Hi, I hope you are all hanging on in there.
This is my second post on here for head tingling, face , arm and legs which I've had daily for 2 years now.
It's driving me crazy and causing severe anxiety as I keep thinking I'm heading for a stroke, or a brain Aneurysm.
Had an MRI and CT scan and all clear. Now waiting for a spinal tap via my Neurologist.
Any advice or feed back greatly appreciated.
Thank you and take care.🍁🍁
Presumably you’ve had blood tests and these have excluded vitamin deficiencies, especially folate and B12?
Can you share here any blood results (with ranges)? Also any meds or supplements which you’re taking and any consultations or investigations other than with your neurologist.
Hi Rainbow, thank you for reply. Sorry for delay, been poorly.
I am under Endocrinologist that has now requested 24 hr Urine Cortisol Test
TFT
Bloods 8 July
T4 15.7 [11.0 - 22.6]
TSH 0.07 [02. - 4.O]
Serum total 25-hydroxy vitamin D level 64.8 nmol/L; Total 25OH Vitamin D <25 nmol/L indicates deficiency
Urine albumin/creatinine ratio
Urine creatinine level 5.4 mmol/L
Urine albumin level < 3 mg/L [3.0 - 20.0] Below Recommended Range
Urine albumin/creatinine ratio Not applicable
TFT
Date:21 Aug 2024
Serum magnesium level 0.78 mmol/L [0.7 - 1.0]
Thyroid stimulating hormone, serum.
• 0.07 munit/L (Low) Reference Range:0.2 munit/L - 4.0 munit/L
Free T4 level, serum
• 15.7 pmol/L Reference Range:11.0 pmol/L - 22.6 pmol/L
My Iron is very low and my GP has now put me on Ferrous Sulphate 200mg
9.0 umol/L [ 9.0-30.4] outside referance range
Thanks for your time and any advice. I'm currently taking 75 mg Levo daily.
12/9/24
HAEMATINICS
Serum vitamin B12 level 355 ng/L [211.0 - 911.0]
Serum iron level 9.0 umol/L [9.0 - 30.4]; Changed to gender specific reference ranges on 03.07.19; Outside reference range
Transferrin saturation index 12 % [< 40.0]
Serum folate level 11.3 ug/L [3.0 - 14.4]
Transferrin level 3.1 g/L [2.5 - 3.8]; Changed to gender specific reference ranges 03.07.19
Serum ferritin level 8 ug/L [10.0 - 291.0]; Ferritin <15 suggests low iron stores or deficiency
?? poor intake, malabsorption or excessive loss of Fe; Outside reference range
Hi bubbatetley
Your B12 is far too low and combined with low iron is very likely to be a contributory cause of your symptoms.
Your symptoms and blood results are similar to mine.
Your GP won’t give you a B12 supplement while your level is in range - albeit it’s scraping along at the bottom. I’ve just bought a B12 supplement that’s sublingual. 3000 mcg. Make sure that you take a good quality B complex with this.
Take your iron supplement at least 4 hours away from your thyroid meds.
Hi Rainbow, thank you for the reply. I have recently bought Vit B spray, B12 complex and Vit D and K2 spray.. As I've just started the Iron tabs I thought it best to wait a week to take any of the others? Any advice please.
Thank you and take care
Bubba 🌸🌸
B12 complex? I think you mean B complex. You need a B12 supplement which is a stand alone. Make sure that your B12 supplement is sublingual and very high dose - between 1000 mcg and 3000 mcg. I find that the sprays aren’t terribly effective. Likewise the Vit D / K2 spray.
I currently take 3000 IU Vit D with 100 mg K2 separately. In only two months I raised my Vit D levels very well.
Source right to not start supplements altogether.
Take care and let me know how you get on 😉
Thank you Rainbow and yes I meant B complex. Which Brand of B12 and K2 do you take ? 🌸
All from Amazon
Troo Vit K2 100 mg
Nu U Vit D3 3000 IU.
( I really rate Nu U products)
Thorne Basic B Complex
Igennus Super B12 1000 mcg
.
Take care and keep smiling 😊
Hi Rainbow, hope all ok. been looking at Amazon for the above Vits and the only B12 they have in Iggenus is B12 complex is this the one to get please?
Yes. It’s called B12 Complex as there are three bioavailable forms of B12 in it.
