Confused

[Popcorn12345]

I do not have a thyroid issue but have been told some people here have had Anxiety caused by vit d supplements? Is this true as I have had a reaction

[SlowDragon Administrator]

welcome to the forum

What thyroid tests have you had

What’s your most recent Vitamin D result

How much vitamin D are you taking

Are you taking any magnesium too

[SlowDragon Administrator]

Can see from your other posts you’re probably taking B12 and vitamin B complex?

Remember to stop B complex, or any supplements that contain biotin 5-7 days before any blood test as biotin can falsely affect test results

For full Thyroid evaluation you need TSH, FT4 and FT3 tested

Also both TPO and TG thyroid antibodies tested at least once to see if any autoimmune disease

Very important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease

Have you tested iron and ferritin

About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high TPO and/or high TG thyroid antibodies

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis.

Both are autoimmune and generally called Hashimoto’s.

Significant minority of Hashimoto’s patients only have high TG antibodies (thyroglobulin)

20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis

In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

Testing options and includes money off codes for private testing

thyroiduk.org/testing/

Medichecks Thyroid plus BOTH TPO and TG antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes BOTH TPO and TG antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Only do private testing early Monday or Tuesday morning.

Link about thyroid blood tests

thyroiduk.org/testing/thyro...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism

thyroiduk.org/signs-and-sym...

Tips on how to do DIY finger prick test

support.medichecks.com/hc/e...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

[Popcorn12345 in reply to SlowDragon]

I was taking vit b12 only not a complex and I have stopped all of it now. My doctor says I'm in range for everything and that my thyroid results are optimal.

I had a reaction to a vit d supplement before. But I don't know why this happens. Has it happened to others?

I was fine before I took the vit d supplement

[SlowDragon Administrator in reply to Popcorn12345]

My doctor says I'm in range for everything and that my thyroid results are optimal.

Yes…..not always true …..

Can you add results and ranges

Was thyroid test done early morning

Examples of “normal “ within range test results

TSH 1.5 (0.5-4.5)

Ft4 17 (12-22)

Ft3 5.6 (3.1-6.8)

These results do look “euthyroid “ …

TSH 4.0 (0.5-4.5)

Ft4 14 (12-22)

Ft3 3.6 (3.1-6.8)

Thyroid definitely struggling

[Popcorn12345 in reply to SlowDragon]

I can try and find them but I had no symptoms of thyroid problems. The only test I was lpw on was vitamin d and that was marginal. I'm just trying to find anyone who didn't get along with vit d because doctor says that's not possible because he is an idiot

[SlowDragon Administrator in reply to Popcorn12345]

Some people can’t tolerate vitamin D supplements

What’s your vitamin D result

Have you tried vitamin D mouth spray rather than vitamin D tablets

Have you added a separate magnesium supplement in afternoon or bedtime

[bantam12 in reply to Popcorn12345]

There are quite a few of us who cannot tolerate VitD in any form, my level is always low but I doesn’t cause me any problems. It’s assumed everyone needs high levels but clearly not true.

[Popcorn12345 in reply to bantam12]

What symptoms do you get?

[bantam12 in reply to Popcorn12345]

I just felt very unwell with headache, nausea and so on. There are others on the forum with the same problem so it’s not that uncommon.

[Popcorn12345]

I took magnesium with it. Didn't help. I took it as a loquid and now I have Anxiety

[radd]

Popcorn12345

Some people can not tolerate supplementing Vit D as it makes them feel unwell. These people should not try continuing to take extra Vit D because it is possible the extra is raising calcium levels too high.

Like the DIO2 and MTHFR impairments common in people with thyroid issues, there are also Vit D receptor impairments (VDR’s).

[arTistapple in reply to radd]

“The extra is raising calcium levels too high.”

I have not seen this before radd. I have recently done a hair test to look at things from a slightly different angle. I have no idea how accurate these things are but they have now been around for a long time. My calcium was way above where it should be which was disturbing and as I take Vit D plus Vit K-Mark 7 I assumed I would be ‘safe’. I have heart problems. My Magnesium was also way out of range but I understand Magnesium is not well documented in tests.

I have stopped all supplements just for a ‘rest’ until testing in about a week. Stiffness I associate with Vit D helping, has quickly returned. Etc etc.

Where can I find out more about this reference to Vit D increasing calcium levels? Vit D looked ok on last test (123). Just can’t do right for doing wrong!

One thing I was interested in was my Selenium and Zinc were both low - so that was helpful to know for my conversion. So I have something to work on with that.

[radd in reply to arTistapple]

arTistapple,

Usually parathyroid hormone and calcitonin control calcium levels but Vit D also plays a big part because is needed for the body to absorb it. If Vit D isn’t being used appropriately by the body or excess is being taken, then calcium will rise.

Elevated calcium is commonly due to overactivity of the parathyroid gland, but when is the result of elevated Vit D which isn't allowed to reduce, then hypercalcemia can develop. This then can affect the heart, and weaken the bones, etc.

mayoclinic.org/healthy-life....

[arTistapple in reply to radd]

Thanks radd. Honestly all this ‘balancing’ of supplements now is difficult. Same with hormones. Aargh!

[radd in reply to arTistapple]

Yes, it can be but it's especially important to test Vit D when supplementing because of the risk of toxicity. Your level is fine. I too aim for a Vit D level of around 125nmol/L.

Interesting you did a hair test. Will you follow up the high calcium level with a blood serum or just hope it decreases with less supplements?

[arTistapple in reply to radd]

I don’t know quite what to do. I remembered it wrongly however. On checking it’s my Magnesium and Potassium which are truly high. Kind of explains my CKD problems a bit. Optimum thyroid levels I still feel would be most useful! Checked my D and K and I am doing the right thing there.

I am going to get a session with a nutritionist first to make sure (as I can be because us hypos have particular needs!!) and go from there.

[radd in reply to arTistapple]

arTistapple

Potassium and sodium balance each other but when the adrenals aren’t working as they should, the kidneys leak sodium and their ability to remove potassium (and excess magnesium) from the body reduces. You may find supporting the adrenals and adding salt to your diet helps lower potassium levels.

If you have the funds, self investment is excellent. I previously found working with a nutritionist to be extremely helpful but was with her on and off for several years. Ensure to find one with poor-thyroid-function-induced-poor-adrenal-function knowledge.

Equally there’s some very wise advice to be gleaned from the forum from members who have recovered/are recovering their adrenal health.

[arTistapple in reply to radd]

Yes I have come to the same conclusion re: adrenals. So far each ‘treatment’ has made me edgy and it’s more than unpleasant. The hair analysis has proved useful but so far it’s clear ‘they’ don’t know enough about hypothyroidism. E.g suggesting iodine and kelp. I know it’s not recommended on the Forum but I did have a go with Sunshine salt. Definitely not good for me. So anyway I won’t be using that advice again. Good explanation of the workings behind the facts of the Potassium/salt/magnesium issues. I definitely desire salt and find it invigorating. Just worry about the CKD issues, although I am told it’s stable.

Anyway so many irons in the fire at the moment and trying to keep tabs on them. Not the best place for a hypothyroid sufferer to be dealing with!

Thanks for replying and guidance. Much appreciated.

[Popcorn12345]

I have stopped taking it but the adverse reaction isn't stopping. It only took it for 4 days at a child's dose.

[Popcorn12345]

How long does it normally take for effects to wear off?