Very bad time

[ellj]

Today I truly feel I cannot take much more of this.

I have MS which drains me and other health problems but honestly it is this incessant screeching that will be the end of me.

If only

[Angela-H]

Oh dear ellj, sorry to hear of your suffering with MS and T.

I can but imagine what MS is like - but I have had the other for almost 4 years.

For the first 8 months I was not living - I just sat in my chair all day listening to and feeling the physical head pain of my T.

The GP gave me sleeping pills and Mirtazapine which is an anti anxiety med. Audiology at my local hospital gave me a hearing aid and maskers (white noise). I went to nhs run CBT sessions and I very gradually began to have a life again. It took time and was gradual.

For the past two years my T hasn’t bothered me and I regard it as the ambient background noise in my life. Yes, I have to take care and on the rare occasions I go to a noisy event I have some BTA ear plugs. I move away from unexpected loud noises so as not to irritate my T.

There is a wealth of information on this forum and from the BTA website.

You are most definitely not alone.

Best wishes

Angela xx

Ps read only the positive posts and ignore those which are full of gloom - our T feeds on anxiety, stress and boredom.

[1Dar in reply to Angela-H]

Hi Angela, I couldn’t relate to your comments more! When I first got Tinnitus I thought I was going to go around the bend , but after 3 years , I’m accepting it and no longer see it as a threat! I also take sleeping tablets and mirtzapine which I think is a good tablet. I am interested in the noise cancelling ear plugs, did you get them from the British Tinnitus Association? Just wondering ... have you tried the ear plugs that stay in your ear all night ... they have white noise. Yes... only read the positive comments !,, Jenny from Australia !

[Angela-H in reply to 1Dar]

Hi Jenny in Australia!

Always uplifting and energising to hear of tinnitus survivors!

My ear plugs are indeed from the BTA - I phoned their office in Sheffield to order them. I don’t know if they are noise cancelling but they certainly filter out the offending noises which can worsen tinnitus.

I have very small ear canals - the first pair I bought just would not fit in my ears - so I have the child ones! I can recommend them.

No, I haven’t heard of those which can be worn all night. I always have the rainfall on my sound oasis (bought from the BTA) which is set just below the level of my T and I think pushes the T out of the way whilst my brain is trying to hear the rain. Love

Angela xx

[1Dar in reply to Angela-H]

Hi Angela , thanks for that. My husband has actually ordrerded some so that’s good. I have a Cochlear implant which helps during the day but when I take it off at night it’s awful. I’ve got a sound machine too, but I have to have ear plugs with the sound machine. I’m not a martyr and take tablets when necessary. I’m going to look into the cbd drops but don’t know about the legality here in Australia. I just read your first post, I also got Tinnitus after an operation, and very much regret the operation, but too late now . Take care xx

[Angela-H in reply to 1Dar]

Hi Jenny, wishing you the very best of wishes. And goodness me, to think that you got it after an operation too 😢 which we could not have foreseen. Tinnitus survivors unite and we will not be defeated. I had trouble sleeping last night and, as always happens, my T gets louder the longer I am awake which is a viscious circle as it keeps me awake for longer!

But each morning I refuse to let it get the better of me, put in my hearing aid, get busy, and the T reduces gradually until it is but a whisper.

Love

Angela xx

[1Dar in reply to Angela-H]

Hi Angela, how did yours start.? Mine started after I had a grommet put in my ear. The Drs then tried everything to make things better by putting the grommet in and out 3 times, another two operations but now I have a Cochlear implant and a hearing aid in the other ear. Do you have it in both ears? I’m like you just try and keep as busy as I can. If I do decide to get the ear plugs that stay in all night I will let you know, but it’s just another thing to have to worry about. We have to stay positive that someone will come up with some sort of help! Take care x.🌷🌷🌷🌷

[Angela-H in reply to 1Dar]

Hi Jenny,

My op had nothing to do with my ears, neck or head! It was a major op for which there would be 6 months of recovery (which I had planned down to the smallest detail!). The T came on 24 hours exactly after the end of the op. It was a fuzzy pulsing in my right temple ugh. It disappeared after a couple of hours. Then ...... 2 weeks after the op at the same time of 7.30 pm, a loud tone sounded in my right ear. Oh my goodness, that was the beginning of my 12 month hell.

Never in my life had any problems with ears or hearing. I have never worn headphones, never been to loud music gigs etc etc so it was inexplicable to me.

GPs and ENTs a horrible waste of time and money. The hospital audiologist saved me - together with the kind support and advice I was given by lovely people on this forum. I realised that I wasn’t alone.

I was found to have slight hearing loss in my right ear - news to me! - so I was given an aid and masker for the other ear.

The noises were in both ears and all over my head, with head pain the like of which I never want to experience again. Soon I was realising that there were times I hadn’t heard it and it settled down.

In its current form I wake up with pulsing in my head and/or right ear plus a head hiss. Then it becomes a right ear pulsing and hiss. By mid morning it is a background hiss, no pulsing, which i don’t hear, if you know what I mean. When I am 100pc busy it is as if I don’t have T. It is the same that we don’t hear our fridge etc or other ambient noises in our homes. On a funny note, I think I have musical tinnitus when I am sitting in my quiet house at night, reading as I can hear music - but it is my freezer. No-one else hears it as musical !

So, this is a positive post. I never thought my life would return to how it was before the T. But it can get better, I am proof of that. The other health problem for which I had the operation causes me far more pain and trouble.

Take heart and be positive. The brain can subdue the beast ❤️

Love

Angela xx

[1Dar in reply to Angela-H]

Wow you have been through the mill for sure but you are sooooo positive which is great. I’m chatting to a couple of other ladies privately by email, so if you would like to communicate that way that would be great. I’m not keen on giving my email address on the chatline though so maybe we could go through Nic at the helpline.? I’ve had an interesting 3 years .!! Jen 🌷🌷🌷🌷

[dsh2358]

Hi

I am so sorry to hear of your sorrow!

I do feel your pain with the T and The loudness of it i to suffer from this damm affliction. And think also this is going to be the end of me. I just want you to know your not alone we all are in this together and the best remedy if all is sharing !

Hope it gets lowere and gives you some relief!

DSH

[Wringing1212]

Hi Ellj,

I can't imagine T with MS to deal with.

I have neuropathy that I believe causes my T.

I'm doing my best to transcend from contiousness in the physical realm to living more in the spiritual sense. Whether a state of mind or a state of belief, we are capable of more than we know. I focus on my goals and responsibilities. The screaming is always there, but I've accepted it and don't worry as it gets louder. The louder it gets the more my brain tires and eventually blocks it out.

I hope you are able to find some peace of mind amidst the racket.

When I was a young man, I lived over an amiture garage band. I learned to sleep through the nightly practice sessions. The trick was to put my ear to the floor and let the sound take over. This notion seems to help me cope today.

Best wishes,

Wringing 1212

[NicTinnitus]

I'm sorry to hear you're going through such a tough time ellj. I have MS myself, and have currently got tinnitus through a bug I'm recovering from - and yes, the tinnitus is having more impact than the MS at times!

If you'd like to speak to someone, our Helpline 0800 018 0527 (Monday-Friday 9am-5pm) (outside the UK you can call [phone]) can give you support to get you through this tough time.

We have a free tinnitus management e-programme as well takeontinnitus.co.uk which you may like to try.

I hope this is helpful, and we are here to answer any questions you might have, or offer support.

Warmest wishes

Nic (BTA Communications Manager and Forum Administrator)