I have same problem

[NuttyRobin]

I had a Thyroidectomy over 30 years ago and have been on 100mg Levothyroxine ever since. Recently l have been reduced to 25mg one day and 50mg next. I can't believe it and feel absolutely lifeless and not at all well. So l can sympathize with you. No amount of complaining makes any difference

[greygoose]

Robin, it looks like this post is a reply to someone but you haven't said who, so they're unlikely to pick up on it.

When replying to people it's best to do it on the original thread, not start a new thread, which is what you have done here.

Can you remember who you were replying to?

[pennyannie]

You haven't replied to any of the forum members from your own post some days ago -

is that what you are looking for ?

Just press the Profile icon on the task bar where the Alert icon sits - and this takes you back to all you have written on the forum.

[humanbean]

Your dose is far too low for anyone who is hypothyroid, and is an absolute disaster for someone with no thyroid, and the consequences of such awful treatment can be extremely severe. I think you could be at risk of developing myxedema coma. (Despite the name it is rare for people to actually go into a coma.) It can also be called myxedema crisis.

medicinenet.com/myxedema_co...

en.wikipedia.org/wiki/Myxed...

Do you have a spouse, partner, family member, or friend who knows what you are going through and can accompany you to doctor appointments and/or can listen to phone calls with you, and can talk on your behalf? When I've been untreated or under-dosed I can't think or muster up arguments, but I do still have a thyroid that produces small amounts of thyroid hormone. You don't have that luxury. It would be difficult to advocate for yourself with so little thyroid hormone in your body, and you need a supporter of some kind to speak for you if necessary.

I think you (or a supporter) would be best to see a doctor and complain about your dose and stress that you have no thyroid. If that doesn't get you an increase in dose or further testing then go to a hospital and ask for testing that includes Free T4 and Free T3.

Another alternative is that you pay for private testing. I'm not sure what the best place is for getting just TSH, Free T4 and Free T3 tested at the moment - I'm a bit out of date. Having just TSH done (which is what the NHS does now) is not helpful.