Mega thyroid probs: Out of the blue, became very... - Thyroid UK

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Mega thyroid probs

bugsymalone7 profile image
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Out of the blue, became very ill 10 mins after taking thyroid med used for yrs. TEVA, 12.5. How does that happen? Total pain everywhere, joints, muscles, chest, back. Tried another brand, CRESCENT- angina for 13hrs! Now stuck with trying to get 12.5's in another brand locally,no go... any ideas?

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bugsymalone7
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helvella profile image
helvella

Currently, the only other 12.5 microgram levothyroxine tablet is Crescent.

Absolutely encourage you to put in a Yellow Card report - for each product.

🟨 Making Yellow Card Reports 🟨

healthunlocked.com/thyroidu...

You will have to accept 25 microgram tablets (and there are several makes) and split them. I know that Vencamil tablets split very easily with just the pressure of a thumb. (This is not officially approved in the UK. But the exact same tablets are sold elsewhere with advice that this is OK.)

However, I'd like to know that you have been tested and definitely need such a low dose? A few member seem OK on 25 but most of us need higher doses.

Could something have changed about you? But ten minutes seems pretty fast to notice a thyroid hormone effect. (Not impossible - I have seen someone change dramatically inside that sort of time after taking a tablet.)

helvella - Thyroid Hormone Medicines - UK

The UK document contains:

Up-to-date versions of the Summary Matrixes for levothyroxine tablets, oral solutions and liothyronine available in the UK. These include declared ingredients for all UK-licensed products.

Details of every dosage of each medicine include PL numbers, PIP numbers, tablet markings, product history and links to:

● Patient Information Leaflets

● Summary of Product Characteristics

● Product Assessment Reports

● Dictionary of Medicines and Devices (dm+d) entry and current prices

Document has links to:

● British National Formulary

● NHS Drug Tariff, etc.

PLUS how to write prescriptions in Appendix F.

Also includes links for anti-thyroid medicines (but not product details).

Direct link to PDF:

📄 dropbox.com/s/bo2jzxucgp9hl...

Blog last updated 14/02/2025 - documents are regularly updated

Link to blog:

helvella.blogspot.com/p/hel...

SlowDragon profile image
SlowDragonAdministrator

Welcome to the forum

are you saying that you ONLY take 12.5mcg Levo per day?

Standard STARTER dose of levothyroxine is 50mcg (or 25mcg if over 65 years old)

Levothyroxine doesn’t “top up” your own thyroid, it replaces it

Most people end up on roughly 1.6mcg per kilo of your weight per day…..sometimes a bit less …..sometimes a bit more

What are your most recent thyroid and vitamin results

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

Post all about what time of day to test

healthunlocked.com/thyroidu...

Testing options and includes money off codes for private testing

thyroiduk.org/testing/

Medichecks Thyroid plus BOTH TPO and TG antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes BOTH TPO and TG antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

Only do private testing early Monday or Tuesday morning.

Tips on how to do DIY finger prick test

support.medichecks.com/hc/e...

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