Hi, I hope you are all hanging on in there.
This is my second post on here for head tingling, face , arm and legs which I've had daily for 2 years now.
It's driving me crazy and causing severe anxiety as I keep thinking I'm heading for a stroke, or a brain Aneurysm.
Had an MRI and CT scan and all clear. Now waiting for a spinal tap via my Neurologist.
Any advice or feed back greatly appreciated.
Thank you and take care.🍁🍁
Presumably you’ve had blood tests and these have excluded vitamin deficiencies, especially folate and B12?
Can you share here any blood results (with ranges)? Also any meds or supplements which you’re taking and any consultations or investigations other than with your neurologist.
are you on any med? I’ve recently started put for graves and I have it occasionally in my head but permanently from the knees down
Ptu*
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Thank you.🍁
Hi, thank you for replying and I hope you are well.
Yes, I am on Levothroxine 50mcg for 2 years from Endocrinoligist, now had an increase to 75mcg.
Vit D 3,000 units daily, and thats all I take for Thyroid problem.
Take care
Bubba🌸🌸
Bonjour, les picotements aux mains et aux pieds sont un symptôme d'hypothyroïdie, mais sur le reste du corps je ne sais pas
Il s’agit parfois d’un symptôme neurologique pouvant être induit par une carence en folate ou en vitamine B12
I sympathise as I get episodes of parathesia, if you've had clear brain MRI and CT scan then its unlikely to be anything serious. It could be low B12 or low iron that commonly causes this sort of problem, low magnesium is another.
Could be a trapped nerve in the neck or a bit of extra bone in the spine compressing part of the spinal cord. This is common as we get older. Even migraines can cause weird tingling sensations.
Even anxiety is a possibility, you mention its making you anxious, could be you are subconsciously feeding the sensation by worrying about it. Have you tried relaxation techniques, breathing techniques or CBT.
There are certain conditions that make parathesia more common, MS has been ruled out but Fibromyalgia, which I have, can cause it as well as diabetes. Have you been screened for those? Have you checked other medications you take as it can be a side effect. High levels of vitamin B6 can sometimes cause pins and needles.
Previous posts showed on far too low a dose of levothyroxine and terrible vitamin levels
healthunlocked.com/thyroidu...
A month ago you were going to get FULL thyroid and vitamin testing
What were results
You will need to retest again 6-12 weeks after increasing levothyroxine
Only add one supplement at a time then wait 10-14 days before adding another
Retest 6-8 weeks after adding last vitamin supplement
Serum lipid levels
Serum cholesterol level 5.3 mmol/L
Serum electrolyte levels
Serum sodium level 141 mmol/L [133.0 - 146.0]
Serum potassium level 4.6 mmol/L [3.5 - 5.3]
Serum chloride level 102 mmol/L [95.0 - 108.0]
Serum creatinine level 64 umol/L [48.0 - 128.0]
Haemoglobin A1c level - IFCC standardised
Haemoglobin A1c level - IFCC standardised 39 mmol/mol [18.0 - 41.0];
Serum total 25-hydroxy vitamin D level
Serum total 25-hydroxy vitamin D level 64.8 nmol/L; Total 25OH Vitamin D
Thyroid function test,
Serum free T4 level 12.5 pmol/L [11.0 - 22.6]; This assay may be affected in patients
taking biotin supplements.
Interpret results in clinical context.
Serum TSH level 0.10 mu/L [0.2 - 4.0]; Low TSH on thyroxine - uncertain significance
Suggest continued monitoring; Outside reference range
Borderline
What you need to do
Need to repeat test, Communicate Patient
No B12, no folate, no ferritin test results
Get these tested now
Vitamin D far too low
Aiming for at least over 80nmol and between 100-125nmol may be better
pubmed.ncbi.nlm.nih.gov/218...
vitamindsociety.org/pdf/Vit...
How much vitamin D are you currently taking
GP will often only prescribe to bring vitamin D levels to 50nmol.
Some areas will prescribe to bring levels to 75nmol or even 80nmol
leedsformulary.nhs.uk/docs/...
GP should advise on self supplementing if over 50nmol, but under 75nmol (but they rarely do)
mm.wirral.nhs.uk/document_u...
Once you Improve level, very likely you will need on going maintenance dose to keep it there.
Test twice yearly when supplementing
Can test via NHS private testing service
Vitamin D mouth spray by Better You is very effective as it avoids poor gut function.
There’s a version made that also contains vitamin K2 Mk7.
One spray = 1000iu
amazon.co.uk/BetterYou-Dlux...
It’s trial and error what dose we need, with thyroid issues we frequently need higher dose than average
Vitamin D may prevent Autoimmune disease
newscientist.com/article/23...
Web links about taking important cofactors - magnesium and Vit K2-MK7
Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine
betterbones.com/bone-nutrit...
medicalnewstoday.com/articl...
livescience.com/61866-magne...
sciencedaily.com/releases/2...
Recipe ideas
bbc.co.uk/food/articles/mag...
Interesting article by Dr Malcolm Kendrick on magnesium
drmalcolmkendrick.org/categ...
