hi all thank your letting me join x x
Can anyone advise me I had thyrotocosis and was told it was getting better after a lot of scans etc I have received a letter saying
They have booked a telephone appoint with a clinical nurse specialist ( endocrinology )
Can any one advise me what this could be for please as I looked what a CNS nurse was and it confused me more
So any advise would be great
Thanks you all
Welcome to the forum
Presumably this appointment is to discuss your current symptoms and recent blood tests
Have you got copies of test results
How do you feel
Are you currently taking any medication
Bloods should be retested 6-8 weeks after each dose change
For full Thyroid evaluation you need TSH, FT4 and FT3 tested
Also both TPO and TG thyroid antibodies tested at least once
And if hyperthyroid TSI or Trab antibodies tested
Very important to test vitamin D, folate, ferritin and B12 at least once year minimum
Low vitamin levels are extremely common with autoimmune thyroid disease
For good conversion of Ft4 (levothyroxine) to Ft3 (active hormone) we must maintain GOOD vitamin levels
What vitamin supplements are you taking
Also VERY important to test TSH, Ft4 and Ft3 together
Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins
Post all about what time of day to test
healthunlocked.com/thyroidu...
Testing options and includes money off codes for private testing
Medichecks Thyroid plus BOTH TPO and TG antibodies and vitamins
medichecks.com/products/adv...
Blue Horizon Thyroid Premium Gold includes BOTH TPO and TG antibodies, cortisol and vitamins
bluehorizonbloodtests.co.uk...
Only do private testing early Monday or Tuesday morning.
Link about thyroid blood tests
thyroiduk.org/testing/thyro...
Tips on how to do DIY finger prick test
support.medichecks.com/hc/e...
Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee
Hi many thanks for your response I have had a lot of test done as I had no tsh levels for a long time they was below <0 I have a lot of scans done and breathing tests my last scan was a nuclear medical scan where they injected me with radio active solution but I had a letter saying my thyroid soaked up the solution so was ok I am taking carbamizole for my thyrotoxixosis for another yr then being taken off them to see if it comes back I already have pernicious anemia b12/folate defiency due to the anti par cell antibody I’m also iron defiency and vitam D one of the letters said I was at risk of end of life organ failure so the letter saying a clinical nurse specialist scares me a lot as I know most Cns nurse deal with cancers my fbc is also very bad as I have high wbc and it’s not good with my ET
Many thanks for any advise or help
Thank you Michelle
Just testing TSH is completely inadequate
You ALWAYS need TSH, Ft4 and Ft3
Please add most recent vitamin results
Say exactly what vitamin supplements you are taking
Hi thank you so much for taking a look at my results I also have factory laiden with a hetro mutation , protium s and protein c defiency , essential thrombocytopenia multiple lung nodules on both lungs ,
I currently take
folic acid,
iron pills
vitamin D supplements
Hydrocababalom B12 injections
I have a lot of other illness as well and take other medications , it’s so frustrating as I’m not getting better or any real answers and as I have children it’s important for me to know so once again thank you so much for any advice you can give me
thank you
t4
es rate
I also feel very unwell I have infections on my chest every month pains by my lungs and I sweating very bad day and night a cold clammy sweat but taking the
Amount of steroids and antibiotics I am taking are not good for me
I have b12 injections every 2 mths as it was so low it gave me epilepsy I take folic acid iron and vit d every day
Once again
Thanks you
Free T4 (fT4) 14 pmol/L (9 - 19) 50.0%
Free T3 (fT3) 6.1 pmol/L (2.4 - 6) 102.8%
Ft4 is now only mid range, but Ft3 still on high side
Are you currently taking any medication for thyroid eg propranolol or Carbimazole
Have you had thyroid antibodies tested
TPO and TG antibodies for Hashimoto’s and Graves’ disease
TSI or Trab for Graves’ disease
Hashimoto’s frequently starts with transient hyperthyroid results and symptoms before becoming increasingly hypothyroid
Thank you so much this helps a lot I had all of the attched test done but they are not sure why I have it as it just came on also is a thyroid uptake test where you drink a solution and medicine nuclear ct scan where they inject a radio active solution and use a special gamma camera the same thin sorry for the questions I appreciate you taking the time but your answers are clear to the point and it helps me understand a lot better
Thank you
Useless report
It says it tested Thyroid antibodies and result was just above range at 7 (2.4-6)
It doesn’t say WHICH antibodies were tested
TSI or Trab antibodies for Graves’ disease
Or
TPO or TG antibodies for Hashimoto’s
Can anyone advise me please.....just read article on Tap water.I
please can someone advise?
Can anyone advise me ......?
