GP wants to stop my Thyroxine I am on 25mgs and... - Thyroid UK

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GP wants to stop my Thyroxine I am on 25mgs and have asked for it to be increased.

359Jay profile image
16 Replies

I really don’t want my Throxine stopped as a matter of fact I have asked for it to be increased . My TSH is 1.15 ( 0.27 - 4.2 )

Free T3 5.5 ( 3.1 - 6.8 )

Free Thyroxine 18.1 (12 - 22 )

I would be so grateful for any advice

My Sisters are on at least 3 times that dose and I weigh 66 kgs

Thank you

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359Jay profile image
359Jay
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16 Replies
TiggerMe profile image
TiggerMeAmbassador

What were your results before starting levo?

What symptoms do you have?

Your levels look surprisingly good for such a small dose?

Free T4 (fT4) 18.1 pmol/L (12 - 22) 61.0%

Free T3 (fT3) 5.5 pmol/L (3.1 - 6.8) 64.9%

T4:T3 Ratio 3.291 

tattybogle profile image
tattybogle in reply toTiggerMe

? metavive

TiggerMe profile image
TiggerMeAmbassador in reply totattybogle

I didn't think she was still using it?

tattybogle profile image
tattybogle in reply toTiggerMe

those results are from post 2mths ago when i think ? she was .

TiggerMe profile image
TiggerMeAmbassador in reply totattybogle

I couldn't tell, it was mentioned she stop taking it and re-test 8 months ago? 🤷‍♀️

Quite impressive results if done on 25mcg and 1 Metavive 2

tattybogle profile image
tattybogle in reply toTiggerMe

see reply below

tattybogle profile image
tattybogle

hi jay , these results are from a couple of months ago.

from previous posts it looks like were you taking 25mcg levo plus some metavive at the time of that test ?

i'm having to guess cos you didn't answer some Q's on previous posts , but looks likely that your levo dose was reduced from 50mcg to 25mcg because there was a test showing low / below range TSH

Aug 2023 ~

TSH level 0.27 mU/L

Thyroid peroxidase AB 67.7 U/ml

if you were taking some metavive as well as levo at time of this test too , then it's is likely that was why TSH was so low , and likely why GP reduced dose.

to give good advice , forum members will need to know if still taking metavive and if so when last dose was taken before any thyroid blood tests.

But why does GP say they want to reduce levo dose further/ stop it ? ...

those test results from 2 mths ago are fine , ie. they don't show any need to stop levo ,because TSH is in range and so is fT4 .

has your GP had other results since then ? is GP aware you were / are taking metavive ?

359Jay profile image
359Jay in reply totattybogle

Still taking Metavive but near impossible to see the GP to discuss having more bloods next Thursday as there’s possibly a kidney abnormality

tattybogle profile image
tattybogle in reply to359Jay

why did the GP say they wanted to remove levo ? and when did they say this to you ?

TiggerMe profile image
TiggerMeAmbassador in reply to359Jay

We seem to be missing the beginning of your treatment, were you previously on a higher dose of Levo and what were your results before adding Metavive? How did you end up on your current regime?

359Jay profile image
359Jay in reply toTiggerMe

Apologies for late reply - An Endocrinologist in London - and an Exceptional Nutritionist here in South Wales - I don’t know my results before starting Levo as I have moved so many times.

GP rather the Receptionist phoned me last week to inform me . I have a GP appointment but it’s weeks away .

TiggerMe profile image
TiggerMeAmbassador in reply to359Jay

That's a shame.... I would imagine the Endo would have put you onto a full replacement dose of Levothyroxine before adding Metavive?

Does your GP know you use Metavive?

359Jay profile image
359Jay in reply toTiggerMe

The Endo that was not sure if I had Graves or not - I came away confused and disappointed for sure …. It’s such a fight to get any one to listen

TiggerMe profile image
TiggerMeAmbassador in reply to359Jay

Did he not do any blood tests? TRAb for Graves... is he NHS?

359Jay profile image
359Jay in reply totattybogle

Honestly not sure - when I see him ~ eventually that he will take much notice of anything I will say . Has anyone had much joy from going to an Endo privately.

tattybogle profile image
tattybogle in reply to359Jay

ok well come back and let us know what he says .

sorry , it's difficult to say anything more useful at the moment as we have too little information

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