I was diagnosed with Hashimoto's in my early 30s and have been "managed" with levo by my GP.
It was never that satisfactory but I made do -- busy life, children, work etc
I have recently moved to London, and have finally been able to sign up and meet a GP -- consultation lasted 5 mins -- he told me my TSH is fine and there is no need to do anything different.
I feel tired all the time, when I increase my levo I get palpitations.
I really want to see a Consultant privately but it is bewildering to find someone (and my GP is not going to help).
I understand that the forum can't post recommendations directly, but where could I find someone who is interested in the disease, open to new treatment paradigms and would treat me as a person and look at the impact of Hashimoto's on my "whole body health" rather than just an organ in my neck and measuring TSH ?
many thanks for any help as I am so exasperated
Written by
GibsyHesperis
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BEFORE considering booking any consultation essential to get FULL thyroid and vitamin testing
Come back with new post once you get results
Also if not on gluten free diet get coeliac blood test BEFORE trialing GF
Bloods should be retested 6-8 weeks after each dose change or brand change in levothyroxine
For full Thyroid evaluation you need TSH, FT4 and FT3 tested
Very important to test vitamin D, folate, ferritin and B12 at least once year minimum
Low vitamin levels are extremely common when hypothyroid, especially with Hashimoto’s
Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins
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