Presumably you’ve had blood tests and these have excluded vitamin deficiencies, especially folate and B12?
Can you share here any blood results (with ranges)? Also any meds or supplements which you’re taking and any consultations or investigations other than with your neurologist.
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I sympathise as I get episodes of parathesia, if you've had clear brain MRI and CT scan then its unlikely to be anything serious. It could be low B12 or low iron that commonly causes this sort of problem, low magnesium is another.
Could be a trapped nerve in the neck or a bit of extra bone in the spine compressing part of the spinal cord. This is common as we get older. Even migraines can cause weird tingling sensations.
Even anxiety is a possibility, you mention its making you anxious, could be you are subconsciously feeding the sensation by worrying about it. Have you tried relaxation techniques, breathing techniques or CBT.
There are certain conditions that make parathesia more common, MS has been ruled out but Fibromyalgia, which I have, can cause it as well as diabetes. Have you been screened for those? Have you checked other medications you take as it can be a side effect. High levels of vitamin B6 can sometimes cause pins and needles.
Also quite likely low vitamin levels, especially low Ferritin levels
Free T4 (fT4) 12.5 pmol/L (11 - 22.6)
Ft4 (Levo) only 12.9% through range
Was test early morning and last dose levothyroxine 24 hours before test
you absolutely definitely need to increase dose Levo to 75mcg
Most people, on just levothyroxine will need Ft4 result (levothyroxine dose) at least 75% through range
You’re likely to need further increase in dose of Levo over coming months
Retest again in 6-8 weeks
Which brand of levothyroxine is your 50mcg
Which brand is 25mcg levothyroxine
You could take 25mcg dose later in day, or at bedtime
Or just take 75mcg all at once
Levothyroxine is an extremely fussy hormone and should always be taken on an empty stomach and then nothing apart from water for at least an hour after
Many people take Levothyroxine soon after waking, but it may be more convenient and perhaps more effective taken at bedtime
No other medication or supplements at same as Levothyroxine, leave at least 2 hour gap.
Some like iron, calcium, magnesium, HRT, omeprazole or vitamin D should be four hours away
(Time gap doesn't apply to Vitamin D mouth spray)
If you normally take levothyroxine at bedtime/in night ...adjust timings as follows prior to blood test
If testing Monday morning, delay Saturday evening dose levothyroxine until Sunday morning. Delay Sunday evening dose levothyroxine until after blood test on Monday morning. Take Monday evening dose levothyroxine as per normal
I take Teva in both dosages. I have only been on 75mcg for 3 weeks on my own accord. after reading your replies. I will have all the bloods done that you have suggested privately instead of keep waiting for NHS. I have lost faith with all of them, especially Endo.
I would like to say a huge thank you for all the help and advice that you have given me.
Even if we frequently start on only 50mcg, most people need to increase levothyroxine dose slowly upwards in 25mcg steps (retesting 6-8 weeks after each increase) until eventually on, or near full replacement dose (typically 1.6mcg levothyroxine per kilo of your weight per day)
In the majority of patients 50-100 μg thyroxine can be used as the starting dose. Alterations in dose are achieved by using 25-50 μg increments and adequacy of the new dose can be confirmed by repeat measurement of TSH after 2-3 months.
The majority of patients will be clinically euthyroid with a ‘normal’ TSH and having thyroxine replacement in the range 75-150 μg/day (1.6ug/Kg on average).
The recommended approach is to titrate thyroxine therapy against the TSH concentration whilst assessing clinical well-being. The target is a serum TSH within the reference range.
……The primary target of thyroxine replacement therapy is to make the patient feel well and to achieve a serum TSH that is within the reference range. The corresponding FT4 will be within or slightly above its reference range.
The minimum period to achieve stable concentrations after a change in dose of thyroxine is two months and thyroid function tests should not normally be requested before this period has elapsed.
Some people need a bit less than guidelines, some a bit more
Medics should be dosing by Ft4 and Ft3 results….NOT by TSH
d3 levels, b12, and iron panel...you need these test...each would cause some issues but not uncommon at all to be low in d3 and b12....i take both daily....and iron if low effects oxygen all over the body....pull down your lower eyelid....it should be blood red...if not..it is a one sign of low iron....but follow up w a test....b12 and d3 have to be optimal...not just in range....for you to feel good w thyroid....i agree something is off but your electrolyte panel looks good....
Hi, not sure if this helps - I had awful tingling and numbness - hands and feet then up legs and arms then in face and mouth and head, and eventually across chest which really scared me. I took advice from here and got my levo adjusted up to right amount for me (took a while) and meanwhile I bought and took under tongue B12 and ate homemade chicken liver pate for folate plus used apple cider vinegar for low stomach acid. I also started to take the levo on it's own at 3am to make the most of what little they were giving me (BTW Teva didn't work for me and am now on Accord). I noticed an improvement in tingling quite soon - it felt as if it was slowly washing out of my body each day. My Dr had no idea about how to sort me out. I had to do the research (on here with advice from fab women) and persuade Dr. Best of luck to you.
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