Unwell again

[Dawney63]

I had my last blood tests on 7th November, as advised on here I increased my levo by another 25 mg to 125 mg against the GPs advise, I asked a few doctors at the surgery to increase and all said no, the last one was asked on 20th November, see photo of her response.Over the last 3 days I have started to feel very unwell again, buzzing in ears horrendous, feels like my hearts beating to fast,( my resting heart rated this morning is 54 and blood pressure is normal ) more tired, concentration levels are awful, very little motivation, no appetite.

I will ask the GP to do a blood test the check my thyroid if they refuse I will do one through medichecks.

My GP said the symptoms for under and over active thyroid are the same and suggested I lower my levo as I might be over medicated, is this correct?

[TiggerMe Ambassador]

Not unusual to feel worse at some point during an increase, looking at your last results being so low there is very little chance you are overdoing it but your body needs time to adjust as you have been under-replaced for a long time... BP and HR (56 is on the low side unless very fit) are good signals that all is well

[TiggerMe Ambassador in reply to TiggerMe]

Thought this might be useful, you may have gotten used to a slower tick over?

Resting heart rate guide

[Hedgeree]

Hi Dawney63,

As Eeyore says you can often feel worse as you increase your hormones. It happened to me and I had to go very slowly when I was first prescribed Levothyroxine and still continue to do that as it works for me.

This forum provides peer to peer support and both members and admin make suggestions based on their experiences on what worked or didn't for them. It's best not to consider it as 'advice' but rather information, guidance and support from those having had similar experiences.

It does not replace the advice given by your gp or other medical professional.

I'm fairly new to all things thyroid but have found that members suggestions have really helped me to feel more in control of my thyroid health and I still have a long way to go! 😊

[TiggerMe Ambassador in reply to Hedgeree]

I disagree with this Hedgeree... poor old Dawney is being treated based on TSH levels, which is why many have advised her to increase.... against Dr's orders

"This forum provides peer to peer support and both members and admin make suggestions based on their experiences on what worked or didn't for them. It's best not to consider it as 'advice' but rather information, guidance and support from those having had similar experiences.

It does not replace the advice given by your gp or other medical professional."

Often our advice really does question the GP's treatment and gives people the guidance they need to re-educate their ill-informed professionals and hopefully gain better health

Last results

[Hedgeree in reply to TiggerMe]

Yes I totally agree with you Eeyore 😊

Sorry if I've explained that badly. I was just pointing out what is described in the forum 'rules' if you like; I feel stating what happens on the forum as advice gives the wrong impression. With the forum being mainly based on members' experience and peer support would it be best described as guidance?

It's semantics I know but I think the response from Dawney's GP illustrates why describing it as advice can be problematic;

......if third party advise to increase, they should be prescribing the medication and doing the monitoring as well, as we are not responsible for their advice.'

My thyroid condition was ignored by my GP for over 30years and I still don't have a diagnosis other than partial thyroidectomy. So I have some very long term experience of gaslighting. To say it's been a battle is an understatement. Now they are refusing to increase my prescription so I understand what it's like to be treated based on TSH levels; it's not good.

Hope that makes sense; my strengths really do lie elsewhere.

[TiggerMe Ambassador in reply to Hedgeree]

The bolshe gaslighting threats are an interesting twist aren't they, usually a sign that they haven't a clue... my Endo tried that.... they really don't want to treat us do they?... you are very right in the fact we are not medically trained, so maybe more open minded and inquisitive, self education via books and mainly this forum makes our knowledge far superior to most medics 🤗

Are you now coping with 100mcg 👏

[Hedgeree in reply to TiggerMe]

I wouldn't have got this far without all the knowledge and experience here and I only wish I'd found the forum sooner but glad I did so in the end.

It's difficult dealing with GP's that have no knowledge of how to treat a thyroid condition. Or rather think they do as 'TSH is it' for them. I avoid my surgery and dread when I have to contact a GP there, walking on egg shells around them.

I have occasionally referred to Thyroid UK but it wasn't received well so I now have 'a friend' that is an endo nurse! 🤔🤣 and she makes suggestions on how to progress and titrate up with my thyroid hormones....😊

[TiggerMe Ambassador in reply to Hedgeree]

Yeah, you quickly learn how to read the room don't you 🙃

[mrskiki in reply to Hedgeree]

like yourself I’d tend to refer to one of tattybogles links recommending the lower TSH than mention the forum, knowing that at my surgery hackles would rise…

healthunlocked.com/thyroidu...

[Sparklingsunshine]

Without seeing your blood tests its impossible to say, but many people experience hypo and over medicated symptoms very similarly.

Fatigue, palpitations, anxiety, brain fog, dizziness can all be down to too much thyroid meds or not enough. They can also be down to other causes like low B12, iron, folate. Have you checked any of these out recently?

[SlowDragon Administrator]

What are your most recent vitamin D, folate, B12 and ferritin results?

What vitamin supplements are you taking

[Dawney63 in reply to SlowDragon]

I don't think my GP tested all.of those on 7th November, the results I have found on my NHS app I have put photos on.Should I do a private blood test for everything.

If I remember a few months ago my vitamin D was high so I reduced my vitamin D spray.

Results

[SlowDragon Administrator in reply to Dawney63]

Are you taking daily vitamin B complex?

[Dawney63 in reply to SlowDragon]

Yes the Igennus super strength.Also I use a magnesium spray, take krill tablets and evening primrose oil.

Vitamins

[SlowDragon Administrator in reply to Dawney63]

Krill oil likely to contain iodine, not a good idea when taking levothyroxine

Levothyroxine contains all the iodine you need

[Dawney63 in reply to SlowDragon]

Thank you, whats a alternative to krill, I take it because of osteoarthritis in my fingers

[SlowDragon Administrator in reply to Dawney63]

According to this,,..actually krill probably doesn’t contain iodine

amazon.com/ask/questions/Tx....

Suggest you do some research

article about benefits

zoe.com/learn/fish-oil-vs-k...

[Dawney63 in reply to SlowDragon]

ThanksVery much appreciated

[TiggerMe Ambassador in reply to SlowDragon]

These were the last ones put up from a couple of months ago

[Insomania]

Best to keep your info sources to yourself. Some medical professionals do not like patients being knowledgeable about their own health conditions. It upsets the patriarchy.

I tried for two years but could not get treated. It became easy to spot the patriarchs because they offered me anti-depressants for my thyroid symptoms 🤷‍♀️

I found a private thyroid Dr who ‘gets it’ but I recognise that’s not financially possible for everyone….

[Dawney63 in reply to Insomania]

Thank you I will be more careful in future about what I say to my GP.Hopefully selling my house next yearcsonshould have some finances to see a Endro private.