Hi, I was diagnosed with Graves’ disease around May. I’m on 50 mg PTU daily. I was hoping to find out what’s considered crucial vitamins etc required to support myself through this. I take high strength vitamin D3.
Recent bloods showed B12 (normal range 197-771) mine was 357.
Folate (range is 3.9-26.8) mine was 5.
New symptoms lately of low energy and motivation, tiredness, increased appetite, weight gain, disturbed sleep. Already had anxiety and tingling pins and needles.
Thanks in advance.
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Kiki_76
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50mg PTU is a really low dose, equivalent to 5mg carbimazole.
I would ensure you obtain copies of antibodies results & uptake scan report. You may not have continuous hyper Graves & antithyroid may be lowing levels too much.
TSI or Trab antibodies signify Graves. TPO & TG are thyroid autoimmune & not unique to Graves
You should have had a thyroid function retest 6 weekly until results consistently stable then ok to test 3 monthly. You were only diagnosed may.
Your folate is low, & B12 could be raise as not optimal. Are these recent test?
We generally suggest first concentrating on the core strength vitamins and minerals -
ferritin, folate, B12 and vitamin D as detailed previously -
Did you speak to the endo regarding trying Block & Replace ?
Have the symptoms in your legs eased at all -
Didn't the endo suggest stopping the PTU for a week to see if these pins and needle type symptoms were caused by the AT drug -
did you do this and what was the conclusion ?
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