had many sleepless nights and often played music way too loud to try make it go. Over time I’ve kinda returned to when a kid when thought the norm. Mine ain’t ever gonna go as always been there so I guess it’s kind of acceptance that this is me and part of me. Had hearing test maybe 10 or so years ago as struggled in school and alway lot copying up but test showed hearing loss between 50-80dc and way audio graph went was that main loss was middle range indicating from birth maybe. A recent one last year was exactly same and had test to see if I was receptive to sound in part brain that receives the messages.

Nothing’s changed thankfully as have kinda coped although do

use hearing aids now to watch tv and movies. It’s a hard thing and I really empathise with others who have acquired this condition having never had. before. In some ways I feel lucky as have had the swarm of bees and frequent sirens going all life so must be really hard to accept in later life. So far as I know there is no cure and also I see many techniques to maybe alleviate. I’m sorry as have little knowledge like yourself as there is no answer. However I think that if you can accept this as maybe now a part of you to perhaps embrace and don’t fight. Sounds so crass but if it’s gonna be part of your life don’t let the damn thing take over and stop you for enjoying the many good things in life.

I have found this forum really useful and it’s good to share stuff. I was quite angry I guess when I learned not everyone had swarms bees and sirens 24/7 but knowing there are those out there with same and being able share can be quite a comfort and am sure you get many more replies. What do they say ? We are not alone and for sure I’m glad I happened upon this site because until recently I was too embarrassed to talk about it.

If you look around there are techniques that maybe help shut out the noise and am sure very helpful so explore more. Myself I just know mine isn’t going anywhere so now forge ahead and enjoy the things that life offers and over time this thing of course is there but as far as science is concerned I’ll live with it as there are many worse things for others

I hope I don’t sound too flippant as I know the distress it causes but please stay strong and am sure over time the distress will ease. I wish you well and please let me know how you get on. I am technophobe so if you find some groundbreaking advances I will be glad to share. Not found one yet b ye we live in hope.

The very best to you Graham and yes let me know how things are going. Not gonna say it will go away cos it may or may not cos my hissing Sid still speaks night and day with forked tongue. Honestly tho it’s pretty damn loud if I care to take notice and sometimes I can’t hear birds or phone going thro the din but time has proved that it don’t have to hinder life and hopefully with more research and more people you talk to then perhaps you be able to happily live with it.

Sorry the epitaph but was never good at simplifying things so hope makes some bedtime read

Kind regards, Julia

[Julia1jasper]

Ps am sorry I meant to say welcome

Kind wishes julia