Vitamin K2 mk7
Low TSH …..suggesting Central hypothyroidism
Also quite likely low vitamin levels, especially low Ferritin levels
Free T4 (fT4) 12.5 pmol/L (11 - 22.6)
Ft4 (Levo) only 12.9% through range
Was test early morning and last dose levothyroxine 24 hours before test
you absolutely definitely need to increase dose Levo to 75mcg
Most people, on just levothyroxine will need Ft4 result (levothyroxine dose) at least 75% through range
You’re likely to need further increase in dose of Levo over coming months
Retest again in 6-8 weeks
Which brand of levothyroxine is your 50mcg
Which brand is 25mcg levothyroxine
You could take 25mcg dose later in day, or at bedtime
Or just take 75mcg all at once
Levothyroxine is an extremely fussy hormone and should always be taken on an empty stomach and then nothing apart from water for at least an hour after
Many people take Levothyroxine soon after waking, but it may be more convenient and perhaps more effective taken at bedtime
verywellhealth.com/best-tim...
markvanderpump.co.uk/blog/p...
markvanderpump.co.uk/blog/p...
No other medication or supplements at same as Levothyroxine, leave at least 2 hour gap.
Some like iron, calcium, magnesium, HRT, omeprazole or vitamin D should be four hours away
(Time gap doesn't apply to Vitamin D mouth spray)
If you normally take levothyroxine at bedtime/in night ...adjust timings as follows prior to blood test
If testing Monday morning, delay Saturday evening dose levothyroxine until Sunday morning. Delay Sunday evening dose levothyroxine until after blood test on Monday morning. Take Monday evening dose levothyroxine as per normal
Request GP test full iron panel test including ferritin as your last ferritin test showed your ferritin was deficient at 18 (below 30 is deficient)
And request B12 and folate levels tested too
Alternatively test privately
Vitamin tests £69 - in clinic only blood draw
randoxhealth.com/en-GB/in-c...
Clinic locations
randoxhealth.com/en-GB/heal...
Optimal vitamin levels
Serum B12 over 500
Active B12 over 70 (private testing only)
Folate towards top of range
Ferritin at least over 70
I take Teva in both dosages. I have only been on 75mcg for 3 weeks on my own accord. after reading your replies. I will have all the bloods done that you have suggested privately instead of keep waiting for NHS. I have lost faith with all of them, especially Endo.
I would like to say a huge thank you for all the help and advice that you have given me.
Take care🍁🍁
Guidelines of dose Levo by weight
approx how much do you weigh in kilo
Even if we frequently start on only 50mcg, most people need to increase levothyroxine dose slowly upwards in 25mcg steps (retesting 6-8 weeks after each increase) until eventually on, or near full replacement dose (typically 1.6mcg levothyroxine per kilo of your weight per day)
pathlabs.rlbuht.nhs.uk/tft_...
Guiding Treatment with Thyroxine:
In the majority of patients 50-100 μg thyroxine can be used as the starting dose. Alterations in dose are achieved by using 25-50 μg increments and adequacy of the new dose can be confirmed by repeat measurement of TSH after 2-3 months.
The majority of patients will be clinically euthyroid with a ‘normal’ TSH and having thyroxine replacement in the range 75-150 μg/day (1.6ug/Kg on average).
The recommended approach is to titrate thyroxine therapy against the TSH concentration whilst assessing clinical well-being. The target is a serum TSH within the reference range.
……The primary target of thyroxine replacement therapy is to make the patient feel well and to achieve a serum TSH that is within the reference range. The corresponding FT4 will be within or slightly above its reference range.
The minimum period to achieve stable concentrations after a change in dose of thyroxine is two months and thyroid function tests should not normally be requested before this period has elapsed.
Some people need a bit less than guidelines, some a bit more
Medics should be dosing by Ft4 and Ft3 results….NOT by TSH
Thermography might reveal more as it did for me when an MRI came suggested 'normal'.
d3 levels, b12, and iron panel...you need these test...each would cause some issues but not uncommon at all to be low in d3 and b12....i take both daily....and iron if low effects oxygen all over the body....pull down your lower eyelid....it should be blood red...if not..it is a one sign of low iron....but follow up w a test....b12 and d3 have to be optimal...not just in range....for you to feel good w thyroid....i agree something is off but your electrolyte panel looks good....
Thank you, my lower eye lid is red. Going to get GP to do more bloods.
Hope you are well.
Take care
Bubba
Hi, not sure if this helps - I had awful tingling and numbness - hands and feet then up legs and arms then in face and mouth and head, and eventually across chest which really scared me. I took advice from here and got my levo adjusted up to right amount for me (took a while) and meanwhile I bought and took under tongue B12 and ate homemade chicken liver pate for folate plus used apple cider vinegar for low stomach acid. I also started to take the levo on it's own at 3am to make the most of what little they were giving me (BTW Teva didn't work for me and am now on Accord). I noticed an improvement in tingling quite soon - it felt as if it was slowly washing out of my body each day. My Dr had no idea about how to sort me out. I had to do the research (on here with advice from fab women) and persuade Dr. Best of luck to you.
Ask for your vitamin B6 to be tested.
Both deficiency and toxicity of B6 can cause peripheral neuropathy.
Deficiency : en.wikipedia.org/wiki/Vitam...
Toxicity : en.wikipedia.org/wiki/Megav...
Need Advice Please 
Increased anxiety…
Menopaused. Would starting HRT mean reducing NDT? Has anyone experience of this please?
I’m fine. Really?
Thyroidectomy or not? Thyroidmegaly and multi modular goiter. 
