I’m re-posting in case anyone has any insights ... - Thyroid UK

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I’m re-posting in case anyone has any insights on these results ….

northsix profile image
16 Replies

these tests were done after I had increased my ThyroGold dose from 450mg to 600mg but I have not felt any discernible improvement in my symptoms which have got worse. I had a total knee replacement last July and things seem to have gone haywire since then.

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northsix
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TiggerMe profile image
TiggerMeAmbassador

I've no experience of NDT, I thought people generally go on symptoms rather than blood test results, but if I got these results I'd be looking to increase... you mention a knee op, have you tested your B12, Vit D, folate and ferritin since then? Anaesthetic strips the body of B12

northsix profile image
northsix in reply toTiggerMe

Thank you Tiggerme. I haven’t been tested for vitamins since the op - I’ll get that done when I do the full panel for my endo appointment. I do take a vitamin b complex daily, the pink tribe one as recommended by someone on the forum. I also take 10,000iu +K2 daily. I’ll get this all done I. The next couple of weeks.

TiggerMe profile image
TiggerMeAmbassador in reply tonorthsix

I'm not a fan of the Pink Tribe B complex as it has the iffy form of B6 which didn't work for me, swapped to one with P-5-P and felt a whole lot better

healthunlocked.com/thyroidu...

northsix profile image
northsix in reply toTiggerMe

Gosh it’s all a shocking great minefield isn’t it. I will investigate as I’ll need to replenish soon. Thank you x

TiggerMe profile image
TiggerMeAmbassador in reply toTiggerMe

Just went to investigate ThyroGold hormone content... and wonder how effective it is as 600mg equates to 200mcg T4 and 50mcg which would be a high dose if taking standard tablets 🤷‍♀️

northsix profile image
northsix in reply toTiggerMe

Mmmm … I have heard others report that the efficacy is not consistent from one batch to the next. I was doing quite well early last year and spontaneously lost a stone but all went Pete Tong after the op. I am hoping against hope that the endo might suggest a trial of t4 and t3. At least the results of testing would be quantifiable.

SlowDragon profile image
SlowDragonAdministrator

You might try adding some levothyroxine to improve low Ft4

northsix profile image
northsix in reply toSlowDragon

Thank you SlowDragon. I have some 100mcg left over from when I started NDT so I’ll start that straightaway and see what happens….

SlowDragon profile image
SlowDragonAdministrator in reply tonorthsix

Try adding max 25mcg daily

Retest in 6-8 weeks

cutting 100mcg into 1/4’s using sharp craft scalpel or pill cutter

Get weekly pill dispenser to store spare 1/4’s in

northsix profile image
northsix in reply toSlowDragon

Thanks for that SlowDragon. I have a pill cutter with storage so I’m all set!

DippyDame profile image
DippyDame

This might help

healthunlocked.com/thyroidu...

northsix profile image
northsix in reply toDippyDame

Wow! That was a fairly comprehensive overview. Thank you x

greygoose profile image
greygoose

If you're taking vit D, are you also taking magnesium? The two work together and if you don't take it, the vit D will use up all your magnesium.

No point in testing magnesium, the results are not reliable due to the way the body handles it. :)

northsix profile image
northsix in reply togreygoose

Oh dear! In the back of my mind I did know this but I remember looking at the options and went into a spin about all the various types and lost the will. I will get into gear and do something about it now. Thank you greygoose x

greygoose profile image
greygoose in reply tonorthsix

Yes, I can understand that. :)

northsix profile image
northsix in reply togreygoose

🤣

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