Has anyone out there been diagnosed with Coeliac disease or Coeliac antibodies

[grumpychick]

I have just been diagnosed and I have been refered to a gastroenterologist. Just wondered is there was anyone with the same problem as myself.

[Dancerfromparis]

There appears to be several people on here with Coeliac disease. I know since Ive been on Thyroxine I have severe stomach pains a really bad acid reflux. I know its not the same but its all digestive.

[donna]

hello grumpychick,have you high antibodies?hashi/graves?l have hashimotos and other autoimune things wrong!l am awaiting an appointment for further tests via nhs..blood tests via private dr showed up gluten intollerance..l cut that out and my brain fog was much better...but on other days it was back ..l kept a food dairy and have now cut out all grains..l actually fall asleep within minutes of eating rice,and was served couscous by a well meaning friend (who said if you feel bad anyway why not eat something you might like?) well l was so poorly headache brain fog achy arms and legs which lasted for two days..l wish it had been something l really like icecream,chocolate,BREAD! my dr said my allergies /intollerence is to do with my high ati tpo antibodies your body thinks the foods are a bug/illness and the body goes into attack mode..l have tried all different flours, even the new/old spelt,and l react to them all..potatoe flour is one l am experimenting with..but its hard as l am also dairy and egg intolleren so still cant make biscuits cakes AND NICE THINGS!t...with all l cant eat l should be thin! but NO!l was drinking rice milk as l cant have cows or soya..that ended up making me rough so l have drunk almond milk for a year now..BUT l am having a day TEA free (l drink roobois /red tea) day tomoorow as it seems l wake up BRIGHT and take my tablets with water then l get up and have tea..then it seems l get SOOO tired again..so l will be seeing how l go..( lm not one of those food faddy people!l USED to eat EVERYTHING and still would and find it hard cooking and not picking at the food l prepare for the family!)

[DoubleM]

Hi, I've cut out gluten & feel a bit better. I get less headaches, bloating and stomach probs. Not had any tests for intolerance though.

[pinki1978]

hi grumpychick

i have had tests for this they now say i have IBS yes i no its not helped i feel rubbish all day every day stopped eating bread for a few months now i eat as little as i can even tryed cutting out glutton

[FionaGFG]

Hi Guys

If you want to share and discuss Coeliac Disease feel free to pop across to our HU group Gluten Free Guerrillas. We're keen to make living gluten free simpler for Coeliacs and share tips. As you probably know by now there is a strong link between thyroid autoimmune problems and Coeliac Disease (also autoimmune). Many of our members have thyroid problems as well (often these were spotted before the CD). So pop over and ask away or request to be a blogger. We're happy to share and are seeking some more newbie Coeliacs to chart their journey.

PS IBS is the catch all that most Coeliacs were palmed off with for 10 years before they were diagnosed. NICE guidelines state that if you have Thyroid problems you should be screened for CD as well.

[Hidden in reply to FionaGFG]

Yes, Fiona, I was surprised to read this. "Testing is also recommended if you have the following conditions:type 1 diabetes; irritable bowel syndrome; underactive thyroid or overactive thyroid glands."

nhs.uk/Conditions/Coeliac-d...

Chance would be a fine thing.