Converting T4 to T3: I don't seem to be... - Thyroid UK

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Converting T4 to T3

Lolalottie profile image
12 Replies

I don't seem to be converting to T3 aswell as I did and was wondering if anyone had tried this? It is supposed to help with this. Ingredients in comments.

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Lolalottie
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12 Replies
Lolalottie profile image
Lolalottie

Ingredients

Ingredients
Regenallotment profile image
Regenallotment in reply to Lolalottie

I wouldn’t personally on account of the phenylalanine (legal speed) I can’t deal with that in a lemsip 🙄 it’s like caffeine x10 for me.

I’ve had some success with L glutamine on its own. Very soothing on my poor leaky gut early in my diagnosis.

I tried BCAAs Branched Chajn Amino Acids when I started working out but they upset my stomach. Creatine seems to be OK though.

I’ve tried protein powders, hemp and pea give me wind, collagen started having traces of milk so no good for me (dairy allergy). Best bet for me now is bone broth and healthy diet with lots of protein and veg.

I get T3 from Roseway Labs. £60 for 100x20mcg tablets which lasts me about 5 months.

🌱

Bertwills profile image
Bertwills in reply to Regenallotment

Hi, just to remind anybody with allergy or histamine problems, bone broth is a high histamine food so might not suit everybody. If that’s not a problem for you then it’s great stuff.

SilverSavvy profile image
SilverSavvy in reply to Regenallotment

How do you get your T3 from Roseway RA? Do you need at prescription and what type do they let you have? I'm on Mercury but my CCG is kicking up now and I'm so sick of the battle I'm thinking of just buying it myself. I've heard folks mentioning Roseway before....

Plus: do you have this put on your NHS notes - I've heard so many tales of folks having a crisis due to completely unrelated matters and ending up in A&E only to be denied it by hospitals because it's not on their medical notes.

Regenallotment profile image
Regenallotment in reply to SilverSavvy

Yes I use Roseway Labs. You have an initial phone appointment (£50) plus forms before hand and do your own private thyroid panel results and give them the numbers. The call is with a Pharmacist prescriber, who happens to have a huge amount of experience with thyroid patients. The prescriber will discuss and listen then make a recommendation and once you are happy and have discussed costs, they will send you an email payment link and an email that is a digital prescription for your records. Arrives by Royal Mail special delivery in a few days (no delivery charge) follow up appointments are £30 happy once stable they are happy to leave it 9 months and will do a repeat prescription with an email request, no appointment necessary.

There is a booking button on their website.

In the mean time you can email any worries and questions and they will deal with those for free, or if it’s too complex May ask you to make an appointment.

They are happy to notify NHS GPs and on their most recent paperwork have a checkbox saying that for your benefit they may share your information with the names GP you have specified. This changes nothing at the GP end. My GP knows and just nods. They do get a bit iffy about TSH but I just say I’m taking private T3 and have no hyper symptoms and they seem to accept that.

They are a compounding pharmacy, so can make their own Levo and lio and use specialist fillers for folks with intolerances. They can also prescribe and dispense branded T4 and T3 but all has to be paid for. 100 tablets of 20 mcg T3 from thybon henning cost me £60 this week and will last me 5+ months.

I trust them completely, they’ve been super supportive and helped me through a Hashi flare/over replaced in 2023 and now settled, the prescriber has for the first time said , ‘ I don’t want your levels any higher’ , which I actually found reassuring. I think I sometimes need saving from myself 🤦🏽‍♀️

Hope that helps, let me know if you still have questions. 🌱

jimh111 profile image
jimh111

It's just incredibly expensive manufactured protein. Uses claims like "supports" thyroid function, a meaningless phrase which can't be challenged. A peanut will contain more protein.Have you ever been able to try a little liothyronine? It might help.

SlowDragon profile image
SlowDragonAdministrator

Looking at your previous post

healthunlocked.com/thyroidu...

Poor conversion……you likely need T3 prescribed alongside levothyroxine

Retest after 8 weeks on current dose levothyroxine. Likely Ft3 will have dropped even further

Here’s link for how to request Thyroid U.K.list of private Doctors emailed to you, but within the email a link to download list of recommended thyroid specialist endocrinologists who will prescribe T3

Ideally choose an endocrinologist to see privately initially and who also does NHS consultations

thyroiduk.org/contact-us/ge...

Carysta profile image
Carysta

I haven’t tried this but have noticed a reduction in T4 to T3 conversion and am trying selenium as have read that it is useful. Brazil nuts are high in selenium but too oily for me to tolerate so take drops

Only feedback I can give at present is that my energy levels are better but that could also be other factors

jimh111 profile image
jimh111 in reply to Carysta

If a deficiency such as selenium deficiency reduced your deiodinase (conversion) then it would affect pituitary T4 to T3 conversion and TSH would go very high.

Hashihouseman profile image
Hashihouseman

with the possible exception of genuine selenium deficiency I doubt there are any supplements or nutrients which have anywhere near the profound effect as getting the right dose of thyroid replacement at the right time. By this I mean optimising T4 replacement by wherever possible splitting that dose to physiologically normal amounts e.g. 25 µg per dose X times a day giving the optimal amount in total.. that helped me a lot but even then my conversion was not sufficient, improved but not sufficient. The only thing that really works for people that don't convert with the upmost efficiency is split dose of T4 plus split dose of T3 about 10% T3 to T4. Hope this helps.

SilverSavvy profile image
SilverSavvy in reply to Hashihouseman

When you say split doses of both, you mean split them to half of both and take twelve hours apart over the course of the day?

Hashihouseman profile image
Hashihouseman in reply to SilverSavvy

I split my doses into three, splitting them into half makes the doses too big and I find them disruptive. Yes taking them three times over 24 hours can be a nuisance particularly in dividing the doses of very tiny pills! However the benefit in smoothing out the effects of the medication are worth it. I take roughly 1/4 of the dose in the middle of the night! And then I split the other 3/4 between 6 am and 2 pm; these times I have found through trial and error to give the best effect and they sort of match the circadian rhythm for thyroid hormones.

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