I am wondering if this is the next move for me as I have been fighting psoriac arthritis and it is really affecting my hands badly since covid got me in 2020. ANY advice please? Thanks, Shawn
Low Dose N: I am wondering if this is the next... - Thyroid UK
Low Dose N
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MSC56
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SlowDragonAdministrator
Are you already on strictly gluten free diet?
If not get coeliac blood test BEFORE trialing GF
healthline.com/health/psori...
oh yes for years, this all came about after covid in 2020. I have had Hashi's since 1996, post partum.
Helpful to add summary of your thyroid journey on your profile
so you have no idea if LDN might help my tons of inflammation then?
no …..not tried LDN
I found dairy free as transformative as gluten free…..finally went dairy free year ago
ok but I have asked a particular question about LDN. I have used this website for decades, so not new here but maybe you are? I am asking not about diet, I know all about AIP and was a Nurse, in my past, favouring Holistic Medicine, now I have an issue which I, as smart as I am and as hard as I try, can not seem to heal or make better so I am asking particularly about LDN for those reasons. If you don't know why did you jump in? Wasting my time here....
This is a very rude response to one of the forum administrators! You can’t have been around here much if you don’t know how much work Slowdragon puts in.
To say she is wasting your time is unforgivable. I think you should apologise immediately.
There’s probably an LDN forum on Health Unlocked.
If I was on a hospital WARD AS A NURSE AND SOMEONE ANSWERED YOUR QUESTION IN A ROUNDABOUT WAY AND IT HAD NO CONCERN FOR THE ACTUAL QUESTION THAT COULD KILL SOMEONE IN AN EMERGENCY SO EXCUSE ME FOR STATING THE OBVIOUS AND IF YOU DO NOT KNOW JUST SAY I DO NOT KNOW. That is how the actual real world works and haven't we ALL got the shimsham runaround about this crazy disease???? Let's be CLEAR in our communication, please.
I've been taking LDN for Fibromyalgia since December. Started off on 0.5mg of liquid and slowly increased. I'm now on 4mg capsules with the aim of getting to 4.5mg daily as a maintenance dose. I've heard LDN is useful for some with autoimmune conditions as it regulates the immune system. I'm taking it for pain however.
can I ask you how much difference LDN made to your Fibro, my partner has Fibro and we are considering adding in LDN once her thyroid is optimised
I've found its decreased my pain and helped with mood, improved sense of wellbeing and energy levels. I had to go private as my GP wont prescribe it, which seems really daft as they are happy to chuck painkillers, sleeping tablets and antidepressants at Fibro patients despite there being very little evidence showing they work. How much do these cost the NHS?
I think that’s a unfair, as far as I am aware all the Admins on here give up their time to help us unpaid, they do a lot of good in helping people. Nobody is wasting your time, but is maybe worth reflecting that you are asking about LDN for arthritis on a Thyroid forum. If someone was being equally harsh they could say that’s wasting thyroid peoples time.
since you could not be bothered to read my response which clearly states I have had Hashimoto's, an auto immune disease since 1996 AND I added that my PSORIAC arthritis came about 3 years ago when I got covid, yeah, all up there and so perhaps my "attitute" is like this Ainslie, my time is precious too not just a flippant answer to a question I never asked about.
The lack of any information on your profile hinders appreciation of your current situation and background.
You joined June 12, 2013.
There are about nine forums on HealthUnlocked which specialise in arthritis:
healthunlocked.com/search/c...
Including one which even mentions psoriatic arthritis .
About Beyond Psoriasis
We’re a community of people affected by psoriasis and psoriatic arthritis but looking beyond our diagnosis. Join the movement! Work, play, family and the daily grind are as important to us as our symptoms, treatment and research. Beyond Psoriasis is supported by funding from LEO Innovation Lab.
healthunlocked.com/beyond-p...
It seems feasible that they might able to help.
YES BUT I have Hashimotos, which makes my concern connected with my Thyroid issue first and as anyone knows with Hashi's you can get, after time, other auto immune diseases, and since LDN works for some on the auto immune, what is psoriac arthritis??? AUTO IMMUNE, thanks!
MSC56 ' I have used this website for decades,'
HealthUnlocked platform was only launched in 2010, so only one decade has passed.
'so not new here but maybe you are?'
If you check SlowDragon's profile, you will see she has been here since 2015, so certainly not new here. SlowDragon is also an Admin who gives up many hours a day of her time to help members. If you don't appreciate the help offered, at least be polite
' I am asking particularly about LDN'
This forum is for people with Thyroid Disorders. Help with medications not directly related to thyroid dysfunction, such as LDN, is not something we specialise in.
SlowDragon has given you a link to a search for other posts and comments about LDN. If these don't help you, then you need to take your question elsewhere.
Being rude to one of the most hard working and helpful Admin Team will not garner any favours from members she has helped. If you think you’re wasting time here, try somewhere else.
RegenallotmentAmbassador
Izabella Wentz talks about success LDN,
have you tried doing a search for discussions on here?
I’ve heard that if you Google the phrase Health Unlocked with the search term it works better than the forum search tool.
For a long time I wanted to try LDN but my problem turned out to be functional B12 deficiency (serum levels good but had all the symptoms b12deficiency.info/signs-an... ; only solved with injections). Looks like there might be a link with psoriac arthritis in some. pubmed.ncbi.nlm.nih.gov/209... And in turn high homocysteine can be linked to heart issues. Did you ever get the tests suggested in your heart problems post from 3 years ago?
I was absolutely shocked by the response given to SlowDragon and it reminded me of an attitude encountered many times from doctors who are completely full of themselves. "I'm a doctor (or a very intelligent nurse) and you are a piece of dog poop on my shoe." My perception of SlowDragon's response was for her to find out more about your situation and maybe consider lifestyle changes first before getting into medication that might possibly be unnecessary. SHE WAS TRYING TO HELP! If you wanted very specific advise, there are very specific websites. Since you were part of the healthcare system and as smart as you are, you are most likely familiar with pubmed, cochrane etc. It might be more to your liking. Being rude to our administrators, who put a lot of time into gathering information and doing their very best to help and encourage members is most likely not very well received here. I think an apology is in order.
How rude. Yes, I think an apology is justified also, we do not need people like you being rude to our administrators who work hard to give us their time and advice.
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