I just wrote this to a friend and thought I would copy and blog it in case it's useful to anyone else considering using LDN for autoimmune hypothyroid issues or maybe prompt others to share some experience of LDN.
Mine's not a very cheery tale but here it is...
Didn't feel very well with the LDN. Was very hopeful to begin with but 2 weeks in was feeling all my symptoms worse than usual which came on each day after taking the med. I didn't get past the small starting dose. I've stopped now. I've been told I didn't try it for long enough. I don't know how people can tolerate side effects. For me bad stomach / bad head / spaced out / depressed / lethargic - that's on top of my usual ME/CFS stuff which is a total drag but usually manageable.
If I was going to try it again (I don't feel like doing it again at the moment) I would have to try and prepare for 2 months of being able to do less than usual (and feeling even more zombie like than usual) just to see if I got over the hump.
On top of this my 'consultant' (doc in Scotland) didn't respond to polite email asking for simple advice even though I would have ended up paying 110 pound per year for 'consultation' - which is really just for him to write monthly prescriptions - nice work if you can get it. The LDN would cost me 15 pound per month on top of that.
Perhaps there are others with more positive experience of LDN - they must be out there?
Cheers and best wishes, Andy