Tips needed for Endo Appointment

[makeItHall3n]

Just to update you all since the private blood results. I decided to write to my GP and set out from the start my thyroid journey. To be fair they called me in for another appointment and she decided to seek advice from the local Endo department. They asked to see me and I'm due there next week. I would like to know why my thyroglobulin antibodies are sky high and obviously I need to deal with the osteoporosis having stopped the alendronic acid.

Any tips on how to make the most of this appointment.

[SlowDragon Ambassador]

previous post

healthunlocked.com/thyroidu...

How much levothyroxine are you taking and which brand

You need to retest thyroid and vitamin levels again after working on improving low vitamin D and folate

How much vitamin D are you taking and are you taking vitamin k2 as well

Are you also taking separate magnesium supplement in afternoon or evening at least 4 hours away from Levo

Are you now taking a daily vitamin B complex in morning after breakfast

IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 5-7 days before ALL BLOOD TESTS , as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg)

You should see increase in Ft3 at next test

[SlowDragon Ambassador]

I need to deal with the osteoporosis having stopped the alendronic acid.

Why have you stopped this

[makeItHall3n in reply to SlowDragon]

I stopped every apart from the 125 mg levo ,having gained 2stone and at my wits end . The flakey GP suggested I could, it's after that I then wrote letter saying I needed help as can't ignore Osteoporosis.

[SlowDragon Ambassador in reply to makeItHall3n]

Which brand of levothyroxine

Do you always get same brand

ESSENTIAL to maintain GOOD vitamin levels

Retest now

See where levels are

Also

Get coeliac blood test done via GP or buy online about £20 BEFORE trial on gluten free diet

[makeItHall3n]

Thanks for taking the time to reply Chemist seems to change brands quite regularly. On accord for 100 and crescent for the 25.

The appointment is Monday so probably not enough time now to retest. I did think Endo would asked for bloods to be checked before the appointment but guess that would make too much sense !! I just hope it doesn't turn into another box ticking exercise saying levels are all within range 🤔🤔