New Year Endo Prep

[LadyAbash]

Happy New Year Everyone,

I hope you New Year got off to a better start than mine. I'm here on crutches following a gym injury that is still being investigated. I'm in do much pain, hence my early morning post.

I wanted advice before the Endo appt next week. You may remember that at my last appointment, I was told that now I was no longer caring for my deceased mother, I could have my thyroid removed 😒

Anyway, my position is still the same, NO! My blood results from 6th Jan 25 , I noted that only two tests were requested and not the full range.

Thyroxine (free) 14.3 pmol/L

Range:12 - 22 pmol/L

Previous in October:

12.7 pmol/L

Range:12 - 22 pmol/L

TSH 5.1 mIU/L

Range:0.27 - 4.2 mIU/L

Previous in October:

2.15 mIU/L

Range:0.27 - 4.2 mIU/L

This result tells me that I have moved from being hyper to being hypo? I want to be ready for any suggestion again of removing my thyroid. I am still on 5mg of carbimazole. In all honesty I am not feeling any changes or adverse effects. I am still very active ( apart from my recent injury), slight weight gain but still in my normal range, nothing else to really talk about. Is carbimazole the issue here? Can I stop it for a bit?

Please comment. What would be my best response? I dont know if I will have time to do a private blood test before my appointment next Tuesday as I am having hospital visits for my injury which might also result in an operation.😒

Thank you in advance.

Lady A😁

[Pandora777]

Your TSH is much too high it should be around 1 or lower. You need to reduce the carbimazole or stop taking it for a few days. I am surprised your TSH has risen if i am being honest. What were you originally diagnosed with?

I am a Graves’ disease sufferer and you can read my story on my page

Also do not let your Endocrinologist pressure you into having your thyroid removed I have just read your previous post about the death of your mother I am so sorry for your loss All this stress can affect your thyroid levels My Graves’ was triggered by the death of my best friend who died of a brain tumour at the age of 46 years. I can tell you that time is a great healer and my own mother sadly died when I was 28 and she was 48 There is not a day that goes by that I don’t miss her as your mother is your best friend I am sending you a virtual hug (((hugs)))

I am asking  pennyannie to add her advice

Lora x

[LadyAbash in reply to Pandora777]

Thank you Lora for your speedy response. pennyannie does usually give me great advice as well as others.

I was originally diagnosed with Graves and had been for at least 5 years until one Endo changed my dose of carbimazole to 10mg . Since then, I seem to have become more hypo than hyper before they put me back to 5mg. To me they don't seem to know exactly what they are doing!

Personally, I hate taking tablets so I am quite happy to have a break from carbimazole just to see if it helps.

Thank you for your virtual hug. Sending you one back 🤗 It's much appreciated. I am working through my bereavement through bereavement counselling which I really needed. Sorry for your loss too. Your mother was so young.

All the best

LadyA x

[Pandora777 in reply to LadyAbash]

You should put Graves’ Disease on your profile

Have you tried for remission because now might be a good time to try. Stop taking carbimazole for a couple of weeks and then do a blood test to see if your TSH has dropped

[LadyAbash in reply to Pandora777]

Dear Pandora777,

Thank you for the suggestion

Since I wasn't able to cut my tabs in half , I have opted to stop taking carbimazole for a week or so.

I'm glad that I seem to be on the right track. Thanks

LadyA

[pennyannie]

Hey there again :

Oh my goodness I didn't know keeping fit was so dangerous - I'll stay upright and keep to my walking !!

Your TSH has risen and now above the range - which tends to make me think this phase of Graves is over and your immune system calmed down again -

Your T4 is just 23% through the range - and you'ld likely feel better to try and maintain T4 at around midpoint - say around 17 -

So - what about reducing down the 5mcg Carbimazole to 2.50 mcg with a view to coming off the AT drug and seeing if your thyroid resets itself without the need for any drugs ?

Wishing you better and out of this injury/ discomfort :

[LadyAbash in reply to pennyannie]

Thank you pennyannie! I will try half a tablet from tomorrow.

It looks like my injury might be more serious as I need consultant doctor to do the ultrasound and not a technician. The painkillers are doing their job😁

LadyA

[pennyannie in reply to LadyAbash]

Sorry to read this new piece o information -

Just go slow and take good care -

M'lady - !!

[SlowDragon Ambassador]

Important to test and maintain good vitamin levels too

Regularly retest vitamin D, folate, ferritin and B12

What vitamin supplements are you taking

[LadyAbash in reply to SlowDragon]

Hi SlowDragon

Currently, I am taking vits C with zinc, D, magnesium, (for cramp) and B12. I do take iron periodically but stopped this due to biotin in the brand I had bought ( I forgot to check before buying).

They don't seem to check this for some reason. I will ask them at my appointment next week

Thank you

LadyA

[SlowDragon Ambassador in reply to LadyAbash]

Never supplement iron without doing full iron panel test for anaemia first and retest 3-4 times a year if self supplementing.

It’s possible to have low ferritin but high iron

Test early morning, only water to drink between waking and test. Avoid high iron rich dinner night before test

If taking any iron supplements stop 2-4 days before testing

Medichecks iron panel test

medichecks.com/products/iro...