Update on T3 re-installed 🤦‍♀️

[birkie]

Hi everyone ❤️

I posted a few days ago about my gp stopping my T3 until I see endo, good news 🙌 just got the email whilst doing this post😂 prescription is activated again, it's in my chemist 🙌🙌🙌

But I can tell you it's been 2 days of hell, trying to sort it😠😠

So in the meantime can I ask members for some advice 🙏 endo appointment Dec 27th..this endo is usless I've seen her before, 🤦‍♀️and I'm dreading seeing her again.. But i am at present under a thyroid /parathyroid surgeon in Liverpool who's dealing with my primary hyperparathyroidism.

She also did thyroid blood work after I showed her what this drug is doing to me (💩 photos).

She rang me back with the thyroid results :

TSH... 0.05

T3....11.4

She noted I looked over medicated, but I explained that I'd taken my T3 medication that day... Ha... OK she said.... What time did you take it?

5am..normally I'd take it at 8am but I was travelling to Liverpool to see yourself so had to take it earlier.

SURGEON... OK... So... 5am ingestion of T3.. What amount did you take.. 10mg.. OK let's break this down.

You took 10mg at 5am....we did blood work at 11.30...some 6 and a half hours after ingesting 10mg and your T3 was (11.4)...your TSH was (0.05).

"I would not have expected to see a level that high of T3 after 6 and a half hours" .

"When would you take your next dose?

I would take it at around 12.30.

"So even at 11.30 you had a T3 of 11.4...then your going to take another 10mg at 12.30pm).. Yes!!

She then went on to explain a few things she would like me to mention to this endo.. The above being one, she went on to say..." I feel something is going on with yourself and this medication.

1, you could be pooling the T3 in your blood stream, by that I mean the medication is not getting to where it needs to go giving a high reading of T3.

2, you could be hypersensitive to the drug.

3, you are probably having bad absorbtion /malabsorbtion issues , because of your colitis /lactose intolorent.

Now I feel this surgeon gave me some good pointers to take along to this appointment, but I certainly have no faith this endo will have the faintest idea about any of it🤷‍♀️

Personally I'm struggling to understand the T3 reading of 11.4 some 6 and a half hours after ingesting 10mg.

When ingesting the T3 what happens?

Do you have a peek in T3?....then it slowly decreases? Why would I still have such a high T3 in my blood after 6 and a half hours?

I appreciate any advice from members on this, the stomach and bowle issue will speak for it's self when I push the 💩 photos under her nose.. (ho for smelly vision 😂).

Thanks for anyone brave enough to read this... 😂

[greygoose]

I would have zero faith in this thyroid surgeon. Firstly, she calls T3 a drug! Which it absolutely isn't. It's a hormone.

1, you could be pooling the T3 in your blood stream, by that I mean the medication is not getting to where it needs to go giving a high reading of T3.

There's no such thing as 'pooling'. The half-life of T3 is only about 24 hours, it doesn't have time to pool.

2, you could be hypersensitive to the drug.

And that would work how? Being sensitive to something doesn't mean blood levels are high.

3, you are probably having bad absorbtion /malabsorbtion issues , because of your colitis /lactose intolorent.

Absorption issues in the gut? Colitis and lactose intolerence would affect absorption in the gut, but that would cause low levels, not high. Although delayed absorption might explain it. If you didn't absorb the 5 am dose within the normal time-frame, and it hit the blood a few hours later, that might explain why the FT3 was high at the time of the blood draw.

So, whilst point 3 might be a possibility, I really wouldn't mention the other two to the endo if you want to be taken seriously.

[birkie in reply to greygoose]

I'm actually under her for primary hyperparathyroidism, believe it or not she advocates for better thyroid /parathyroid health along with a surgeon in Oxford.Both think the NHS are inadequate in dealing with thyroid and parathyroid issues, it's only thanks to her I've got my diagnosis of primary hyperparathyroidism, because this endo I'm seeing in Dec said on 2 occasions.. I definitely don't have primary hyperparathyroidism, eventho my blood work showed it.

Obviously something is going on because on her blood work I looked over medicated after 6 and a half hours of ingesting it... She took my T3 down from 25mg to 20mg, one because of the over medicated results, but also because I can't stomach it, 🤢 25mg is hard to maintain, I managed it for 6 wks with bad diarrhea, cramping, inflammation, as I said I showed her the photos of what I'm passing, I've not managed to get bk to 25mg because of the bowle /stomach issues.

My last bloods done in Nov now show I'm hypo... Did same regime as I did with her only it was 8 hours after 10mg...and my TSH was 11.59...no T3 done at that point🤦‍♀️

Did have it done a few wks later same regime T3 was 4.7.. No TSH

I did the same regime on my last bloods in Nov and I'm now hypo🤷‍♀️

So yes it could be totally an absorbtion problem, which is what I'm going to pitch to the endo with the back up photos.

And yes this pooling and hypersensitive thing perplexed me to 🤔 so I'm sure as you say the endo will probably just skip over it👍