So after 4.5 years of suffering, and most recently due to a feeling of choking / lump in throat I got my appointment for an endocrinologist this morning.
What an utter waste if time.
They dicsused my case, werent insterested in the Hashi's flair ups (its like they don't exist), they were only interested in the lump / choking sensation.
They wouldn't discuss the under-medicate / over-medicated pendulum of life that I live on.
They have refered me to ENT regarding the the throat, but have suggested that its possibly to do with silent reflux which he was keen to point out is NOTHING to do with Hypothyroidism.
In summary at the end, he said that we "the thyroid community" need to accept that once we have Levothyroxine which medicates us to "in range", (mine is currently TSH 14, range of 9-19) that we need to stop considering our selves a victim of this. Essentially, the fact that I still have 8-10 symtoms of Underactive thryoid, is nothing to do with my thyroid, and must be something else wrong with me. Essentially Im overweight because I eat too much, Im tried because I don't sleep long enough or go to bed early enough, I'm anxious because there is too much going on in my life. So he sent my off out of the door with a script for Omeprazole and gaviscon to treat the symptoms for silent reflux. (I have quite an experience of silent-reflux as I had a baby who suffered form it until he was 4).
Ive never felt so lonely and disappointed in my life.
I must accept that todays status is what I should consider normal, because I will never feel well again. As long as on paper you re not out of range, then theres nothing clinically wrong with you.
I feel totaly broken. Maybe its all in my head?