Converting T4 to T3: I don't seem to be... - Thyroid UK

Thyroid UK

141,246 members166,490 posts

Converting T4 to T3

Lolalottie profile image
18 Replies

I don't seem to be converting to T3 aswell as I did and was wondering if anyone had tried this? It is supposed to help with this. Ingredients in comments.

Written by
Lolalottie profile image
Lolalottie
To view profiles and participate in discussions please or .
Read more about...
18 Replies
Lolalottie profile image
Lolalottie

Ingredients

Ingredients
Regenallotment profile image
RegenallotmentAmbassador in reply toLolalottie

I wouldn’t personally on account of the phenylalanine (legal speed) I can’t deal with that in a lemsip 🙄 it’s like caffeine x10 for me.

I’ve had some success with L glutamine on its own. Very soothing on my poor leaky gut early in my diagnosis.

I tried BCAAs Branched Chajn Amino Acids when I started working out but they upset my stomach. Creatine seems to be OK though.

I’ve tried protein powders, hemp and pea give me wind, collagen started having traces of milk so no good for me (dairy allergy). Best bet for me now is bone broth and healthy diet with lots of protein and veg.

I get T3 from Roseway Labs. £60 for 100x20mcg tablets which lasts me about 5 months.

🌱

Bertwills profile image
Bertwills in reply toRegenallotment

Hi, just to remind anybody with allergy or histamine problems, bone broth is a high histamine food so might not suit everybody. If that’s not a problem for you then it’s great stuff.

SilverSavvy profile image
SilverSavvy in reply toRegenallotment

How do you get your T3 from Roseway RA? Do you need at prescription and what type do they let you have? I'm on Mercury but my CCG is kicking up now and I'm so sick of the battle I'm thinking of just buying it myself. I've heard folks mentioning Roseway before....

Plus: do you have this put on your NHS notes - I've heard so many tales of folks having a crisis due to completely unrelated matters and ending up in A&E only to be denied it by hospitals because it's not on their medical notes.

Regenallotment profile image
RegenallotmentAmbassador in reply toSilverSavvy

Edit 21.9.24:

Unfortunately since writing this post we’ve discovered Roseway Labs have updated their policies and will no longer initiate a T3 private prescription. Existing patients unaffected. New patients will need to see a private doctor or endocrinologist and Roseway will fulfil the private prescription.

Yes I use Roseway Labs. You have an initial phone appointment (£50) plus forms before hand and do your own private thyroid panel results and give them the numbers. The call is with a Pharmacist prescriber, who happens to have a huge amount of experience with thyroid patients. The prescriber will discuss and listen then make a recommendation and once you are happy and have discussed costs, they will send you an email payment link and an email that is a digital prescription for your records. Arrives by Royal Mail special delivery in a few days (no delivery charge) follow up appointments are £30 happy once stable they are happy to leave it 9 months and will do a repeat prescription with an email request, no appointment necessary.

There is a booking button on their website.

In the mean time you can email any worries and questions and they will deal with those for free, or if it’s too complex May ask you to make an appointment.

They are happy to notify NHS GPs and on their most recent paperwork have a checkbox saying that for your benefit they may share your information with the names GP you have specified. This changes nothing at the GP end. My GP knows and just nods. They do get a bit iffy about TSH but I just say I’m taking private T3 and have no hyper symptoms and they seem to accept that.

They are a compounding pharmacy, so can make their own Levo and lio and use specialist fillers for folks with intolerances. They can also prescribe and dispense branded T4 and T3 but all has to be paid for. 100 tablets of 20 mcg T3 from thybon henning cost me £60 this week and will last me 5+ months.

I trust them completely, they’ve been super supportive and helped me through a Hashi flare/over replaced in 2023 and now settled, the prescriber has for the first time said , ‘ I don’t want your levels any higher’ , which I actually found reassuring. I think I sometimes need saving from myself 🤦🏽‍♀️

Hope that helps, let me know if you still have questions. 🌱

SilverSavvy profile image
SilverSavvy in reply toRegenallotment

Thank you...that's incredibly helpful.

wolthebuilder profile image
wolthebuilder in reply toRegenallotment

hi there, im a bit late to this message! I was hoping to get a T3 prescription from Roseway, so am i to understand that they can not prescribe it anymore with out a dr s say so or can you still buy it from them? Only docs have lowered my T4 twice and my levels aren't moving (i had Thyroid Cancer 18 years ago and have been suppressed ever since which now been told isn't any good for me) they've lowered dose twice now but my levels are hardly moving so ive been told to try T3 which i was hoping to get from Roseway.