Great, Thank you so much Rainbow. 🌈
Take care and keep smilig!🌷🌷
Let me know how you are bubba 😉😉
Blooy awful Rainbow, the head, face and legs tingling seem to be getting worse. had lots of ear pain today. I'm really struggling with it all. The head tingling get's worse when I'm power walking and my body temperature rising.
Not taken Levothyroxine today to see if it makes any differance, but it HAS NOT.
I’m no doctor and have no medical qualifications, but it does sound as though this is a combination of B12 deficiency and iron deficiency.
Do you have pain in four face / jaw with this?
Dont stop the Levo. It might not be helping at current dose but you’ll feel worse without it. 😩
TFT
Bloods 8 July
T4 15.7 [11.0 - 22.6]
TSH 0.07 [02. - 4.O]
Serum total 25-hydroxy vitamin D level 64.8 nmol/L; Total 25OH Vitamin D <25 nmol/L indicates deficiency
Urine albumin/creatinine ratio
Urine creatinine level 5.4 mmol/L
Urine albumin level < 3 mg/L [3.0 - 20.0] Below Recommended Range
Urine albumin/creatinine ratio Not applicable
TFT
Date:21 Aug 2024
Serum magnesium level 0.78 mmol/L [0.7 - 1.0]
Thyroid stimulating hormone, serum.
• 0.07 munit/L (Low) Reference Range:0.2 munit/L - 4.0 munit/L
Free T4 level, serum
• 15.7 pmol/L Reference Range:11.0 pmol/L - 22.6 pmol/L
My Iron is very low and my GP has now put me on Ferrous Sulphate 200mg
9.0 umol/L [ 9.0-30.4] outside referance range
Thanks for your time and any advice. I'm currently taking 75 mg Levo daily.
12/9/24
HAEMATINICS
Serum vitamin B12 level 355 ng/L [211.0 - 911.0]
Serum iron level 9.0 umol/L [9.0 - 30.4]; Changed to gender specific reference ranges on 03.07.19; Outside reference range
Transferrin saturation index 12 % [< 40.0]
Serum folate level 11.3 ug/L [3.0 - 14.4]
Transferrin level 3.1 g/L [2.5 - 3.8]; Changed to gender specific reference ranges 03.07.19
Serum ferritin level 8 ug/L [10.0 - 291.0]; Ferritin <15 suggests low iron stores or deficiency
?? poor intake, malabsorption or excessive loss of Fe; Outside reference range
Last edited by bubbatetley
These are my latest blood Rainbow. I will Not stop the Levo, and yes today I am feeling worse.
The consultant said NO Neuroma. I just dont trust any Doc's anymore😩😩
That low B12 and low Ferritin/iron look like the guilty suspects.
I notice you’re on a PPI (Lanazaprazole). I was put on this last year as I have a Hiatus Hernia that’s really playing up.
My GP warned me then that I would have to supplement B12 as it prevents absorption (of other nutrients too!)
PS
No FT3 result ?
No FT3. My Endo has not done FT3 for a long time. I was put onto T3 only as she thought I was allergic to T4, I was on 20mcg of T3 only. I beacame very ill after being on T3 only for approx 1 year until I hit a brick wall. I stopped the T3 and my Endo reintroduced T4 only.
Hi Rainbow🌈Hope youre ok.. I'm just the same, very tired and still head tingling.
Went to GP yesterday, he was pretty useless and not been at the practise long. He has received letter from Neurology, the spinal tap is all clear so they are saying all these head and face tingling is migraine, which I dont agree it is that.. He said that you dont have to have terrible headaches with a migraine, but you can have tingling sensations.
Got to go back to Neuro for follow up and in his letter he has mentioned giving me medication for migraine. Why the hell didnt he just write it in the letter he sent to GP, as to what medication he is giving me , so the GP could have prescribed them..
I've rang the Neurology secretary to see if they could ask the consultant to at least give the meds he wants me to start for Mingraine, and the answer was he's not in clinic til next Wednesday. It's infuriating!.. All you do these days is WAIT, WAIT, WAIT!
The GP has referered me now to Physio , for next week, he said that thse senations could be coming from my neck, as I've got a bone spur in my neck and spine which he called it Spondylothesis..
