I posted in December about my worries over seeing an expensive private Dr. You all piled in with such great support that I was able to contemplate it quite calmly - so firstly, a big 'Thank you' to you all.
Here is the story of what has happened.
The appointment with Dr S went really well: he had read all the notes sent through by my GP, and was fully up to speed, the 1st Dr in 6 years to be so. That had to be a good sign, agreed? That he wanted to hear about my (long ) list of misery-making symptoms, and paid close attention might not all be due to how much I was paying him. Instead he was nodding and kept saying, 'typical of under-treated hypothyroidism'.
He took a very dim view of the stance taken by the last Endo I saw, and said that he is in breach of Nhs code (?) if he refuses treatment because I am having to go elsewhere for treatment that he has refused...iyswim. He suggested that if this did occur then I should inform the GMC.
I already knew a little bit about heart failure as (just one of the many) consequences of un/undertreated hypothyroid, but never talk about it to the family because it smacks too much of those non-articles in the scare-mongering daily fail, but he was very concerned. My cholesterol is high. He thought I looked very unwell (I felt terrible, and exhausted, and sore), very hypo and this was borne out after he did the (lots of ) checks.
He then outlined several possible ways to go forward - choices! Basically I am very under-treated, so the first job is to get the levels up. I have opted to go for working with what is currently prescribed (T3 20 mcg, T4 100 mcg) and to increase the dosages incrementally and alternately, at intervals of 3 - 4 weeks, so that I can monitor what happens with some degree of clarity. To go any quicker would not be better, in fact I could start a nasty backlash reaction, so patience is key. Seemingly this is how it used to be done, until one went past a comfortable level, when it would be dropped back till the optimum dose was reached. Treating by symptoms, I suppose?
I am to report back with alterations in symptoms and see Dr S again in May, by which time he very much hopes that I will be hugely better. If not, then I can consider adding in NDT or abandoning the T3/T4 and doing a trial of NDT only.
There is real help on offer. I am so glad I have saved up for this - but I am just boiling with anger at the refusal by the Nhs to treat people properly. No, better stop there, or I will go off on a rant! Now I need to cross my fingers that my GP will cooperate...
Thanks for staying with me if you have read this far, your support means so much.