test results : when I now have my thyroid blood... - Thyroid UK

Thyroid UK

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test results

Tina51 profile image
20 Replies

when I now have my thyroid blood test taken they are sent to thyroid Uk with special forms. All I get back from TUK is ok keep taking 100mg etc. I can see results for online Airmid etc but no one ever discusses with me do go I just okie along until I have another crisis? I really don’t understand the messages on here eg taking T3 or 4 or TSH results etc etc when I have asked before medics have looked at me as though I’m stupid for not knowing what’s what. No I'm asking for education/knowledge please don’t respond stating read the blogs etc as they don’t really help me. Past advice here then taken to GP has earned me more bad markers on my record I believe.

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Tina51 profile image
Tina51
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20 Replies
greygoose profile image
greygoose

What exactly do you want to know? You only have to ask. :)

Tina51 profile image
Tina51 in reply togreygoose

is this supposed to be a reply to me???

greygoose profile image
greygoose in reply toTina51

Why would you doubt it?

Tina51 profile image
Tina51 in reply togreygoose

I couldn’t follow the thread at the time. Sorry if I’ve offended you I didn’t mean to .

greygoose profile image
greygoose in reply toTina51

No, I'm not offended. :) I just thought it was a strange reply because I replied on your thread so who else would it be for?

You keep saying you don't understand this, that, and the other. So, I thought you might want further explanations- which would be no problem at all, just ask. :)

Tina51 profile image
Tina51 in reply togreygoose

22nd July test 100mg

Thyroid function test

Serum free T4 level 17.9 pmol/L [11.5 - 22.7]; Please note change to method-specific reference range

from 10th April 2024

Serum TSH level 0.39 mIU/L [0.55 - 4.78]; Please note change to method-specific reference range

from 10th April 2024; Outside reference range

…….But no one contacted to explain and thyroid uk feedback letter just stated keep taking 100mg do my tests seem ok ? I’m having lots of dizzy spells which A&E after fall which resulted in broken nose skinned face& knees and split forehead suggested I was to be referred to fall clinic but GP response was wait until neuro results for ‘Knee’ condition is in which might be next year appointments have told me after last scan M..it’s all complicated I know

greygoose profile image
greygoose in reply toTina51

Serum free T4 level 17.9 pmol/L [11.5 - 22.7];

That is only 57.14% through the range. That is low. Most hypos need it around 75%.

I don't understand what you mean by the 'thyroid uk feedback letter', what is that? Whatever it is, and whoever it was, they should have recognised that you needed an increase in dose.

Serum TSH level 0.39 mIU/L [0.55 - 4.78];

That is ok, but a TSH reading on its own doesn't give us much useful information. Admittedly is was below range, but that is pretty much irrelevant. TSH is not a thyroid hormone. Was that result from the same test as the FT4 above?

Have you had your nutrients tested: vit D, vit B12, folat and ferritin? Dizzy spells can be caused by low B12. But it's rare to find a doctor that understands the importance of vit B12.

Tina51 profile image
Tina51 in reply togreygoose

thyroid uk feedback letter that’s the letter I get from Thyroid Uk after my bloods have been examined by their lab.

greygoose profile image
greygoose in reply toTina51

I wonder if you're not getting a little confused there, because I'm pretty certain Thyroid UK don't have a lab and don't do blood tests. Did you perhaps mean Medichecks, or some other blood testing company?

Tina51 profile image
Tina51 in reply togreygoose

copy of letter recd. NHS not private.

Copy of letter nhs not private
greygoose profile image
greygoose in reply toTina51

Well, that letter has nothing to do with Thyroid UK. It's from the hospital and they know nothing about thyroid so wouldn't understand why 100 mcg is not a high enough dose.

Tina51 profile image
Tina51 in reply togreygoose

Ouch

Tina51 profile image
Tina51 in reply togreygoose

Yes. All above results were given 22nd. Not had other bloods taken via GPB except for A&E admission following Head trauma.

Buddy195 profile image
Buddy195Administrator

3months ago:

FT4: 14.4 pmol/l (Range 9 - 25)

Ft4 only 33.75% through range

Was this past result on 75mcg Levothyroxine?

Can you share your current thyroid blood test on 100mcg Levothyroxine?

Tina51 profile image
Tina51 in reply toBuddy195

is this supposed to be a reply to me???

Buddy195 profile image
Buddy195Administrator in reply toTina51

Yes. I found the blood test results from your post 3 months ago and was asking whether the test at this time was on 75mcg Levo.

It would be helpful if you could also share your most recent results, then members can better advise.

Tina51 profile image
Tina51 in reply toBuddy195

Oh sorry no back at 100.

Tina51 profile image
Tina51 in reply toBuddy195

Last test Have booked appointment with GP tomorrow

Thyroid function test

Serum free T4 level 17.9 pmol/L [11.5 - 22.7]; Please note change to method-specific reference range

from 10th April 2024

Serum TSH level 0.39 mIU/L [0.55 - 4.78]; Please note change to method-specific reference range

from 10th April 2024; Outside reference rang

Buddy195 profile image
Buddy195Administrator

As greygoose , I would press for key thyroid vitamins to be tested if you haven’t had these results for a while.

If you have adverse symptoms related to hypothyroidism, I would ask for an increase in Levo to get FT4 higher in range. If GP reluctant (due to slightly low TSH), ask for a full thyroid test (ie one that includes FT3) as a next step.

Tina51 profile image
Tina51 in reply toBuddy195

Thank you I will when I talk with him tomorrow 👍

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