Hi guys , sorry for not posting for a while.. little update . Got my most recent results of endocrinologist.... finally!! ( no ranges tho .. I assume they are standard nhs range)
Tsh - 6.09
Ft4 - 9.8
T3 - 5.5
Total Cholesterol- 6.8
LDL - 3.9
TG - 1.8
HDL - 2.4
Still currently taking 50mcg daily ( I know I need an increase)
I've been waiting for a second opinion from a different endocrinologist, but guess what the original one I spoke to has apparently seeked a second opinion himself from a colleague . and now I've been struck off nhs endocrinology and won't be getting any future appointments from the clinic .
I believe this is because he didn't like me standing up to him and quering him about what he was telling me ...... ie start of conversation he told me I needed an increase.... I told him side effects I was experiencing... he said I was over medicated. I lost faith immediately
I'm going to hopefully speak to doctors this week but really don't know where to go now .
Private is an option , but I'm worried about ongoing costs !!
Just want to walk up to a wall and start banging my head against it.
Fed up as @&£#
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HashiJ
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If symptoms of hypothyroidism persist despite normalisation of TSH, the dose of levothyroxine can be titrated further to place the TSH in the lower part of the reference range or even slightly below (i.e., TSH: 0.1–2.0 mU/L), but avoiding TSH < 0.1 mU/L. Use of alternate day dosing of different levothyroxine strengths may be needed to achieve this (e.g., 100 mcg for 4 days; 125 mcg for 3 days weekly).
guidelines on dose levothyroxine by weight
Even if we frequently start on only 50mcg, most people need to increase levothyroxine dose slowly upwards in 25mcg steps (retesting 6-8 weeks after each increase) until eventually on, or near full replacement dose
In the majority of patients 50-100 μg thyroxine can be used as the starting dose. Alterations in dose are achieved by using 25-50 μg increments and adequacy of the new dose can be confirmed by repeat measurement of TSH after 2-3 months.
The majority of patients will be clinically euthyroid with a ‘normal’ TSH and having thyroxine replacement in the range 75-150 μg/day (1.6ug/Kg on average).
The recommended approach is to titrate thyroxine therapy against the TSH concentration whilst assessing clinical well-being. The target is a serum TSH within the reference range.
……The primary target of thyroxine replacement therapy is to make the patient feel well and to achieve a serum TSH that is within the reference range. The corresponding FT4 will be within or slightly above its reference range.
The minimum period to achieve stable concentrations after a change in dose of thyroxine is two months and thyroid function tests should not normally be requested before this period has elapsed.
Your TSH levels shows that your thyroid is struggling to keep up and that has affected your cholesterol levels. Change endocrinologist a.s.a.p. I have done it ( I faced a similar situation ) and I'm thankful about that
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