any sleep apnea success please?: I've discovered... - Thyroid UK

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any sleep apnea success please?

Jeppy profile image
17 Replies

I've discovered after a trip away with folk that I hold breath I've read it's hypo connected

I don't fancy big contraption treatment but notice a portable version on line also a 'head band'

Has anyone had success please?

thanks & best wishes

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Jeppy profile image
Jeppy
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17 Replies
Jeppy profile image
Jeppy

no worries. Apologies. I've seen older threads on ig

Jaydee1507 profile image
Jaydee1507Administrator

There are a number of devices that claim they help or work for sleep apnoea. They don't, simple as that, or hospitals would be handing them out.

Many OSA sufferers have held back from getting treatment or once they get it find difficulty with the CPAP machine and mask. There are now a good range of masks and lots of help available to use them.

The thought of using a CPAP machine is probably worse than actually using it and experiencing the benefits.

Jeppy profile image
Jeppy in reply to Jaydee1507

Yes you are most probably right there but I'm going away in 3 weeks I pity my cabin share and won't be seen nhs by then

Do you know if portable ones work at all. Are these masks on line

Jaydee1507 profile image
Jaydee1507Administrator in reply to Jeppy

Theres a charity called Hope2sleep that you can do testing with and buy a machine & mask. They are very helpful and can all be done online.

A lot of people do private testing these past few years as waiting times so long on the NHS.

Jeppy profile image
Jeppy in reply to Jaydee1507

Thanks a lot il look

Batty1 profile image
Batty1

Do you currently use a Cpap machine? If so they do have portable machines but I think you need to have a sleep study test to get a CPAP Machine.

Jeppy profile image
Jeppy in reply to Batty1

I read you do yes

No I only got diagnosed the other day

Jeppy profile image
Jeppy in reply to Batty1

I'm starting sax lessons. May help a bit

Batty1 profile image
Batty1 in reply to Jeppy

Sax lesson won’t help if you have sleep apnea.

Jeppy profile image
Jeppy in reply to Batty1

I've read it can as you gain more strength in tubes

There's a thing called iqora also which can be prescribed

Batty1 profile image
Batty1 in reply to Jeppy

I don’t understand what you mean “more strength in tubes” the CPAP machine actually helps keep your airways open by blowing whatever your pressure is based on your sleep study.

Jeppy profile image
Jeppy in reply to Batty1

Just good all round for improvement I had a google sorry no link

Jeppy profile image
Jeppy in reply to Jeppy

Not saying it's a cure all of course

Jeppy profile image
Jeppy in reply to Jeppy

I expect checking out nose polyps is a thing to consider

Jeppy profile image
Jeppy in reply to Batty1

..an example my daughter with asthma took up woodwind and swam she avoided all inhalers which open tubes Now it's a thing of the past

12stkeepgoing profile image
12stkeepgoing

I have sleep apnea and use a CPAP machine every night. I had my sleep test after having a night time tonic clonic seizure. Although my husband had asked me to go to the doctors several times as I snored and he said I stopped breathing when asleep. My sleep test showed that I did not sleep at any time during the night waking 30 times a hour. My blood oxygen dropped to the mid 7o's and my lowest heart rate was 47. So I was wrong and my husband was right. The sleep apnea did not cause the seizure because I had another one while using the machine and was later diagnosed with epilepsy.

The machine is strange at first but I soon got used to it and feel much better sleeping using it. My husband says it is not too noisy but not sexy which I should be glad of. When staying with my friends they are OK, even the one with insomnia manages to sleep though me using it.

Do get checked I did not realise the danger I was in with the risk of driving with sleep apnea. I'm not allowed to drive if I do not use my machine for at least 4 hour a night although I can have 2 nights without using it, because of travel for holidays, illness etc. There is a card in the machine that the hospital checks my usage on. They have only checked it once in 5 years.

I hope this helps

Jeppy profile image
Jeppy

interesting. Thanks

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