Slow Dragon has said that my Thyroid medication is undemedicated . I am taking 75mcg and my vitimins were terrible. SD said its time to increase to 100mcg
T4 15.7 [ 11.0 -22.6]
TSH 0.07 [ 0.2 - 4.0]
Vit D 64.8
Iron 9.0 umoL/L [ 9.0 - 30 . 4] Taking Iron tabs now .
B12 355 ng/L { 211.0 - 911.0]
Sorry for the rant Rainbow, I just dont know what to do!
Thank you so much for being here and for showing your concern, it means so much to me.
Take care and keep smiling.
Bubba😘😘
Get those B12 down you asap. Start at 3x1000 mcg tabs. Also get iron levels raised.
Thank you Rainbow. GP said my B12 Ranges are good. IDIOT! Is it ok to take Iron and B12 in the same day?
Oh for goodness sake. They’re about the same as mine - just in range. What is the matter with these people and their obsession with these ranges? Until assay testing began many years ago, there were no ranges and doctors used patient symptomology, their clinical knowledge and common sense. Now they have very little of either.
Yes. You can take Iron and B12 in same day. Big rule is to take iron 4 hours away from Thyroid meds. Vit D is better taken from Thyroid Meds too.
I’d also be considering Slow Dragon’s advice and increasing Levo. It’s hard to be specific about increases though without FT3
By the way, how does your GP know you have a bone spur in your neck? Have you had imaging / CT / MRI?
I told the new GP yesterday about the spur, and he is sending me to Physio next week.
I just don't beleive this is migraine all day every day for 2 years now.
This was a finding on my last MRI:
Mild multilevel degenerative spondylosis within the cervical
spine most significant at C5/C6 where ther,e is a shallow
broad-based disc/osteophyte bar indenting the ventral thecal
sac and moderately narrowing the left and severely narrowing
the right intervertebral foramen.
This was my last MRI 2023
It’s not likely. That’s why I don’t take anything for migraine and persist in the view that it’s B12 deficiency.
Probably neck involved as well - but then neck and head do go together (usually 😂)
Hi Rainbow 🌈 hope your well.. Just received B12 Igennus from Amazon, It's saying on the instructions to take 1 daily? You said to take 3 ?
Thank you and take care🍁🍁
I start with 1 tablet and after about a week I take 3 (3000 mcg) which raises B12 quickly. I do that for about a month and then reduce to the 1 tablet.
They do sell 3000 mcg buy these give you more flexibility
🌈🌈😘
Thank you Rainbow, when do I start the B 🌸🌸complex please
Good day Rainbow, Hope your having a good day. It's raining up in Yorkshire.
I do have face and Jaw pain . I have an appointment with GP today, so I will let you know the outcome..
Take care
Bubba🌈🌈
Just noticed this reply Bubba. Hope the rains stopped 😉
Face and jaw pain do tend to be friends of atypical migraine. I recently spent almost two weeks in hospital while they tried to sort out appalling head pain. I had investigations galore to eliminate brain tumour, meningitis etc.
The face and jaw pain were horrendous and I was eventually diagnosed with Status Migrainanus. That just means severe migraine that won’t go away. Of course I challenged this diagnosis as I’ve had migraine for years and never had anything like this. It did include paraesthesia (tingling) in head, face and neck as well as pain as I know it. The neuro explained that Status Migrainanus always included ‘new’ symptoms that previous migraines didn’t. My neck was mentioned specifically as a possible source of the pain. When I lie on my back the tingling is really bad in back of head
Having neuro investigations anyway for other nerve related issues and in the meantime I’m increasing B12 as it’s far too low because of malabsorption caused by PPI.
Hoping someone will do some ‘joined up thinking’ very soon. I know my iron is low seeing GP on Monday to discuss testing
Endocriologist never does T3, I will ask GP again to do them, to be honest I've had enough of all the Medics, and am now listening to all you great pepole. And yes those Bloody Ranges is all they think about!!!
Not sure what B12 to get, can you recommend please Rainbow.. I suffer with tablet phobia, I hate taking any meds.
Do you now take meds for the migraines? 🌸🌸
I can feel things moving around in my head, just like fluid. It's very scary, plus the parathesia gets worse when my body temp rises??
I sent you a list of recommended supps yesterday. 😉
No. I don’t believe migraine med would help. It’s def a B12 issue in my case.
