9 Years of Hypo - Part 2 - getting diagnosed - Thyroid UK

Thyroid UK

137,936 members161,765 posts

9 Years of Hypo - Part 2 - getting diagnosed

lizanne profile image
3 Replies

Hi All

So to continue my story.

When I was heavily pregnant I was really worried about why I losing my eyebrows - but the doctor told me there was nothing wrong with me. So I booked an appointment to see a trichologist. A lot of money for one appointment (we are so vulnerable when we are sick). I did say when booking the appointment I was pregnant and could they still help me. They said yes. Then when I got there they said obviously they couldn't offer any treatment, help me or do any tests as I was pregnant. so just wanted to see me..£££ !!

He did suggest a possible iron issue as I was vegetarian and had started to crave meat. So there was possibly an iron/ferritin problem. As I was pregnant and had various bloods done, I checked out my various past test results when I got home. My ferritin level was 44 and the range was 12 - 210. Perhaps if my GP had listened to me more, he may have looked at my tests results and suggested that when pregnant iron should be higher. I also realised that week that all the hair from my arms and legs had fallen off.

Moving forward to when I had my baby a few weeks later. As this was my 3rd baby and I had something to compare this to - I knew I wasn't well. I felt dreadful and knew my health was failing by the day.

My baby and I went along to the doctors for our 6 weeks check. All fine except when I brought up the issue that I wasn't feeling great. The key symptoms I was suffering at this point where:

1) My lovely dark brown sleek eyebrows had all completely and utterly fallen out- only white patches where they had been. I looked freaky. I invested in an eyebrow crayon

2) My hair was coming out in ropes!! I always had long thick hair (thank goodness) and had never had hair loss after previous pregnancies. But eventually I lost about 35-40% of my hair. Every pillow, carpet, sofa I travelled by had my hair on it. The vacuum cleaner got blocked with my hair and washing it was horrendous. I had to pull all the dead hair out of the hairbrush and pile it up as I combed it.

3) My muscles were so stiff and ached - I had to struggle to get out of chairs. My muscles felt so cramped like I had been locked in a box!

4) Bad, raw joint pain - particularly in wrists and in hip joints. I was worried I was getting arthritis.

5) Exhaustion..........fatigue......complete blood draining exhaustion.....

6) Flushed, red cheeks

7) Constant cold,

8) Pain - absolute agony when I had very minor bumps or bangs. This I found the most painful. Catching my elbow on a door frame when carrying in shopping, stubbing my toe on a step. Lots of clumsiness on a very minor scale, but that made me physically sick with pain for hours.

The above list doesn't include all the problems - just the major one. The GP said he would refer me but never did. After weeks of searching for a reason behind all my symptoms I came across Thyroid UK and Lynn Mynott. Thank goodness.......................

It was obvious I had thyroid and adrenal problems I just needed to get a doctor to believe me so I could get treatment.,

I went back with my husband (who was worried sick about me) to see another GP in the practise. We told her all my symptoms, my husband pointed out I was not a 'frequent flyer' at the GP practise and someone had to take me seriously.

She said it was obvious I had an underactive thyroid from all the symptoms. I asked her to repeat that - I could not believe someone in the medical world actually believed me and I burst into tears - grief knowing I had a young family and was ill - and relief knowing that finally someone listened to me.

I will talk next time about finally getting treatment.

Lizanne

Written by
lizanne profile image
lizanne
To view profiles and participate in discussions please or .
Read more about...
3 Replies
PR4NOW profile image
PR4NOW

Lizanne, another site you might enjoy looking at. Dana has had similiar experiences to you. PR

hypothyroidmom.com/

lizanne profile image
lizanne in reply to PR4NOW

HI PR

Many thanks for that link - a great web site and I identify a lot with her history and experiences.

Its fantastic that there is so much info out there now

Lizanne

Jackie profile image
Jackie

Hi Unfortunately we have mostly all had these problems with GP`s. Make sure you have a TSH, T4 and free T3 test for the correct treatment. FT3 usually after being on treatment with Levo ( T4 ) for a bit.A lot of people need T3 together with T4 for all the symptoms and to feel better.

Best wishes,

Jackie

You may also like...

Getting a diagnosis - part 2!

that I may have premature menopause due to all my symptoms (I'm 28) so no idea what to make of...

New and struggling to get diagnosed (central hypo?)

endocrinologist appointments and I'm just not the kind of person who can sit and wait for someone...

Hypo but untreated for years.

told me that she has had symptoms for many years and has never been treated despite all of her...

newly diagnosed and scared - hypo

would be . Ecg all fine thankfully . Soon after I began to feel cold all the time , when usually...

Diagnosed hyper but displaying hypo symptoms

but displaying all hypo symptoms such as being cold, constipated, heavy periods (obviously not you...