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Carri3 profile image
12 Replies

Hi all you lovely people, hope you are doing well. Please see my previous posts. The latest results of test done on 21/8 showed TSH 0.03 which is the same as before and I had reduced the dose from 100 to 100/75. I have now reduced to 75 since 28/8. I can only surmise that my vitamin levels are now optimal. I would really appreciate your opinions.

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Carri3
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SlowDragon profile image
SlowDragonAdministrator

Just testing TSH is completely inadequate

Many members have similar low TSH when correctly treated

Are you only taking levothyroxine or also taking T3

Suggest you get FULL testing before changing dose

all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

On T3 - day before test split T3 as 2 or 3 smaller doses spread through the day with last dose 8-12 hours before test

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Only do private testing early Monday or Tuesday morning.

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism

thyroiduk.org/wp-content/up...

Tips on how to do DIY finger prick test

healthunlocked.com/thyroidu...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

Carri3 profile image
Carri3 in reply toSlowDragon

Thanks for your quick response SD. Sorry I didn't add the full results which are TSH 0.03 (0.38-5.35 mu/L). FT3 5.7 (3.8-6.2 pmo/L) FT4 16.3. (7.9-14.4 pmol/L).I am only taking Levo

SlowDragon profile image
SlowDragonAdministrator in reply toCarri3

Was test done early morning and last dose levothyroxine 24 hours before test

FT4: 16.3 pmol/l (Range 7.9 - 14.4)

Ft4 over range 129.23%

FT3: 5.7 pmol/l (Range 3.8 - 6.2)

Ft3 79.17% through range

So yes you do appear to be over medicated

Which brand is 75mcg levothyroxine

Retest 6-8 weeks after being on 75mcg daily

Definitely test vitamin levels at next test

Carri3 profile image
Carri3 in reply toSlowDragon

Yes, test was done at 8.55 am and no thyroxine for 28 hours before and only water for 13 hours

Carri3 profile image
Carri3 in reply toSlowDragon

Just to clarify, I got latest thyroid test after dose decrease and brand change Mercury Pharma 50 & Wockhardt 25.

SlowDragon profile image
SlowDragonAdministrator in reply toCarri3

So how long had you been on 75mcg

What are your vitamin levels

There’s nothing on your profile

Presumably you have Hashimoto’s?

This could possibly be a temporary Hashimoto flare

Try reducing to 67.5mcg daily

You have IBS

Are you on gluten free or dairy free diet

Approximately how much do you weigh

Carri3 profile image
Carri3 in reply toSlowDragon

I have just updated my profile, have been taking 75mcg since I got the test results 5 days ago and I haven't had my vitamins levels checked since my previous post, I am not gluten free but I am dairy free.

SlowDragon profile image
SlowDragonAdministrator in reply toCarri3

D was 54,

B12 292,

Ferritin 38,.

Folate, 7.1

Have you retested since these

Carri3 profile image
Carri3 in reply toSlowDragon

No, but I began taking the above supplements+ B complex and magnesium 4 months ago so will get tested again. Thank You so much for your consideration and time SD 🙂

Carri3 profile image
Carri3 in reply toSlowDragon

I weigh 62 kgs

SlowDragon profile image
SlowDragonAdministrator in reply toCarri3

Guidelines on dose is approximately 1.6mcg Levo per kilo of your weight per day

62kg x 1.6mcg = 99mcg

Some people need less, some need more than guidelines

So you may find this recent reduction is a temporary hashimoto’s flare and you may need to increase again in few weeks/months

Retest in another 2 months

Carri3 profile image
Carri3 in reply toSlowDragon

Will do. I have to say that I am absolutely shattered after my family's visit over the long weekend and am experiencing the "thyroid crash". Many Thanks again SD.

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