Well I'm totally loosing faith in the nhsπ as from my previous posts a few days ago my surgery deferd (stopped my T3 medication because of my recent blood results, I've been trying for around about 2 weeks to explain to the receptionist that I'd been taking the wrong amount for about 7 days before the blood test, hence the awful results.
All that is needed is for you to pass a message on to explain the mix up and get my 20mg 5mg reinstalled, but no I had to ring each day in the hope that I can get an appointment or speak to a gp, that never happened and they were closed for training on one day π€¦ββοΈso as I told the receptionist if I wait till the gp rings me on may 23rd I'd only have about 5 10s left as the Dr only sent one box of 10s to the chemist π€·ββοΈ.
So this gp rings me at 11.45..i try explaining before he tried to take me off the t3, because the conversation was heading that wayπ he then told me to calm down and listen π I allowed him to go on his tangent about T3 he said I couldn't take the 10s and the 20s together π€¦ββοΈ he was bothered I was taking to much.. π€£π€£π€£π€£ My T3 was (3. 70..range 3.10.. 6.80) TSH.. 6.25 obviously his got the TSH knee jerk reaction π€¦ββοΈ.. I then managed to explain the last results T3.. (3)....TSH...4.42..the mix up was I'd been taking 5mg in the morning 5mg evening didn't realise I'd no 20mg left so hence the blood results.
I then said how could a gp stop my thyroid medication 25mg without informing an endo, he said we have ever right to stop your medication if we think your putting yourself in danger by over medication π€¦ββοΈ
I don't understand any of this.... Even if they had a basic understanding of TSH they would be getting you to increase your meds not decrease with a TSH of 6.25!! As you are very definitely not at the risk of over medicating!
So your explanation of why your results are off ought to clarify the situation and mean they don't have to increase your meds??
I've just finished off my letter to the practice manager explaining the failings by this surgery, it could have been resolved over 2 weeks ago if only someone had taken the relivent information I'd given to the receptionist to a gp.But that's way to easy let's make it so impossible that she runs out of meds by the time she speaks to a gp... GREAT THINKING!!! π
Good for you, there is certainly something wrong with their trigger mechanism to withhold meds from a patient who's results are showing as already undermedicated and especially when you told them you are running out!! π‘
They should have been onto you a bit quick about upping your dose!
I agree and that's what I was trying to convey to this gp, I was already hypo on 20mg T3 TSH 6.25 that's why I increased by 5mg to 25mg , obviously I made the boo boo about 7 days before blood draw showing a T3 of 3 under range hypo, so what do they do... Send a prescription to the chemist of 10mg one to be taken each dayπππ so I'm clearly hypo.. But they want me more hypoππππ what the hell do they think 10mg T3 will do to my levels??? Maby this gp along with plenty have got their results the wrong way round π€·ββοΈ...πππ I have to laugh... Because if I didn't I'd be standing on a cliff top contemplating jumping π£π£π£π£
Being a bit hypo certainly leads to an existential crisis doesn't it! Lucky we have this place to vent and be heard... keep laughing apparently it's good for you π€£π€£π€£ just as well it's prescription freeπ
I've seen more than one place where a doctor has completely misunderstood that high TSH indicates hypothyroidism (and vice versa, of course). Quite simply, they interpreted TSH as if it goes in the same direction as FT4.
(Although I can't grab a quote, it wasn't a member here it was something like Pulse, or another "professional" publication of some sort.)
Obviously, I'm not even considering rare and complex cases like a TSHoma over-producing TSH.
Could totally understand his hesitation if my TSH was suppressed or way under range and my T3 way over range, now that would mean over medication, a TSH at 6.25 is not over medicated and a T3 of 3 is not over medicated..... What was he looking at to say we don't want you to be over medicated and to tell me firmly I can't take the 10mg along with the 20mg and why do i need the 5mg....I SPLIT THEM!! 20MG 5MG...THEY ARE CAPSULES π€¦ββοΈπ€¦ββοΈπ€¦ββοΈπ€¦ββοΈ give me strength π€¦ββοΈ
Yes, you're right as my mother had been diagnosed years before with Pernicious Amenia but GP stopped the B12 injections as she told Mum that her bloods were fine and needed no more B12 injections. The result was my Mother developed stomach cancer and died.
That's awful shaws, π’we took my mum to her surgery for 10 months with a dropped foot, gp kept saying it was a tendon in her foot, after 2 boots and a plaster she still had it, gp gave up, we saw another one at the surgery who promptly sent her to Newcastle hospital where she was diagnosed with motor neurone she died within a year of diagnosis π’ no one was held accountable for the miss diagnosis, as was probably your mother's case to shaws, if we allow them to make these mistakes then they will continue to occur, my family wouldn't let me fight the surgery saying it won't bring her back π€·ββοΈπ’π’
How awful for you and your family and the diagnose of motor neurone would have been an awful shock for the whole family.
Some people and or families have to carry huge burdens at certain times in their life but I hope your Mum was treated with kindness whilst in hospital.
If we do complain about their treatment/diagnosis or diagnosed being missed we, the family, have the right to complain about the diagnose/treatment.
And I can TOTALLY believe the nurses joke, π this gp honestly had no idea what he was talking about, and when I tried explaining he told me to calm down... Mr gp I'm not calm because your talking a load of crap and I can't get it through to youπ π π π
"I will go and buy them on the black market then. Yes, it is a risk, I dont know what I may be buying, but you are not keeping me safe, so what is the alternative?"
You know something when I was on T4 levothyroxin I was and still feel hyper even though my blood work doesn't show this, but one endocrinologist who I saw whilst on T4 (on T3 now) noted I was hyper.. Sweating profusely, tremor, talking fast, jittery palpitations.He very rudely asked me if I was sourcing my thyroid medication from dubious web sites as my dose of T4 couldn't be making me hyper (over medicated) but I was showing all the symptoms of this, I said no I'm not, I'm taking the amount prescribed by YOU!! And nothing else.
He then went on a rant about sourcing thyroid medication from the Internet and I should never go down that road as you never know what it contains, I said "sadly Mr ##### some patients have no other choice because of inadequate dosing by some endos.
Let's say I didn't stay in his care long... π€·ββοΈ
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