Does everyone eventually feel better on T3 only - Thyroid UK

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Does everyone eventually feel better on T3 only

TJM3 profile image
TJM3
13 Replies

Hi, 6 weeks ago I decided to try T3 only after still feeling tired on T4/T3 combo.

I was taking 18.75 T4 and 17.5 T3 and didn't feel great, but when I started T3 only I

increased it slowly and am now taking 22.5mcg @ 5.30am another 5 @ 11.30 and

5 @ 4.30. At first I felt a little better, my brain fog cleared and my pain was a little better,

but now I'm so tired and have terrible sweats, I also feel sometimes as though I'm out

of breathe. I sing in a choir and found myself breathless and felt like I was going to pass

out.

Has anyone else had this happen to them, I don't know whether to give up or carry on.

I am on the Recovering T3 FB, but wanted others opinion too.

Thank you.

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13 Replies
humanbean profile image
humanbean

There is no guarantee that everyone will feel well on T3. Some people have to have T4 in the mix too.

But your dose is really quite small. A total of 32.5mcg per day would not be enough for many people. It's probably equivalent to about 100mcg T4 or possibly even less.

Another issue of course, is what brand of T3 are you taking? I know that UK T3 has a reputation for being weak and unreliable in strength. Perhaps you have been given a dodgy batch.

TJM3 profile image
TJM3 in reply to humanbean

Hi humanbean,

Thank you for replying, I'm taking the Thybonn Henning T3 from Germany, the Cytomel is too expensive.

Perhaps I should just increase it and see what happens, but it's a bit of a worry as I know we have to be careful not to have too much, but I can't carry on like this, I'm exhausted and look ill.

I don't know how long I should keep trying for, before I go back to T4/T3.

My GP told me to only take 75mcg T4, he says that's all I need, no wonder I was really poorly on just that.

Thanks again.

humanbean profile image
humanbean in reply to TJM3

Do you monitor your temperature, your heart rate and your blood pressure? They can give helpful clues about what is going on. If your temperature before you get out of bed in the morning has risen above normal, then you have over-done the T3. A fast pulse and/or high BP can indicate a possible over-dose as well.

You might find this helpful :

drrind.com/therapies/metabo...

TJM3 profile image
TJM3 in reply to humanbean

Yes I do, my pulse is actually only mid to late 60's before I get up, my temperature has got better it can be 36.5, but today it was 36.2. My pressure is better as well, it was 104/56 this morning, so that's ok.

Thanks for the link.

humanbean profile image
humanbean in reply to TJM3

On the basis of those numbers, if they were mine, I would assume I was unlikely to be over-dosed, and therefore I had room for manoeuvre in raising it.

Hope it works for you, and you find your "sweet spot". :)

TJM3 profile image
TJM3 in reply to humanbean

Thank you, I think I will try and up it a little and see what happens.

Thanks again. :-)

Clutter profile image
Clutter

TJM3, I suggest you have a FT3 test to check you aren't overmedicated. 32.5mcg is equivalent to 97.5mcg T4.

thyroiduk.org.uk/tuk/testin...

thyroid.about.com/od/thyroi...

TJM3 profile image
TJM3 in reply to Clutter

Ok Clutter, that's a good idea, thank you.

TJM3 profile image
TJM3

I've tried the NDT and that really didn't suit me, I've tried

it twice, but have no luck with it, but thank you anyway.

TJM3 profile image
TJM3

Oh right, I've heard about the D 102 Gene, that would explain the Thyroxine T4 conversion to T3 as well then because I don't convert well to T3.

I don't have any in date NDT, sorry, but thank you for the thought.

TJM3 profile image
TJM3

16 months and there's only 10 left, I should have thrown them away, I forgot about them.

TJM3 - it took a year before I felt any benefit of taking T3. The longer you've been ill the longer it will take to recover.

Make sure vitamins and minerals are good, for me the breathlessness was attributed to low zinc. My lungs will now open completely.

TJM3 profile image
TJM3 in reply to

Oh right, that was a long time to feel any benefit, I have been ill for years so I suppose it will take a while then.

I have a feeling that my zinc is low, I was only talking about it last night, saying I think I should get it checked.

I'm glad you're feeling better and thank you for your comment.

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