Hidden

HI,

Do you have hashimotos disease?

The thyroid can speed up when it is under attack, and put out more thyroid hormones.

Also, if you're on a large dose of thyroxine, and the tsh is still high then get your t3 checked. If you are not converting t4 to t3 then you will be hypothyroid no matter how much t4 you take and you will need to take t3.

Nel.

Hidden in reply to Hidden

Hello,

can we get T3 in the UK on the NHS?

Reply (0)Report

lm713 in reply to Hidden

I've heard rumours it's possible, but when my GP sent me for a t3 test, the lab returned tsh and t4 and said that they don't do t3 any more ("it's been replaced by t4" - like t4 is a newer version of t3 or something :-).

Seriously though, there must be nhs labs that do t3. Just get the doctor to call in advance to make sure they do it.

Reply (1)Report

Valarian in reply to lm713

NHS labs definitely can test T3, as they do it for people who are hyper. GPs may not be able to order it - mine are ordered via the endo, although the the bloods are drawn by my local surgery.

Reply (0)Report

Stourie in reply to Hidden

Hi last year I went to a private dr and he recommended t3 so I told my own gp and she reluctantly prescribed it for me . I do feel clearer in the head since I've been taking it.

Joanna

Reply (0)Report

cathy1110 in reply to Stourie

Hi i just been dignoise with underactive thyroid second time.you said your head clerer.does it affect our thinkink.?i got to have another blood done .

Reply (0)Report

Hidden in reply to Hidden

I get T3 in the uk, on the NHS, But not enough.

Reply (0)Report

lm713

Forget about the blood for a second. How did you feel when you were on 125mcg and how did you feel when you were on 150mcg?

As Nelly said, Hashimotos disease, which I believe is quite a common cause of hypothyroidism, causes fluctuations in hormone levels, though the spikes (hyperthyroidism) is usually only experienced at the onset of the illness.

Perhaps your pituitary is very sensitive and over-reacts when levels fall slightly too low? Does anyone know if this has been reported? If so, what about splitting the difference?

helvellaAdministrator

I sincerely doubt that the modest change in dose could have such a dramatic effect. I'd be looking at other reasons for the change.

Starting with brand of thyroxine, when and how you take it, other medicines or supplements, changes to diet and other things that can cause changes to the impact of thyroxine.

Or have you had some illness - even a cold - which might transiently have affected your thyroid status?

It does look like your TSH shot up rather extremely - but always remember that TSH does not simply go up in proportion to the need for thyroid hormone. If the increase in TSH does not initially have the required effect, it will keep on rising - to the extent your pituitary can manage. Having been hypo often results in the enlargement of the pituitary - and maybe yours is simply capable of pushing out more TSH than 'normal'?

I predict that you will settle down needing somewhere 125 to 150 mcg. But try to think about how you feel every day and use that as a guide.

Rod

VictoriaBreeze

I went to the doctors about 18 months ago, because I was feeling weak and fatigued all of the time.

The Doctor told me I was underactive, which I was shocked to hear.

I started off on 50mg levothyroxine and after more tests was put on 75mg. I was on that for around 6 months.

I wasn't feeling any improvement and I've gone from being a semi professional athlete to shaking constantly, muscle weakness, plotting headaches etc etc. Sometimes I can hardly speak.

I went back to the doctors and they ran more tests and my thyroid T4 was 87, which is dangerously high. I had a racing heart, jitters and was quite frankly hyperactive. I was speaking like I'd been taking speed. I couldn't sleep and was constantly thirsty.

They tested my autoimmune system and I have very high antibodies. They think I have Graves' disease and my body is attacking my thyroid and adrenal glands.

I'm under a specialist at the moment. I didn't understand how I could go from under to so drastically overactive in such a short time. Apparently an autoimmune condition surrpresses your thyroid before it then attacks it.

I'm not convinced so I'll wait until my appointment with the specialist. My GP and doctor are in communication and I've been put on some tablets to reduce my thyroid levels and beta blockers as my resting heart rate was 140 and my blood pressure was through the roof.

Our bodies are complex! I just want to feel better again. I'm fed up of being tired and weak.

I have anthyroid ultrasound tomorrow, so here's hoping that reveals something.

Victoria