Postpartum thyroiditis?: hi I’m 3 months... - Thyroid UK

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Postpartum thyroiditis?

Victoria27 profile image
11 Replies

hi I’m 3 months postpartum and had my bloods done at 2 months pp.

Tsh <0.01

Ft4 21.4 (11.5-22.7)

Ft3 8.3 (3.5-6.5)

This was on a letter from the endo that says I’m biochemically hyperthyroid. I’ve got an appointment later in the month but just wondering if anyone has any experience with postpartum thyroiditis and maybe it is this instead?

I am under the endo as my tsh was suppressed and ft4 and ft3 were both low in early pregnancy but no actual diagnosis given. I haven’t had levothyroxine since June and was only on it for 6 weeks prior to this because of low ft4. Thanks

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Victoria27
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11 Replies
SlowDragon profile image
SlowDragonAdministrator

19/7

Tsh 0.02 (0.49-5.23) <

Ft4 10.6 (11.5-22.7) <

Ft3 4.4 (3.5-6.5)

22/7

Tsh 0.04 <

Ft4 10.3 <

Ft3 4.2

12/8

Tsh 1.78

Ft4 9.2 <

Ft3 3.9

27/9

Tsh 0.07 <

Ft4 12.7

Ft3 4.8

1/11

Tsh 0.14 <

Ft4 11.6

Ft3 4.8

9/12

Tsh 2.23

Ft4 9.4 <

Ft3 4.2

Looks like possibly Hashimoto’s as it frequently starts with transient hyperthyroid type results and symptoms. Before becoming increasingly hypothyroid

Not true hyperthyroid …..as cells breakdown under autoimmune attack excess thyroid hormones released

After each breakdown thyroid becomes increasingly damaged

Request that thyroid antibodies are tested

TPO and TG for Hashimoto’s (can also be mildly elevated with Graves’ disease)

You need to test TSI or Trab to confirm Graves’ disease

Also very important to test vitamin D, folate, ferritin and B12

Have these been tested

Ft4 and Ft3 have been very low

For good conversion of Ft4 (levothyroxine) to Ft3 (active hormone) we must maintain GOOD vitamin levels

What vitamin supplements are you taking

Low vitamin levels are extremely common when hypothyroid, especially with Hashimoto’s or Graves autoimmune thyroid disease

About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high TPO and/or high TG thyroid antibodies

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis.

Both are autoimmune and generally called Hashimoto’s.

Significant minority of Hashimoto’s patients only have high TG antibodies (thyroglobulin)

NHS only tests TG antibodies if TPO are high

20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis

In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)

ALWAYS test early morning, ideally just before 9am, only drink water between waking and test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

Post all about what time of day to test

healthunlocked.com/thyroidu...

Testing options and includes money off codes for private testing

thyroiduk.org/testing/

Medichecks Thyroid plus BOTH TPO and TG antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes BOTH TPO and TG antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

Only do private testing early Monday or Tuesday morning.

Tips on how to do DIY finger prick test

support.medichecks.com/hc/e...

IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 3-5 days before ALL BLOOD TESTS , as biotin can falsely affect test results

endocrinenews.endocrine.org...

In days before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg) and continue separate B12 if last test result serum B12 was below 500 or active B12 (private test) under 70

Victoria27 profile image
Victoria27 in reply toSlowDragon

Thanks and thanks for posting my other results I should’ve added these. I am only taking 10,000iu vit d daily. I had high tpo antibodies back in March and June and normal trab. My antibodies were tested again in December and they were in the normal range. (I haven’t got the numbers as they were tested in hospital, this is just what clinic letters say).

Is it normal to still be having the hypo hyper swings with hashis? I just want to be equipped with information before my consultant appointment so I’m not fobbed off or diagnosed as hyper if I’m not.