Thanks in advance

tattybogle profile image
tattybogle in reply towolthebuilder

wolfthebuilder ~ see this recent post ~ (email from roseway clarifying their policy) : healthunlocked.com/thyroidu...

jimh111 profile image
jimh111

It's just incredibly expensive manufactured protein. Uses claims like "supports" thyroid function, a meaningless phrase which can't be challenged. A peanut will contain more protein.Have you ever been able to try a little liothyronine? It might help.

SlowDragon profile image
SlowDragonAdministrator

Looking at your previous post

healthunlocked.com/thyroidu...

Poor conversion……you likely need T3 prescribed alongside levothyroxine

Retest after 8 weeks on current dose levothyroxine. Likely Ft3 will have dropped even further

Here’s link for how to request Thyroid U.K.list of private Doctors emailed to you, but within the email a link to download list of recommended thyroid specialist endocrinologists who will prescribe T3

Ideally choose an endocrinologist to see privately initially and who also does NHS consultations

thyroiduk.org/contact-us/ge...

Carysta profile image
Carysta

I haven’t tried this but have noticed a reduction in T4 to T3 conversion and am trying selenium as have read that it is useful. Brazil nuts are high in selenium but too oily for me to tolerate so take drops

Only feedback I can give at present is that my energy levels are better but that could also be other factors

jimh111 profile image
jimh111 in reply toCarysta

If a deficiency such as selenium deficiency reduced your deiodinase (conversion) then it would affect pituitary T4 to T3 conversion and TSH would go very high.

Hashihouseman profile image
Hashihouseman

with the possible exception of genuine selenium deficiency I doubt there are any supplements or nutrients which have anywhere near the profound effect as getting the right dose of thyroid replacement at the right time. By this I mean optimising T4 replacement by wherever possible splitting that dose to physiologically normal amounts e.g. 25 µg per dose X times a day giving the optimal amount in total.. that helped me a lot but even then my conversion was not sufficient, improved but not sufficient. The only thing that really works for people that don't convert with the upmost efficiency is split dose of T4 plus split dose of T3 about 10% T3 to T4. Hope this helps.

SilverSavvy profile image
SilverSavvy in reply toHashihouseman

When you say split doses of both, you mean split them to half of both and take twelve hours apart over the course of the day?

Hashihouseman profile image
Hashihouseman in reply toSilverSavvy

I split my doses into three, splitting them into half makes the doses too big and I find them disruptive. Yes taking them three times over 24 hours can be a nuisance particularly in dividing the doses of very tiny pills! However the benefit in smoothing out the effects of the medication are worth it. I take roughly 1/4 of the dose in the middle of the night! And then I split the other 3/4 between 6 am and 2 pm; these times I have found through trial and error to give the best effect and they sort of match the circadian rhythm for thyroid hormones.

SilverSavvy profile image
SilverSavvy in reply toHashihouseman

Wow...that is dedication. But I agree with you about too much T3 in one go. If I take all of mine in one dose at start of day, I get too whizzy. But if I take it half and half then I don't sleep. So maybe split three ways wd work for me too. It's a business trying to get it right so congratulations on working out what is correct for you.

SlowDragon profile image
SlowDragonAdministrator in reply toHashihouseman

I prefer splitting T3 as 4 doses of 5mcg

I find it’s smoother and timings more convenient

6.30am, 11am, 5.30pm and 11pm

Hashihouseman profile image
Hashihouseman in reply toSlowDragon

20mcg of T3 would blow my socks off :). (Of course I understand we all have individual needs and solutions) I can feel even a 10% change in T3 within hours and this is compounded over days, although it is much much quicker to correct than messing about with T4.

Not what you're looking for?

You may also like...

Trouble converting T4 to T3

Hi I am new, I am planning to order the DI02 test since I have trouble converting T4 to T3. Is this...
Rosa18 profile image

NOT CONVERTING T4 TO T3

ANYONE WITH THIS SITUATION?
Caper12 profile image

Am I converting T4 to T3?

I still have terrible fatigue and can't lose weight, even though I diet and exercise every day. My...
Mitsy123 profile image

Converting T4/T3 combo therapy to NDT ...

I’ve read a few historical posts on these points and I’m struggling to get my brain round the...
Pamela0106 profile image

Am I converting T4 to T3 adequately?

Do I need T3 now? I'm currently taking 100mcg Levo and have felt so normal for around 9 months...
msmono profile image

Moderation team

See all
PurpleNails profile image
PurpleNailsAdministrator
Jaydee1507 profile image
Jaydee1507Administrator
SlowDragon profile image
SlowDragonAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.