In 2018, I loaded my B12 and frequent migraines disappeared - until my B12 dropped like a stone when I stopped the B12 supp
Sorry, I 've just seen this and have ordererd from Amazon, arriving tomorrow..👍👍
are you on any med? I’ve recently started put for graves and I have it occasionally in my head but permanently from the knees down
Ptu*
helvella - Editing HealthUnlocked Posts/Replies
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Thank you.🍁
Hi, thank you for replying and I hope you are well.
Yes, I am on Levothroxine 50mcg for 2 years from Endocrinoligist, now had an increase to 75mcg.
Vit D 3,000 units daily, and thats all I take for Thyroid problem.
Take care
Bubba🌸🌸
Hi Kiki, like the name. Sorry for the late response, been very poorly.. I hope you are ok.
Still have the tingling sensations. I had bloods taken and I'm Anaemic, so GP has given me Iron tabs to take. I also take
Vitimin D 3000 units daily
Levothyroxine 100mcg daily
Vitimin B complex
B12 Spray
Vitimin D + K spray daily.
Had to have a spinal tap and waiting for results, keep ya posted.
Thank you and take care
🌸🌸
Hi Kiki, hope alll good with you. I am struggling with this ongoing head , fae and legs tinglin, its so awful! Spinal tap all clear.. Neurologist saying this is all Migraine and will start me on meds at my next follow up appointment, why the HELL he couldnt have let my GP no as to what meds he is going to give me so the GP could prescribe.. It's not good enough😩
Bonjour, les picotements aux mains et aux pieds sont un symptôme d'hypothyroïdie, mais sur le reste du corps je ne sais pas
Il s’agit parfois d’un symptôme neurologique pouvant être induit par une carence en folate ou en vitamine B12
I sympathise as I get episodes of parathesia, if you've had clear brain MRI and CT scan then its unlikely to be anything serious. It could be low B12 or low iron that commonly causes this sort of problem, low magnesium is another.
Could be a trapped nerve in the neck or a bit of extra bone in the spine compressing part of the spinal cord. This is common as we get older. Even migraines can cause weird tingling sensations.
Even anxiety is a possibility, you mention its making you anxious, could be you are subconsciously feeding the sensation by worrying about it. Have you tried relaxation techniques, breathing techniques or CBT.
There are certain conditions that make parathesia more common, MS has been ruled out but Fibromyalgia, which I have, can cause it as well as diabetes. Have you been screened for those? Have you checked other medications you take as it can be a side effect. High levels of vitamin B6 can sometimes cause pins and needles.
Hi Sparkle, hope ypu are ok? Sorry for delay in responding but, been poorly with this awful Thyroid.. Recent bloods done have shown very low iron so, GP said boardeline for aneamia. Now taking Ferrous Sulphate 200mg daily. Been screened for Diabetes and yes have checked other meds for side effects. Waiting for results for Spinal Tap procedure that I had last week. B6 all ok. Head, face and legs still having pins and needles, I find that when my body gets hot these symptoms get worse, IT'S SO AWFUL AND SCARY!
Thank you for being here, I really appreciate all of you guys for all the advice given.
Take care
Bubba🌸🌸
Hi Sunshine, how are you doing? hope you are hanging on in there. Do you still have the tingling sensations? It's awful especially in the head and face. Had a recent bloods done . Gp rang to say boardeline Aneamic so now taking Iron tabs.
B12 also low, but GP said dont need meds for it... So confused at everything. I have decide now to medicate myself as the GP is useless. All they seem to care about is the Ranges and not address the real symptoms being so low in Vits.
I went for a spinal tap and are waiting for the results.
Thank you for reading and understanding, I'd be lost without this Forum.
Take care
Bubba🍁🍁
Previous posts showed on far too low a dose of levothyroxine and terrible vitamin levels
healthunlocked.com/thyroidu...
A month ago you were going to get FULL thyroid and vitamin testing
What were results
You will need to retest again 6-12 weeks after increasing levothyroxine
Only add one supplement at a time then wait 10-14 days before adding another
Retest 6-8 weeks after adding last vitamin supplement
Serum lipid levels
Serum cholesterol level 5.3 mmol/L
Serum electrolyte levels
Serum sodium level 141 mmol/L [133.0 - 146.0]
Serum potassium level 4.6 mmol/L [3.5 - 5.3]
Serum chloride level 102 mmol/L [95.0 - 108.0]
Serum creatinine level 64 umol/L [48.0 - 128.0]
Haemoglobin A1c level - IFCC standardised
Haemoglobin A1c level - IFCC standardised 39 mmol/mol [18.0 - 41.0];
Serum total 25-hydroxy vitamin D level
Serum total 25-hydroxy vitamin D level 64.8 nmol/L; Total 25OH Vitamin D
Thyroid function test,
Serum free T4 level 12.5 pmol/L [11.0 - 22.6]; This assay may be affected in patients
taking biotin supplements.
