Im just wondering if the carbimazole could be dampening another undiagnosed problem?
Graves Disease diagnosed a year ago, currently on 10mg Carbimazole, 60mg Propranolol, Lansoprazole & Adcal dissolve after DEXA scan showed loss of bone density. Had 24 urine test which came back in normal range so they've discounted an adrenal problem.
Last 3 blood tests show levels now within normal range (TSH around 3, T4 creeping up slowly from 12 to 16.4 on last test) so Endo says im stabilising but is constantly increasing betablockers as Im very symptomatic still. Endo is ready to pull me off carbimazole, double to betablockers to 120mg a day for anxiety issues (seriously??) and send me on my way which Im not happy about and Im sure something is being missed.... Each time betablockers are increased I feel ok for a week or so then the symptoms return and its upped again to the point its becoming ridiculous, surely treating symptoms means there must be a reason they are there?
Anyone got any ideas what I need to be asking for when I see Endo again in 2 weeks, apart from blood tests and urine test nothing has been looked into and Im fighting not to be discharged. He's said he doesnt understand why I have symptoms, symptoms arent possible once stabilised but they are not only there, but blatently obvious to anyone I see, even writing is becoming a problem due to the trembling now and I've forgotten what a full nights sleep is. Im also hot, extremely hot to touch, feel like Im cooking from the inside with almost constant prickly heat even outside, how is this stable?? What am I missing here?
On another note, Happy New Year to all