After Radioactive iodine treatment : Hi lovely... - Thyroid UK

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After Radioactive iodine treatment

Coulby profile image
Coulby
•12 Replies

Hi lovely people🫶

On the 1st of October I had Radioactive iodine treatment for Multinodular Goitre and Hyperthyroidism..I had the 6 wk blood test at "4pm"on Monday 11th Novemer.

Just now I received a phone call from my Specialist saying that my bloods were really good and the RAI had done its job and i will not need Levothyroxine...Of course im extremely happy...My bloods will be redone in 6wks to recheck. My question is..Is this result normal,as I still feel ill.

I don't have the results yet but they will be put on my portal and I will post them when I recieve them...

Can anyone share any answers ?

Happy silly season🎄

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Coulby
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PurpleNails profile image
PurpleNailsAdministrator

What was tested? Do you have results? You still need monitoring for some time.

The full affect can take months. So it isn't guaranteed yet you won't become hypothyroid in the weeks to come. If that's the impression your doctor gave.

If your levels have just altered symptoms take time to completely resolve.

First you need to ensure your levels are stable and optimal then symptoms improve. It doesn't happen straight away.

Coulby profile image
Coulby• in reply toPurpleNails

T4 and 3 were tested...I specifically asked it I will be taking Levo and her reply was no you will not 🤷

Jazzw profile image
Jazzw• in reply toCoulby

Ideally you need to know what the blood test results actually were, together with their laboratory reference ranges.

As PurpleNails has said, it takes a while for the effects of RAI to fully show themselves, so if you continue to feel awful, it would be a good idea to ask for repeat blood tests.

Coulby profile image
Coulby• in reply toJazzw

Thanks for that...IL post them as soon as they arrive.arrive.She also said we will have you right by Christmas

Jazzw profile image
Jazzw• in reply toCoulby

Well, she may well be right, so it’s good to stay optimistic.

Coulby profile image
Coulby• in reply toJazzw

Yes indeed x

SlowDragon profile image
SlowDragonAdministrator

For full Thyroid evaluation you need TSH, FT4 and FT3 tested

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test

This gives highest TSH and most consistent results.

were these tested BEFORE you had RAI ?

Coulby profile image
Coulby• in reply toSlowDragon

No they were not..I requested and was scripted for D3 monthly and B12 injections and the blood test just don't was at 4pm ??

SlowDragon profile image
SlowDragonAdministrator• in reply toCoulby

Yes far too late in day ….get hold of actual results

See exactly what has been tested and what results are

Retest at 8-9am

Get vitamin levels tested at next test

Coulby profile image
Coulby• in reply toSlowDragon

Thankyou...I will do exactly that 🌻

Keys2theworld profile image
Keys2theworld

I had the RAI treatment and it worked for me. After the the first few weeks it all settled down. As my thyroid was effectively 'killed off' I take Levothyroxine daily at 80mg. This works for me.

Coulby profile image
Coulby• in reply toKeys2theworld

thanks for that...The bit I don't understand is she said I don't have to have Levo. ??

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