I have not posted for a long time as when finally diagnosed in 2016 I learned as much as I could from all the very knowledgeable people here and have not had any doctors appointment since.
At that time I pushed to have my TSH close to 1 or even slightly lower to allow mw to feel human,
To keep this short as not to bore you all, for quite some time my TSH was at this level....at that time I had no idea that my B12 shot would affect the result - I now do not take it for 4 months before bloods
Moving forward I now have osteoporosis (advised due to being over medicated) and taking alendronic acid weekly and now being treated for a nasty cough which they are thinking is caused by silent reflux. Sometimes I wonder what next?
However, my last years bloods(not taking B12) was 3.97 and this year6.98 which explains why I have not been feeling great for quite some time -but afraid to ask for more levothyroxine in case it makes the osteoporosis worse.
I have a telephone appointment with a GP (that I have never met) this week and being that I am symptomatic and have been in varying degrees for at least the last 3 years or so (Hashimotos) Would like some advice as what I should ask etc when speaking to the GP or even argue my corner.
Any advice would be greatly appreciated, have had a few unpleasant appointments regarding thyroid symtoms with them blaming menapause and over eating etc in the past.
Thank you. in advance.
Kid regards
Maud
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Maud04
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With a TSH that high you seem to be under-replaced which would also tie in with the acid reflux which is likely due to low stomach acid and the other symptoms mentioned
You really need a full thyroid panel which includes fT3 & 4 to see where you are, buying a private test thyroiduk.org/testing/priva...
Osteoporosis is just a likely caused by under-replacement which slows bone growth, low oestrogen, Vit D etc etc
Are you using HRT? Have you had your sex hormones tested? Why have they not been giving you annual thyroid tests if they are prescribing?
Request they also test your ferritin, folate, Vit D and B12 levels as stopping B12 jabs for 4 months before testing is extreme and letting your levels drop isn't a good idea
Alendronic acid is renowned for acid reflux and my GP once told me that most can’t tolerate it after 2 years due to this. It burnt my throat and mouth after around that time and I was given alternative treatment. Maybe you could speak to your GP.
Do you always get same brand levothyroxine at each prescription
Guidelines of dose Levo by weight
approx how much do you weigh in kilo
Even if we frequently start on only 50mcg, most people need to increase levothyroxine dose slowly upwards in 25mcg steps (retesting 6-8 weeks after each increase) until eventually on, or somewhere near full replacement dose (typically 1.6mcg levothyroxine per kilo of your weight per day)
Adults usually start with a dose between 50 micrograms and 100 micrograms taken once a day. This may be increased gradually over a few weeks to between 100 micrograms and 200 micrograms taken once a day.
Some people need a bit less than guidelines, some a bit more
If symptoms of hypothyroidism persist despite normalisation of TSH, the dose of levothyroxine can be titrated further to place the TSH in the lower part of the reference range or even slightly below (i.e., TSH: 0.1–2.0 mU/L), but avoiding TSH < 0.1 mU/L. Use of alternate day dosing of different levothyroxine strengths may be needed to achieve this (e.g., 100 mcg for 4 days; 125 mcg for 3 days weekly).
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Any advice would be appreciated
A little help before my appointment would be greatly appreciated! 
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Any advice greatly appreciated 
