could anyone be kind enlightened to tell me if you can take metavive 2 and Levothyroxine at the same time - my GP has recently reduced my Levo to 25 mcgs - I can’t explain the head heat , dizziness and sometimes even what I call “ jelly legs “ which I have never experienced before
Thank you
welcome to the forum
my GP has recently reduced my Levo to 25 mcgs
How much levothyroxine were you taking before reducing
Essential to test TSH, Ft4 and Ft3
Were you also taking anything else, like Metavive?
yes taking metavive 2 and was taking Levothyroxine 50mcgs - I have seen an endo in London who couldn’t tell me if I had Graves or not , which was frustrating ….. he was a serious advocate for iodine which I have been told should not be taken if antibodies are raised
Does your GP know you are taking Metavive
Metavive will always significantly lower TSH
Suggest you either
A) reduce Metavive SLOWLY and go back to just levothyroxine at 50mcg
Retest after 6-8 weeks
You would eventually need more than just 50mcg levothyroxine
Typically eventually likely to be on approximately 1.6mcg Levo per kilo of your weight per day
Low TSH
It can be many weeks/months for TSH to slowly increase after being low/ suppressed
Why TSH is sluggish - mechanism called 'Hysteresis'.
healthunlocked.com/thyroidu....
starts at the end of the first reply from Tattybogle : " To understand why TSH stays suppressed for a long time after an episode of hyperthyroidism/ overmedication, (or ANY T3 use) has finished... "
and is continued in detail much further down in another reply from me : " CONTINUED HYSTERESIS ~ Why TSH remains lower for quite along while following episodes of hyperthyroidism / overmedication .... (or any T3 use) , it is due (at least partly) to a mechanism called 'Hysteresis'.
Or you need to see a thyroid specialist use to patients on more than just levothyroxine
Here’s link for how to request Thyroid U.K.list of private Doctors emailed to you, but within the email a link to download list of recommended thyroid specialist endocrinologists
Ideally choose an endocrinologist to see privately initially and who also does NHS consultations
thyroiduk.org/contact-us/ge...
thank you so very much
I have seen an endo in London who couldn’t tell me if I had Graves or not ,
why does he think you might have Graves’ disease……you’re on replacement thyroid hormones
Were you tested TSI or Trab antibodies for Graves’ disease
And test TPO and TG antibodies for Hashimoto’s
He looked at my eyes - either way he didn’t seem certain of much ! Haven’t been back .
Not tested for Graves but yes to Hashimoto and had raised antibodies
Bloods should be retested 6-8 weeks after each dose change or brand change in levothyroxine
For full Thyroid evaluation you need TSH, FT4 and FT3 tested
Also both TPO and TG thyroid antibodies tested at least once to see if your hypothyroidism is autoimmune
Very important to test vitamin D, folate, ferritin and B12 at least once year minimum
Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease
About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high TPO and/or high TG thyroid antibodies
Autoimmune thyroid disease with goitre is Hashimoto’s
Autoimmune thyroid disease without goitre is Ord’s thyroiditis.
Both are autoimmune and generally called Hashimoto’s.
Significant minority of Hashimoto’s patients only have high TG antibodies (thyroglobulin)
20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis
In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)
Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
T3 or NDT ….day before test split T3 as 2 or 3 smaller doses spread through the day, with last dose approximately 8-12 hours before test
Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins
Post all about what time of day to test
healthunlocked.com/thyroidu...
Testing options and includes money off codes for private testing
Medichecks Thyroid plus BOTH TPO and TG antibodies and vitamins
medichecks.com/products/adv...
Blue Horizon Thyroid Premium Gold includes BOTH TPO and TG antibodies, cortisol and vitamins
bluehorizonbloodtests.co.uk...
Only do private testing early Monday or Tuesday morning.
Link about thyroid blood tests
thyroiduk.org/testing/thyro...
Link about Hashimoto’s
thyroiduk.org/hypothyroid-b...
Symptoms of hypothyroidism
thyroiduk.org/signs-and-sym...
Tips on how to do DIY finger prick test
support.medichecks.com/hc/e...
Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee
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