I just want to put this out on here, as many of you know who have read my posts recently I'm struggling with awful stomach and bowle pain (bad diarrhea /cramps nausea, and inflammation, sweating .On Monday I woke feeling the worst since my thyroid was in my neck, sweating constantly had a marked tremor in my hands, vibrations from my pubic bone down my legs to ankles, and in my hands which as continued until I'd had enough and on Friday, I stopped the T3 (Roma 25mg split 10mg,10mg,5mg) my bowles were so inflamed I look 6 months pregnant I just couldn't stand the diarrhea and pain anymore.
Today I feel better, my sweating has diminished a bit but hasn't totally gone, my shaking has also gone down a bit but is still there, the pain and swelling in the bowles has gone down to, but the vibrations in upper and lower limbs continue.
I can only compare the fits of shaking and sweating with the bone vibration to episodes, I have them way more when on the T3🤷♀️ I'm wondering if this drug.. A, effects the menupause by making it worse? Or B, it's got something to do with low cortisol (which I have mentioned on here and got a lovely response by a member 💓) I'm not over medicated last thyroid bloods done 20th July 2023...(TSH..1.77..range 0.30..4.50)...T3...5.4..range.. 3.10..6.80).
I've been trying and failing to get an appointment with a gp but been unsuccessful, I've also been to Liverpool twice recently to see a specialist and to have a chlorine pet scan for a Parathyroid problem.
So we're not able to make any appointments in those weeks 😔 but it's still the same crap.. You call between 8am/9am they either cut you off.. (because the appointments have been filled) or they just tell you no appointments available, even for a gp to call you back 😠.. (rant over)..
Today eventho I'm having small sweats (less frequent) and the vibrations (less frequent) today I've passed a formed motion👍 no watery muddy poo my bowles feel calm, no pain or inflammation, I feel good, want to eat, now I know this will not last as I don't have a thyroid so need thyroid replacement, but I don't want to go back on the thyroid medication my surgery have Guinea piged me with since 2019 (T4, T3 lactose free, I'm lactose intolerant and have colitis ).
I fear my only recourse is to go to my surgery and show the receptionist what I'm passing while on this drug.. And belive me it's not a nice picture, I had to show my son it.. He was shocked and said its not normal to pass that unless you have a bug or virus in the bowle (I had colonoscopy in May no cancer showed up and the gp said if no cancer is detected I will need to see the endocrinologist about it but it's hell trying to get that appointment 😠
I'm not going back on it.. I just can't 😔