Interpret results in clinical context.
Serum TSH level 0.10 mu/L [0.2 - 4.0]; Low TSH on thyroxine - uncertain significance
Suggest continued monitoring; Outside reference range
Borderline
What you need to do
Need to repeat test, Communicate Patient
No B12, no folate, no ferritin test results
Get these tested now
Vitamin D far too low
Aiming for at least over 80nmol and between 100-125nmol may be better
pubmed.ncbi.nlm.nih.gov/218...
vitamindsociety.org/pdf/Vit...
How much vitamin D are you currently taking
GP will often only prescribe to bring vitamin D levels to 50nmol.
Some areas will prescribe to bring levels to 75nmol or even 80nmol
leedsformulary.nhs.uk/docs/...
GP should advise on self supplementing if over 50nmol, but under 75nmol (but they rarely do)
mm.wirral.nhs.uk/document_u...
Once you Improve level, very likely you will need on going maintenance dose to keep it there.
Test twice yearly when supplementing
Can test via NHS private testing service
Vitamin D mouth spray by Better You is very effective as it avoids poor gut function.
There’s a version made that also contains vitamin K2 Mk7.
One spray = 1000iu
amazon.co.uk/BetterYou-Dlux...
It’s trial and error what dose we need, with thyroid issues we frequently need higher dose than average
Vitamin D may prevent Autoimmune disease
newscientist.com/article/23...
Web links about taking important cofactors - magnesium and Vit K2-MK7
Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine
betterbones.com/bone-nutrit...
medicalnewstoday.com/articl...
livescience.com/61866-magne...
sciencedaily.com/releases/2...
Recipe ideas
bbc.co.uk/food/articles/mag...
Interesting article by Dr Malcolm Kendrick on magnesium
drmalcolmkendrick.org/categ...
Vitamin K2 mk7
Low TSH …..suggesting Central hypothyroidism
Also quite likely low vitamin levels, especially low Ferritin levels
Free T4 (fT4) 12.5 pmol/L (11 - 22.6)
Ft4 (Levo) only 12.9% through range
Was test early morning and last dose levothyroxine 24 hours before test
you absolutely definitely need to increase dose Levo to 75mcg
Most people, on just levothyroxine will need Ft4 result (levothyroxine dose) at least 75% through range
You’re likely to need further increase in dose of Levo over coming months
Retest again in 6-8 weeks
Which brand of levothyroxine is your 50mcg
Which brand is 25mcg levothyroxine
You could take 25mcg dose later in day, or at bedtime
Or just take 75mcg all at once
Levothyroxine is an extremely fussy hormone and should always be taken on an empty stomach and then nothing apart from water for at least an hour after
Many people take Levothyroxine soon after waking, but it may be more convenient and perhaps more effective taken at bedtime
verywellhealth.com/best-tim...
markvanderpump.co.uk/blog/p...
markvanderpump.co.uk/blog/p...
No other medication or supplements at same as Levothyroxine, leave at least 2 hour gap.
Some like iron, calcium, magnesium, HRT, omeprazole or vitamin D should be four hours away
(Time gap doesn't apply to Vitamin D mouth spray)
If you normally take levothyroxine at bedtime/in night ...adjust timings as follows prior to blood test
If testing Monday morning, delay Saturday evening dose levothyroxine until Sunday morning. Delay Sunday evening dose levothyroxine until after blood test on Monday morning. Take Monday evening dose levothyroxine as per normal
Request GP test full iron panel test including ferritin as your last ferritin test showed your ferritin was deficient at 18 (below 30 is deficient)
And request B12 and folate levels tested too
Alternatively test privately
Vitamin tests £69 - in clinic only blood draw
randoxhealth.com/en-GB/in-c...
Clinic locations
randoxhealth.com/en-GB/heal...
