I thought it was time I sat down and wrote again on my life with no Thyroid.
It's a cold and wet or snowy day in Hampshire so I am upstairs out the way. I am feeling very tired today, and I had a better nights sleep but it is very up and down on that front.
I had my Thyroid removed completely nearly 7 years ago now, in what ended up being a very eventful year. As I left hospital the doctors words were along the lines of you will be fine now just take these pills each day.
And as we all know the answer to that one is only in our dreams, along with some well fit guy or gal to share your life with depending on your requirements. Well all was ok for about 18 months then it started to go wrong and like most of you here its the usual symptoms that loomed overhead like a massive dark cloud, which then showered down on me.
So now on my own with a then 14 yr old in tow I began to look for answers. Off to the doctors to see what they had to say about it all. Then sent for blood tests, to check on the good old TSH level. Well that did result in a change of levothyroxine - it was raised. Feeling better I continued with life, work, home and a teenager.
It all started to unravel further about 2 to 3 years ago. Well the brain went into melt down. My memory which had always been good just got up and left. My hair was getting thinner and I found a bald patch. This was all getting a bit scary so off to Doctors who listened requested blood tests and gave me cream to sort out the hair loss.
On the follow up things became clearer. In a word as a woman - menopause. I am younger than normal to go through it. Mind you if you are over 30 to a teenager you are middle aged and should not do a lot of things! It appears, following my own research via the good old internet, that this should not necessary have surprised me. Messing with the Thyroid is like messing with your car. If the car is not fine tuned it won't work very well if at all. If we are not medicated correctly we don't work well either. Along with being told I was depressed - ok that's not me I really don't do depressed but I did know I was not myself. More pills to fix yet another hormone that was out of balance. As my thyroid pills are a fixed amount and my body wanted different to what it was being given more help was required. Not having a normal work thyroid means you are totally at the mercy of the little white pills which I guess in effect keep you alive.
Well the hair finally grew back still not a thick but its ok. The delights of the menopause symptoms are mainly night sweats now and these are fading. I have returned to being cold in the day again from hot a lot of the time. My feet are back to their frozen self all year round. Well how many people do you know who wear furry slippers when its the height of summer! The memory has improved as well. Ok I did put the sugar in the wrong place yesterday and then wondered why I could not find it.
Other changes thanks to ideas from others here have been to change my pills to night time from day. That was a great one. I could finally sleep more than a few hours a night and be awake in the morning instead of trying to look awake.
At the moment the sleep is a bit hit and miss other life event have got in the way so I have good nights with 6 whole hours - oh what a joy. To some nights with 2 hours again.
I asked to see an Endocrinologist via the doctors and got one! I was delighted. I have to say that I have been able to get Doctors to listen to me and I have a good Endocrinologist who I have seen twice since October 2012 and will see again in April as they are checking on various levels of things that are not what they should be. They also changed my amount of Levothyroxine when needed and accept that I know when my TSH is under 1 I feel better than when it is not.
And Paloma you may ask, well I was given the album "Fall to Grace by Paloma Faith" as a present and I love it. It helps keep me going until I can find that man of my dreams.