We all too often see people lamenting the NHS and its treatment of thyroid disorders.
But we also often see people lamenting that even when they have seen private endocrinologists they are no better off than NHS.
And for those of us who have long been readers of USA forums, we see the same issues there. (Even though desiccated thyroid is an FDA-approved medicine.)
And in France desiccated thyroid is illegal.
And in the Netherlands they had to set up a group to prevent desiccated thyroid from being made unavailable:
The Association of Users of Natural Thyroid (VGNS)'s aim is to promote the interests of users of natural thyroid hormone in a broad sense to represent and thereby to act as intermediary between patients and official bodies.
The VGNS was on June 16, 2010 by notarial deed after a successful operation to preserve the natural thyroid thyreoidum, a hormone that is essential for the quality of life of users and possibly many others.
The VGNS criticizes the regular diagnosis and treatment of thyroid patients and sets explicitly aims to increase awareness of non-formal diagnosis and treatment with natural thyroid hormone, so that more patients detected and treated adequately. Thyroid Diseases, to which women are eight times more likely than men to suffer, unfortunately belong to the most missed diagnosis.
Our information brochure can be downloaded and printed. You fold it over like a business letter. This you could bring to your (family) doctor or specialist, if you want to provide them with information. See here for more information.
Not sure if either of those will work to translate to English. The site itself is:
I have read of significant problems in Japan, China, Australia, New Zealand (and our Teva issues last year were as nothing to the issues they had from a reformulation a few years ago), Israel (similar issues to NZ), Germany, Sweden, Iceland, Canada, Italy, France, Ireland, ... Indeed, these are the ones that immediately came to mind - I suspect there are dozens more I have read about, and probably all countries actually have problems.
It is so, so easy to feel that the issues are treated particularly badly here in the UK. I hold that it is very difficult to back that up. There are so many holes in diagnosis and treatment everywhere.
I simply cannot find a country which has thyroid diagnosis and treatment I would be happy to call "adequate" - let alone "good" or "excellent".
So whilst we can rightly complain about specific NHS failings, we need to remember that even with adequate funding, getting to "good" is difficult. Neither we nor GPs and endos know what the best path would be. Improvements to get closer to adequate might be more readily achievable but even then, some of the fundamentals are still not properly researched.