Optimal vitamin levels
Serum B12 over 500
Active B12 over 70 (private testing only)
Folate towards top of range
Ferritin at least over 70
I take Teva in both dosages. I have only been on 75mcg for 3 weeks on my own accord. after reading your replies. I will have all the bloods done that you have suggested privately instead of keep waiting for NHS. I have lost faith with all of them, especially Endo.
I would like to say a huge thank you for all the help and advice that you have given me.
Take care🍁🍁
Hi SlowDragon, Hope you are well.
Recent Bloods
T4 15.7 [ 11.0 - 22 .6]
TSH 0.07 [ 0.2 - 4 .0 ]
Endo saying to decrease Levo to alternate 50/75
I've been taking 75/100 which you recommended. Ive been taking these for 2 weeks now.
Gp saying B12 in range.
Taking B12 complex now.
Any advice please and thank you🍁
Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Free T4 (fT4) 15.7 pmol/L (11 - 22.6)
Ft4 still too low at only 40.5% through range
Results show you need next dose increase in levothyroxine
perhaps initially increase by 12.5mcg daily
Retest FULL thyroid TSH, Ft4 and Ft3 and vitamin levels 6-8 weeks later
TSH is highly unreliable and needs ignoring
Thank you SD. I appreciate all the advice you have given me and always follow what you say. Do you mean to add 12.5 mcg to the 100mcg Levo NOW?
How much were you taking when this test was done
Increase by 12.5mcg daily
Retest in another 8 weeks
75/100mcg alternate days🍁
So increase to 100mcg daily
Retest in 8 weeks
Thank you SD
Hi SD, hope you are well. Autumn is approaching up North.
I have now got Basic B complex, Bioactive B12 and Vitimin D + K2, is it safe to take them in one day or should I start one at a time ?
Cheers🍁
Best to start one at a time and give it a week or so before adding the next, in case anything shouldnt suit you.
Guidelines of dose Levo by weight
approx how much do you weigh in kilo
Even if we frequently start on only 50mcg, most people need to increase levothyroxine dose slowly upwards in 25mcg steps (retesting 6-8 weeks after each increase) until eventually on, or near full replacement dose (typically 1.6mcg levothyroxine per kilo of your weight per day)
pathlabs.rlbuht.nhs.uk/tft_...
Guiding Treatment with Thyroxine:
In the majority of patients 50-100 μg thyroxine can be used as the starting dose. Alterations in dose are achieved by using 25-50 μg increments and adequacy of the new dose can be confirmed by repeat measurement of TSH after 2-3 months.
The majority of patients will be clinically euthyroid with a ‘normal’ TSH and having thyroxine replacement in the range 75-150 μg/day (1.6ug/Kg on average).
The recommended approach is to titrate thyroxine therapy against the TSH concentration whilst assessing clinical well-being. The target is a serum TSH within the reference range.
……The primary target of thyroxine replacement therapy is to make the patient feel well and to achieve a serum TSH that is within the reference range. The corresponding FT4 will be within or slightly above its reference range.
The minimum period to achieve stable concentrations after a change in dose of thyroxine is two months and thyroid function tests should not normally be requested before this period has elapsed.
Some people need a bit less than guidelines, some a bit more
Medics should be dosing by Ft4 and Ft3 results….NOT by TSH
Thermography might reveal more as it did for me when an MRI came suggested 'normal'.
d3 levels, b12, and iron panel...you need these test...each would cause some issues but not uncommon at all to be low in d3 and b12....i take both daily....and iron if low effects oxygen all over the body....pull down your lower eyelid....it should be blood red...if not..it is a one sign of low iron....but follow up w a test....b12 and d3 have to be optimal...not just in range....for you to feel good w thyroid....i agree something is off but your electrolyte panel looks good....
Thank you, my lower eye lid is red. Going to get GP to do more bloods.
Hope you are well.
Take care
Bubba
Hi, not sure if this helps - I had awful tingling and numbness - hands and feet then up legs and arms then in face and mouth and head, and eventually across chest which really scared me. I took advice from here and got my levo adjusted up to right amount for me (took a while) and meanwhile I bought and took under tongue B12 and ate homemade chicken liver pate for folate plus used apple cider vinegar for low stomach acid. I also started to take the levo on it's own at 3am to make the most of what little they were giving me (BTW Teva didn't work for me and am now on Accord). I noticed an improvement in tingling quite soon - it felt as if it was slowly washing out of my body each day. My Dr had no idea about how to sort me out. I had to do the research (on here with advice from fab women) and persuade Dr. Best of luck to you.
