I have an under active thyroid and been feeling... - Thyroid UK
I have an under active thyroid and been feeling paranoid, does anyone experience this?
This is not uncommon but could also be due to low B12. Levels of B12 below 500 can have quite an effect on our brains and neurological systems in general. It could also be that you are not yet on your optimal dose of thyroid hormones as that can have just as big an impact on your brain as B12.
If you have your latest thyroid test results, could you please post them so we can see. It might be that you are not on quite a high enough dose of your thyroid medication. Are you taking thyroxine? If so, how much?
Sorry if this is a little garbled. I have a six-year-old shouting in my ear and shoving stuff in my face as I'm typing!
Carolyn x
Yes i'm on Thyroxine, i had a test just over a month ago i think, the Dr changed my dosage to 125, Before that i was at a different Dr's Surgery and after months and months of test they had me on an alternating dosage of 150 and 125 as my thyroid wouldn't level out.
I dont take B12 or anything else.
You might find this page helpful to help you decide if you might need to take any supplements. It would be a good idea to get tested for iron, ferritin, B12, folate and vitamin D though. Any of these could be having an effect.
The six-year-old shouting in your face i can understand all to well, i have a three-year-old who is very good at being heard, lol
Before diagnosis and optimal treatment for hypothyroidism, I was very anxious and also developed agraphobia. I was also convinced that every ache and pain that my children had meant that they had some horrible and life threatening illness.
Now that I am so much better on the thyroid front, these feelings have pretty much gone thank goodness.
Great advice from Carolyn above - please post your test results when you get them. Xx
Thanks for you help, i will let you know how i get on
Hello , I had terrible paranoia and anxiety attacks until my medicine started working ( about 3 months ) I also started taking b12 and , vitamin d , now I'm fine . I think it's Definatly a symptom , good luck x
Yes, I was paranoid before being fully medicated. I hadn't thought about it being connected to vitamin d and b12, mine were both low and are now at optimum levels.
Do have your vitamin D, B12, ferritin and folate tested too 
Sue
I have been hypothyroid since birth.
I know what you mean with stages of paranoia or moments of when you know something is wrong but you can't control it.
I haven't felt that way in a while (thanks gosh).
I have seen three physiotherapist, started with first one when I was 21 yrs old. I am 35 now.
They have helped me to understand myself better.
It's a continuous fight: mental health vs your medical treatment, quite complex to explain really.
You just try to understand why, what's going, but sometimes you just don't find the answers.
I try to apply what I learnt with my last therapist, the best, to calm myself down, try to get to the root of what caused my anxiety and deal with it the best I can.
I must say that meditation is one of the best things that work for me.
I hope you don't have many of those moments. I feel for you.
I am seeing a new endocrinologist in April, keeping my hopes he will prescribe me t3.
And hopefully I will improve with that new treatment as t4 only is obviously not working.
But try to explain this to the doctors, they just think you are not right in the head. Making you feel frustrated and angry for not understanding you.
I was misdiagnosed bipolar many years ago.
I am not, that was confirmed by a therapist.
I just don't know when doctors will want to open their eyes and wide their knowledge, or at least try to understand us.
All the best!
Take care.
Hi SIsi, I suspect I was hypo as a child but never diagnosed. I am interested with you misdiagnoses of bipolar as that happened to me too. You can see the last of my questions to get my story. I would love to share with someone who has same misdiagnoisesis. I now suspect autoimmune hypo bloods next week.
Hello Scarfred,
have you got a complete thyroid blood test done to find out?
I got mine privately, Genova labs in London. My nutritionist was the one who referred me. He got my results and forward them to me and also discuss.
I was misdiagnosed bipolar and anxious depressive (I hope that's the name is English as I come from Spain) when I was 22 yrs old by the psychologist I was seeing then.
But my therapist in Ireland, where I used to live before I moved to the UK, said there was no sign of bipolar
I have to say that a good psychotherapist helps. I learnt ways of how to deal when I feel low mood.
Are your questions on your profile? Let me go to it, read and will get back to you.
If you are not convinced by the results you get, in case they are only t4 and tsh, I would recommend you to get them done privately.
That's what I did and voila, I got my answer there.
Two weeks later I went to Gp to refer me to the endocrinologist I had requested and she sent me for more bloods, but only those two: t4 and tsh. And to my surprise the levels indicated I was ok, nothing wrong with me. Whereas my private results showed my hormones levels were all over the place only 21 days previous to that second test.
Gp sent all results to this new endocrinologist I will be seeing in April.
All the best and keep in touch.
Hi Sisi thank you for your reply. I am having a thyroid function test on Thursday I am speaking to my GP to ask him also to test for iron, ferriitin B12 folate and vit D free T3 and T4 and thyroid anti bodies. All of which have been suggested by this site. He will probably say it's all in my head. If he disagrees I will have them done privately. I sent to them last week for a 24 hour saliva cortisol test, the problem is I can not produce enough salvia for the samples. Are you angry about your misdiagnose of Bipolar? What medication did you take? Do you think the bipolar medicationay have effected your thyroid tests ? Sorry to bombard you with questions. Keep well. Annie
It was a psychologist when 13years ago.
It was private so only myself knew about it.
Then, 4years ago a psychotherapist said and confirmed I was not bipolar, he didn't find or see any signs of it. Thank gosh.
I know I am not. I had my ups and downs but that's all.
I am not angry as I never felt I was. Only here in the UK when I mentioned when I was pregnant, I said I was having a difficult time during pregnancy and mentioned about the misdiagnose, gosh I wish I had kept that to myself. They treated me like if I was an unfit mum to look after her baby.
I must say my daughter is the happiest child and I have never ever had any problem.
I just can't cope with exhaustion or stress at times.
Well done on the saliva test, did you get it done through nhs?
I did my thyroid test privately as Gp would not test anything else apart from T4 and TSH 
Let me know how it goes with your Gp. All the best!
I have been reading an old paper about the mental effects of hypothyroidism and feelings of paranoia are very common, you need to be sure you are being adequately treated for the hypothyroidism. They underplay the mental effects of the illness nowadays, but the fact is that the thyroid has a tremendous effect on the mind. I have had overactive and now no thyroid and I can tell you it's been a real rollercoaster mentally!
Hi can you please give a reference of this. Thanks
ncbi.nlm.nih.gov/pmc/articl...
it is a very old paper and it is also quite disturbing, not least because doctors today are dismissing the mental issues arising from thyroid problems.
The layout is a bit weird but basically it's a series of case studies of women who have been in mental hospitals for, amongst other things, paranoia. Believe it or not, MY doctor sent me to a mental hospital while I was telling him it was my thyroid.
Marie XX
Ps you're not alone, I really do assure you.
Hi Marram , Could you possibly send me a copy of that paper. I had paranoia, thought be psychiatric condition , but turned out to be hypothyroidism , TSH of 50 , when it should be 4. Just one other brief episode since with a TSH of 18.3.
No symptoms since , but got a psychiatric label !!
Just seen the link, downloaded , very interesting reports. All hypothyroid patients having , swollen face and eyes, feeling cold , even in hot weather , and paranoia, or psychosis {delusions , ie, mixing up fantasy and reality}.
Often admitted first to Psychiatric wards.
So its clear some hypothyroid patients are being MISDIAGNOSED with Mental Health Conditions when they are hypothyroid.
You could become manic too , or depressed , as you can get very anxious , or slow right down with foggy thinking. Possible weight gain.
Sorry Tricia I did not spot your reply immediately, due to on-off internet problems, but pleased you were able to see it after all.
xxx
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