Just heard on the news that the NHS charter is under review and they were talking about changes to be made to improve care.
I don't know anything about it but perhaps we have members that do?
Is there any opportunity to improve care for thyroid sufferers through this review?
I couldn’t find a reference to contributing to charter, however there is a gov page about the NHS constitution review. This is reviewed every 10 years.
gov.uk/government/consultat...
There are many sections & you can submit if you agree / disagree & you can add further comments (up to 250 words per each section) on online form.
There’s a lot to read & it’s structured to focus on certain aspects. Raising issues more specifically regarding thyroid treatment would likely be overlooked.
Link to start the response
consultations.dhsc.gov.uk/e...
The consultation period will close at 11:59pm on 25 June 2024
So more about principles - e.g. listening to patients needs, prescribing what they actually need rather than what they wished you needed because it is cheap, perhaps?
That’s correct, it’s looking at setting policy / aims / ethos. Cost effectiveness is always a factor.
Maybe TUK are the right people to try to get that improved for us then. As the cheapest (T4) does not meet the effectiveness side of the equation for sone of us.
I think the NHS charter already says all the right things. The problem is that it is not followed and is over ruled by people on the grounds of cost or “protocol”
we need health professionals to listen and take account of our views as it says they should. Sadly this does not happen.
Thyroid review appointment system
BMJ Looking for Patients to Review Articles
A review of ME/CFS syndrome and thyroid function
