For four years I have suffered from tingly hands and fingers, peeling dry scaly skin, extreme fatigue, massive weight gain and inability to lose it, extreme tiredness, depression and digestive problems.
My test results over this period for T4 are (latest first): 12.9, 13.3, 11.4, 10.6 11.7
and for TSH 2.08, 4.28, 2.17, 1.85,3.55
My GP says my results are normal but are they not on the low side of the normal range? Is it possible to have the condition without falling directly into the lower end of the range of results?
I am worried as my symptoms are really getting me down and are affecting my life in an adverse way.
I don't like to doubt my GP but it took 20 years of me asking to finally diagnose coeliac disease and it would never have been investigated without my insistence. I now feel that I am at the beginning of another battle and wonder if there are any shortcuts or other tests which can be taken? I am quite desperate and would really appreciate any advise.
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gluten3
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Do you have the range for that FT4, gluten3? The results look low but it's difficult to say with any certanty without the range.
Your TSH is too high, in the main, but not high enough for a doctor to diagnose you. Have you had your antibodies tested? That is most important, because it could be what's causing your TSH to vary - unless you've had it taken at varying times of the day. And it's possible you do have antibodies because hypo would appear to run in your family. Have you told your doctor that your sister has it, and your grandfather had it? Ask him for TPOab and Tgab tests.
Fatigue, depression, weight-gain, and digestive problems are all hypo symptoms, but can also be due to other things, so everything needs to be ruled out. For example, tingling hands could be due to low B12. Have you been tested for vit B12 and/or Pernicious Anemia? And while you're at it, ask your doctor to also test for vit D, folate, iron and ferritin. Especially as you have digestive problems, you could be low in a number of nutrients.
Actually, where thyroid is concerned, you should doubt your doctor. In the main, doctors know nothing about diagnosing and treating thyroid. They have no idea what the symptoms are and just go by the blood tests and the rediculous ranges. There are other tests, but I doubt your doctor knows enough about thyroid to do them or understand them! As I said above, ask for antibodies, nutrients and also FT3, because - although doctors Don't know it - it's the most important number.
And if he refuses to do them all - as he well might - you could always have them done privately.
So, that FT4 is very low, and your doctor should have started you on treatment. He's useless! Any chance of seeing someone else?
But in any case, do get those other tests done that I mentioned. It will help give a clearer picture.
Next time you go for a TSH test, go as early in the morning as possible - before nine - because the TSH is highest first thing in the morning. And Don't eat before the test, because eating will lower the TSH.
Thank you. My doctor has not to date told me to fast before testing. I have also always been told everything is normal!
I forgot to mention I have hair falling out in handfuls and a sort of brain fog. i know these are all symptoms so I really don't want to be fobbed off any more.
No, not a doctor, just an experienced patient!!! Of course your doctor didn't tell you to fast, he has no idea. None of them have. But, it has been proved that eating lowers TSH, so best to leave your breakfast until after the test.
Tingling fingers and hair loss are also symptoms B12 deficiency, I'm not sure but think I've read on this forum that people suffering from hypothyroidism quite commonly, are also low in B12.
Now I know I am not going mad, I will have all these tests done. When I was trying to get to the bottom of all the symptoms of coeliac disease, I was fobbed off for almost 20 years, I will not allow this to happen again so will pay privately and with luck this time things will move along quicker.
I don't know how to personal message (someone else has also suggested I do this with them). I haven't used the internet before to obtain help so unfortunately I am a little naive as it its workings.
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