SlowDragon profile image
SlowDragonAdministrator in reply toVictoria27

That’s a very high dose of vitamin D

Strongly recommend you get tested asap

NHS easy postal kit vitamin D test £31 via

vitamindtest.org.uk

I had high tpo antibodies back in March and June and normal trab. My antibodies were tested again in December and they were in the normal range.

So suggests Hashimoto’s

Is it normal to still be having the hypo hyper swings with hashis?

Yes very common, especially early on as thyroid breaks down

Essential to test B12, folate and ferritin

Victoria27 profile image
Victoria27 in reply toSlowDragon

Thank you, sorry I’ve just rechecked it’s 1000ui not 10,000ui. But I should get them checked really I’ll mention it or get a private test.

Regenallotment profile image
RegenallotmentAmbassador

Congratulations on your new arrival!

I had post partum after my second child, lasted around 9 months. Was exhausted with daily upset stomach and crippling anxiety. Gave up a good job, moved the family across the country much upheaval could have been avoided of only we’d known more.

GP said I was just typical stressed out Mum of 2 under 3, endo said post partum.

Unmedicated, tested at 3 month intervals levels swinging up and down either side of the normal range . This was 2004. Turned out I had Hashimoto’s all along was diagnosed hypo and autoimmune at 47 in 2021.

As SD suggests find out what your antibodies situation is, that will really help you manage your condition.

Ensure you get plenty of rest and keep stress to a minimum, pull every string you can to have phased return to work or reduced hours if you can manage it. Post partum and Hashimoto’s can both be used as reasons to need time off sick while treatment/medication are sought . Eat well and get lots of sleep. 🤗

SlowDragon profile image
SlowDragonAdministrator in reply toRegenallotment

I also had Hashimoto’s start (or more likely got noticeably worse) 3-6 months after pregnancy

Initially lost weight

GP thought I was hyper …….but was astonished at levels of TPO and TG antibodies.

jgelliss profile image
jgelliss in reply toSlowDragon

I too had the same experience. Shortly after I had my son I lost lots of weight without changing my diet. I was so excited. But it came with palpitations and other symptoms not knowing that this was part of my thyroid journey. And then came the weight piling on without changing my diet. I knew deep down something was wrong but was afraid to say anything.Once all the symptoms started fatigue, itching, freezing when everyone was warm, palpitations etc . I started my Dr visits to no avail. They told me to go to sleep on time exercise. They had all kinds of excuses for all my symptoms.

Trust what your Feeling. It was a Good lesson for me.

Victoria27 profile image
Victoria27 in reply toRegenallotment

Thanks I’ve got a long maternity leave off work so plenty of time to rest (where I can). I think I need to push for hashi’s diagnosis reading into it more as other than heat intolerance (I also have cold intolerance) I don’t “feel” hyper.

SlowDragon profile image
SlowDragonAdministrator in reply toVictoria27

Poor temperature tolerance is classic issue

Usually feeling too cold but significant number suffer from feeling too hot

JuSa44 profile image
JuSa44

I had postpartum thyroiditis after each of my three pregnancies. It started about three months after birth. After my first child, I didn't take meds and my thyroid eventually came right. After the other two children, I needed meds and I took carbimazole which I tapered off after about six months. I am in perimenopause now and I think female hormone changes triggered another hyper episode. Doctors are very siloed in their thinking and they don't consider the link between the various body parts that are so interlinked. I highly recommend you go on meds because it is tiring enough having a little baby and then if your thyroid is off balance, you feel a total wreck ... and then you can't probably savour and enjoy this precious time with your new baby. Don't despair - I think so many people have postpartum thyroiditis but are incorrectly diagnosed with postpartum depression. The symptoms are so similar. All the very best!

Victoria27 profile image
Victoria27 in reply toJuSa44

Thank you for sharing. The endo I’ll be seeing does also go a lot of symptoms as my bloods are very up and down every month, and now I’m longer pregnant I’m happy to try and get the right medication if I need it. (And hope none are contraindicated while breastfeeding)

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