A lot to learn!: Hi everyone. I’m very new to... - Thyroid UK

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A lot to learn!

Babyelephant- profile image
4 Replies

Hi everyone. I’m very new to this and could do with a bit of help as I feel there’s a lot to learn and I want to be able to help myself. Earlier this year I realised I had a swelling on the front of my neck. I was put on the cancer pathway and following an ultrasound was told it was a benign cyst but I also had a suspicious nodule on the other side of my thyroid. No cancer showed in the biopsy but they couldn’t be sure what it was and because of the size of the cyst I decided to opt for a total thyroidectomy. It was done really quickly, June 13th, and I went straight onto 125mcg levothyroxine. I haven’t had results for the nodule yet.

Both times I’ve received two different brands of tablets for my prescription, 100mcg of one and 25mg of another, eg crescent and teva. Does this matter?

My first blood test to check if I’m on the right dose of levothyroxine is Thursday at 9.40 am. From reading on here I think I should not take my tablets before my blood test. Have I got that right?

Thank you for reading xx

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Babyelephant-
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helvella profile image
helvellaAdministratorThyroid UK

That's a lot to pack into a short time!

Hopefully you'll find the answers in my blog links below.

Mixing makes is sometimes unavoidable.

And you are right not to take your levothyroxine before the blood draw.

helvella - Mixing Levothyroxine Formulations

A discussion about mixing (and switching) formulations of levothyroxine.

Last updated 18/07/2024

helvella.blogspot.com/p/hel...

helvella's medicines documents (UK and Rest of the World) can be found here:

helvella - Thyroid Hormone Medicines

helvella has created, and tries to maintain, documents containing details of all thyroid hormone medicines in the UK and, in less detail, many others around the world. There is now a specific world desiccated thyroid document.

I highly recommend viewing on a computer screen, or a decent sized tablet, rather than a phone. Even I find it less than satisfactory trying to view them on my phone.

helvella - Thyroid Hormone Medicines - UK

The UK document contains up-to-date versions of the Summary Matrixes for levothyroxine tablets, oral solutions and also liothyronine available in the UK. Includes injectables and descriptions of tablet markings which allow identification. Latest updates include all declared ingredients for all UK products and links to Patient Information Leaflets, etc. PLUS how to write prescriptions in Appendix F.

dropbox.com/s/bo2jzxucgp9hl...

helvella - World Desiccated Thyroid

Contains details of all known desiccated thyroid products including information about several products not considered to be Natural Desiccated Thyroid (NDT/Desiccated Thyroid Extract/DTE).

dropbox.com/scl/fi/gx6dmz5i...

helvella - Thyroid Hormone Medicines - RotW

Contains details of all levothyroxine, liothyronine and combination products - excluding desiccated thyroid products. Details available vary by country and manufacturer.

dropbox.com/s/dliou4fszbegw...

The link below takes you to a blog page which has direct links to the documents from Dropbox and QR codes to make it easy to access from phones. You will have to scroll down or up to find the link to the document you want.

Last updated 19/07/2024

helvella.blogspot.com/p/hel...

helvella - Scheduling Blood Draws

Factors to consider when choosing time for blood draws. Includes links to several documents/webpages and previous HealthUnlocked posts.

Last updated 18/07/2024

helvella.blogspot.com/p/hel...

Babyelephant- profile image
Babyelephant- in reply to helvella

Thank you, I’ll have a read and try to take it all in! Also, will the health centre just test for the TSH level? Would I be best to do my own test for vitamins etc? I only had one thyroid blood test at the beginning of all this and haven’t really had a chance to get my head around everything I’ll need to know.

helvella profile image
helvellaAdministratorThyroid UK in reply to Babyelephant-

Who knows?

I think we all wish they'd test TSH, FT4 and FT3 - every time. But all too often it is just TSH.

You can ask the person doing the blood draw - but they might be unsure and unable to make any changes.

You might well find you have to get some tests done yourself in order to get everything.

Babyelephant- profile image
Babyelephant- in reply to helvella

That’s great, thank you for your help x

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