Hi everyone, I'm new here but have been lurking for a while, trying to figure this thyroid thing out.
I was just wondering if anyone has seen an immunologist and come away with a Hashi's/hypo diagnosis, despite "borderline" TSH.
A bit of background: I'm 33 and female. A year ago I was anorexic and miserable. I decided to push myself to recover properly, which I did with the help of a high-calorie meal plan and some CBT exercises. Throughout my recovery, I've had symptoms which could be attributed to low thyroid function - bone pain, joint pain, irregular periods etc. And oh, the weight gain. It sounds almost unbelievable as I type it now, but I have gained 102 pounds in the past year. To go from a BMI of below 17 to over 35 is, to put it mildly, a bit of a mind-blower. (Of course, initally I was eating to gain, and it can take a while for all hormones etc to normalise after prolonged starvation, so I think that complicates things a bit - but my diet is now very normal, healthy and stable.)
Anyway, long story short, I had a blood test in August which was "normal" (not sure of the exact numbers), and then two weeks later I started getting hives every day. I assumed it was an allergy at first, but after a couple of months they were getting me down, so I went back to my GP, who referred me to an allergy/immunology clinic. A bit of Googling revealed the link between hives and autoimmune thyroid problems, but the doctor hadn't heard of that, and insisted my thyroid was fine. In January my periods seemed to have stopped again, and I feel horrible - so I begged for another thyroid test, and my TSH is now 4.3 (range 0.4-4.2). I felt this wave of relief - until my GP said that we must "keep an eye on it", do nothing now, but retest in 3-6 months.
The good news is that my appointment at the Immunology department has finally, finally come around. I've had hives every day since the beginning of September, so I'm hoping against hope that they'll test for antibodies, and that'll help my case for treatment sooner rather than later, because I don't think I can bear to wait 3-6 months feeling like this. i felt as though I was doing the right thing, refeeding myself and working to get over the eating disorder, but I feel as though I've lost my mind in the process - I feel so slow and dull all the time.
Sorry for the long story - but I'd really like to know whether others have been in this situation. I don't want to get my hopes up too much, because my appointment is actually at an allergy clinic, although I'm pretty certain this isn't some new allergy. Slightly afraid I'll just have a skin-prick test, be told I'm allergic to cats, and sent on my way. Can I ask to have the antibodies tests?
Would be really grateful to hear any experiences. Thanks.