Thank you
Ask for your vitamin B6 to be tested.
Both deficiency and toxicity of B6 can cause peripheral neuropathy.
Deficiency : en.wikipedia.org/wiki/Vitam...
Toxicity : en.wikipedia.org/wiki/Megav...
I am now taking Levo 75mcg, but still no improvement with the stingling sensations.
My recent bloods are:
TSH 0.10 (9.2- 4.0)
T4 12.5 (11.0 - 22.6)
Vit D 64.8
How long have you been on 75mcg now
Was test early morning and last dose levothyroxine 24 hours before test
Shows you are ready to increase to 100mcg daily
Initially increase to 87.5mcg (75mcg and 100mcg on alternate days for 2-3 weeks….)
Then increase to 100mcg Levo daily
Retest thyroid AND vitamin levels 6-8 weeks later
Extremely low B12 3 months ago
healthunlocked.com/thyroidu...
are you now taking daily B12 and daily vitamin B complex?
If not, you need to start on B12 first ….then week later add vitamin B complex
Vitamin D still too low
How much are you taking.
Vitamin D mouth spray by Better You is very effective as it avoids poor gut function.
There’s a version made that also contains vitamin K2 Mk7.
One spray = 1000iu
amazon.co.uk/BetterYou-Dlux...
It’s trial and error what dose we need, with thyroid issues we frequently need higher dose than average
Aiming for vitamin D at least around 100nmol
Increase daily dose vitamin D and, if not already taking….add daily magnesium at bedtime (or early evening if you take Levo at bedtime)
Ferritin deficient 3 months ago
FERRITIN 18.0 ug/L [ 10. 0- 291 .0]
What iron supplements did GP prescribe.
Have you had iron and ferritin retested
You need to get full iron panel test BEFORE considering continuing/adding any iron supplements
Never supplement iron without doing full iron panel test for anaemia first and retest 3-4 times a year if self supplementing.
It’s possible to have low ferritin but high iron
Test early morning, only water to drink between waking and test. Avoid high iron rich dinner night before test
If taking any iron supplements stop 5-7 days before testing
Medichecks iron panel test
medichecks.com/products/iro...
Look at increasing iron rich foods in diet
Eating iron rich foods like liver or liver pate once a week plus other red meat, pumpkin seeds and dark chocolate, plus daily orange juice or other vitamin C rich drink can help improve iron absorption
List of iron rich foods
come back with new post once you get iron panel test results
Thank you SD I have been on 75 since July 5th ( 7 weeks ) I'm a little confused about the increase. Do you mean I should take 87.5 mcg from today? OR 75mcg/ 100mmcg on alternate days for 2 - 3 weeks?
Hi, any advice on blood results please.
Free T4 level, serum
15.7 pmol/L Reference Range:11.0 pmol/L - 22.6 pmol/L
0.07 munit/L (Low)
Date:21 Aug 2024 15:26 BST
Reference Range:0.2 munit/L - 4.0 munit/L
HAEMATINICS
Serum vitamin B12 level 355 ng/L [211.0 - 911.0]
Serum iron level 9.0 umol/L [9.0 - 30.4]; Changed to gender specific reference ranges on 03.07.19; Outside reference range
Transferrin saturation index 12 % [< 40.0]
Serum folate level 11.3 ug/L [3.0 - 14.4]
Transferrin level 3.1 g/L [2.5 - 3.8]; Changed to gender specific reference ranges 03.07.19
Serum ferritin level 8 ug/L [10.0 - 291.0]; Ferritin <15 suggests low iron stores or deficiency
?? poor intake, malabsorption or excessive loss of Fe; Outside reference range
Serum magnesium level 0.78 mmol/L [0.7 - 1.0]
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I have taken 75mcg today ? should I take another 12.5 mcg today ? Can't get head to work, Sorry!🥴 Can Thyroid problems cause tingling sensations , especially in the head and face? Waiting for telephone appt with GP regarding Ferritin/iron and B12 tests. They always say they dont need doing. Taking B complex. Taking 3,000 units of vit D daily. Sorry for confusion!
Thank you🍁
Been on NDT for nearly 2 years now!
Misdiagnosed for 30 years !!!
It's not all in your head.
2 years on and getting worse
